Patient & Family Council
Sharing and Supportive Resources
The National Kidney Foundation’s Patient and Family Council offers a number of supportive resources for kidney patients and their families. Click on any of the links below to learn more.
Resources
- BE YOUR OWN BEST ADVOCATE: A Fact Sheet for People with Chronic Kidney Disease
- Caregivers
- Connect with other people affected by chronic kidney disease:
- Dialysis Facility Compare
- Compare: Hospital, Nursing Home, Home Health, Medicare Plan Finder, Dialysis Facility, Physician
Go to Medicare.gov/QualityCareFinder or call 1-800-MEDICARE (1-800-633-4227) to find and compare health care providers. TTY users should call 1-877-486-2048. - End Stage Renal Disease (ESRD) Networks
- Fistula First: Information about vascular access
- Income Assistance or help with bills
- NKF Kidney Health Brochures
- NKF's "People Like Us": Long-term Care Residence Chronic Kidney Disease Checklist (PDF* - 581kb)
- Medical Alert Jewelry
- Medicare and Medicaid
- Message Boards
Patient & Family Council
Waiting for a Transplant - Older Adults
- Pharmaceutical Assistance Programs
- Preparing for an Emergency
- transAction Council: formed in 1996 to address the needs of transplant recipients of all types as well as those who await a transplant
- Waiting for a Transplant
Written by and for recipients considering Transplantation, Living Donation, The Experience of Waiting, End-of-Life Decisions, Other Sources of Help”
Publications
- Dialysis Patient's Bill of Rights and Responsibilities (PDF* - 663kb)
- Family Focus Newspaper
Back Issues
Family Focus Voices Let your voice be heard!
- Kidney Care: The CKD Newsletter
Back Issues
Kidney News
Sign up for the latest news about Chronic Kidney Disease, organ and tissue donation, dialysis and more.
Love Your Kidneys Newsletter
Get monthly updates on research, news, events, and NKF programs as well as personal profiles of those touched by kidney disease and organ donation. Also includes great recipes!
- Transplant Chronicles Newsletter
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