Prevent Kidney Disease
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New York, NY
July 10, 1997
Responding to unprecedented requests from donor families and the transplant community alike, the National Kidney Foundation's Donor Family Council has published a third, expanded edition of For Those Who Give and Grieve: A Book for Donor Families.
The new edition features an additional 35-page listing of valuable resources on grieving and donation including books, videos, national and local organizations and web sites. For Those Who Give and Grieve, initially released in 1990, has entered the ranks of best sellers, with more than 100,000 copies distributed to date.
Based on the suggestions of donor families and organizations who distributed previous editions of the book, the enhanced edition contains an expanded explanation of brain death, a bibliography of Spanish bereavement books for families and the Bill of Rights for Donor Families. "This is the only book I've kept on my bed stand since my son died," said one donor family who reviewed the book for this update.
Written by Margaret Coolican, RN, MS, a donor mother and volunteer chair of the National Donor Family Council, to help families cope with the loss of a loved one, For Those Who Give and Grieve continues to be the most widely-distributed resource for newly bereaved families of organ and tissue donors.
The third edition still offers cards for families to provide feedback about their experiences about the book and in particular with the donation process. This input is instrumental in planning for future editions of the book. To order the new edition of For Those Who Give and Grieve or for information about its companion newsletter, call Crystal Tucker at the National Kidney Foundation (800) 622-9010.
The National Kidney Foundation's Donor Family Council is dedicated to enhancing the sensitivity and effectiveness of the organ and tissue procurement process, providing opportunities for families to grieve and grow and utilizing the unique perspective and experiences of these families to increase organ and tissue donation.