NKF Initiatives in Dialysis
The National Kidney Foundation (NKF) has outstanding programs and resources to further educate, empower and encourage the 26 million people affected by chronic kidney disease (CKD), as well as donation and transplantation. This section of our website lists some of the ways we assist and support dialysis patients, family members and healthcare providers. Patient health care and quality of life is the NKF's top priority, and we work with and for patients and professionals to ensure that we provide the support and services that the dialysis community needs.
NKF Statement Regarding FDA Approval of Modified Language on Labels for ESAs
Dialysis Saves Lives
Watch as four dialysis patients, aged 9-70, talk about their experiences, including their fears at being diagnosed, their treatment routines and the ultimate realization that they can still lead normal, productive lives.
Have you thought about dialysis at home?
Patients with stage 4 or stage 5 kidney disease need to make informed choices about their kidney failure treatment, and the first step is learning about all the different options, including home dialysis ––both peritoneal dialysis and home hemodialysis. This new booklet presents information in easy–to–understand language to help patients beginning treatment or those interested in switching their current modality understand the importance of being involved in decision–making. It provides honest and unbiased answers to frequently asked questions about safety and how choice of therapy can affect your overall health and remaining kidney function. In an appealing and colorful design, it also clarifies common misperceptions. A work sheet is included and patient learners are encouraged to jot down their own perceptions as they learn more about the different options.
Below is a listing of some of the other programs and resources that the NKF offers the CKD community. Please check back regularly, as we may change existing or create new programs to respond to the growing needs of people affected by CKD.
NKF's "People Like Us" Join the fastest growing advocacy movement for people with CKD, transplant candidates and recipients, caregivers, donors and donor family members. Click on the link to find out how to be your own best advocate, by learning about and becoming active in your healthcare decisions and raising awareness about CKD. Through the "People Like Us" Take Action Network you can make your voice heard on policies and issues that effect you and others.
The National Kidney Foundation's Patient and Family Council – is one of several "People Like Us" constituent groups, with a membership of more than 30,000 individuals and their loved ones that are affected by CKD stages 1-5. Membership in the PFC is free. – The PFC website includes supportive resources and ways for the members to communicate with one another through;
- Patient and Family Council Message boards – a way to communicate about a topic and hear responses from others who have similar experiences
- Messages of Hope – messages from the PFC Executive Committee to the members of the Council providing personal stories and support
- Family Focus – the NKF's Family Focus section of the web site contains articles, stories and poems on issues related to CKD, dialysis, transplantation and much more. You can read back issues of Family Focus at this link.
- Kidney Care Newsletter - for patients with CKD and those at risk.
- The PFC resource page contains links to information to learn about: dialysis patients' rights and responsibilities, seek financial assistance, choose long term care programs, dialysis facility information, state kidney programs, and more. If there are any questions to which you cannot find answers or resources, please contact the National Kidney Foundation at 1-800-622-9010 or click here to find your local NKF office contact information: http://www.kidney.org/about/offices.cfm
- Social Networking Opportunities: Connect with others through the NKF "People Like Us" Facebook page. Follow us on Twitter!
Kidney Disease Outcomes Quality Initiative(KDOQI) launched in 1995, this comprehensive clinical practice guideline initiative was created to advance our commitment to outstanding patient care. The first guidelines were produced in 1997 and now there are a total of 15. These guidelines have been implemented in dialysis facilities throughout the country and work to improve the overall level of care for the dialysis patient. Click on the link to find out about these guidelines and the ongoing effort from the NKF regarding this initiative.
Kidney Disease: Improving Global Outcomes (KDIGO) – an organization designed to improve the care and outcomes of kidney disease patients worldwide through collaborating with other organizations on goals and ways to implement them through a set of clinical guidelines. Click on the link to find out the latest research in the global kidney community.
The NKF has also been a key participant in these Centers for Medicare and Medicaid Services national coalitions aimed to improve care and treatment for people on dialysis:
- Kidney Community Emergency Response
- Fistula First
- End-of-Life Coalition – For the past four years, the NKF has worked with this coalition, primarily in the area of advanced care planning. We joined with this coalition to create a Website www.kidneyeol.org devoted to end of life kidney care. A survey, conducted by the NKF of patients and professionals, helped to inform the kidney disease community about important perceptions pertaining to end of life care and treatment in dialysis facilities.
Please continue to check this page to learn about the latest NKF programs and services for the CKD/dialysis community. Also, to learn more about how you can become a strong advocate for yourself others affected by CKD and dialysis, please see our HOW TO BE AN ADVOCATE FOR CKD AND DIALYSIS FACTSHEET


