Patient & Family Council
What is the Patient & Family Council?
Patient and Family Council Executive Committee Members, April 2008 Committee Meetings (From left back row clockwise - Laura Weber, Celeste Lee, Chair, Duane Sunwold, Todd Theobald, Sheila Weiner (NKF staff), Norma Knowles, Dori S. Gully and Merribeth Pentisuglia)
The Patient and Family Council (PFC) was founded in 1995 by the National Kidney Foundation (NKF) for people with kidney disease and their families. It provides an avenue for patients to express their concerns and identify problems so that the Foundation can help address those concerns and problems in an effective way. The Patient and Family Council is the fastest growing and largest patient organization dedicated to issues affecting individuals with kidney disease and their families. The Council acts as a liaison between the NKF and the kidney community, and as a voice within the NKF on patient issues.
Laura Weber and Celeste Lee, April 2008 Committee Meetings
Mission Statement:
PFC serves to strengthen patient and family involvement in all National Kidney Foundation activities and guides the Foundation's work in accomplishing its ultimate goal...the total eradication of all diseases of the kidney and urinary tract.
Goals:
Constituent Council Executive Committee Members at NKF CM-08 Hope Street Booth
- Education -- to educate and empower patients and families to make informed decisions about the quality of care they or their loved ones receive
- Legislation -- to provide a stronger and more unified voice on local and national legislative issues
- Advocacy -- to give patients and families a vehicle by which they can express their concerns and identify problems so that the Foundation can address those issues
- Programs and Services -- to increase the number of NKF volunteers who will bring information and new ideas for programs and services
- Communication -- to increase communication between members and the NKF on both a local Affiliate and National level
- Awareness -- to provide members with information about local and national programs and services within the NKF and the Kidney Disease Community.
Patient and Family Council Executive Committee Members Merribeth Pentisuglia, Norma Knowles and Dorie S. Gully
Click here to learn more about our educational and supportive resources.
Can I Join the Patient and Family Council?
Membership is free and open to individuals with kidney disease, their families and friends, health care professionals and anyone who is interested in the fight against kidney disease and in Making Lives Better!
Meet the PFC Executive Committee.
