Coffee House Conversations^TM

Empowering educational information for people touched by chronic kidney disease, donation, and transplantation.

† Podcasts are audio files available to download for playback on your computer (speakers required) or any portable device that can play MP3 files like the iPod, Palm Treo, or Pocket PC. For more information visit our support page.

For Donor Families

Communicating and Connecting with Recipients (Or Not)

Writing to Transplant Recipients: A Simple Guide for Donor Families and Living Donors (PDF 225 Kb)

Writing to Donor Families and Living Donors: A Simple Guide for Organ or Tissue Transplant Recipients (PDF 198 Kb)

National Communication Guidelines Regarding Communication Among: Donor Families, Transplant Candidates/Recipients, Health Care Professionals

Coping with Grief and Loss After Donation(18 mb)

Sharing and Support for Donor Families
Quilt
Information and Resources

Be Your Own Best Advocate

END THE WAIT! Be an Advocate for Organ and Tissue Donation (10.9 mb)

Be A People Like Us Advocate for Organ and Tissue Donation (PDF 240 Kb)

Be Your Own Best Advocate (13.2 mb)

Be a "People Like Us" Advocate
Advocacy Fact Sheet for People with Chronic Kidney Disease (PDF 39 Kb)
Advocacy Fact Sheet for Donor Families (PDF 44Kb)
Advocacy Fact Sheet for Transplant Recipients & Candidates
Advocacy Fact Sheet for Living Donors & Potential Donors

*PDF files require Adobe Acrobat Reader

Dialysis

Conditions for Coverage for End Stage Renal Disease Facilities

Click here to view the Conditions for Coverage for End Stage Renal Disease Facilities in its entirety. (PDF* - 1.3 mb download)

Travel on Dialysis (13.68 mb)

Dining Out With Confidence
Travel Tips: A Guide for Kidney Patients
Travel With Peritoneal Dialysis

Family Focus Spring 2001 - Dialysis Around the World (PDF* download)

Conference Recording Information:
After downloading and saving the recording, leaders can distribute the file to participants.

Know Your Rights & Responsibilities (13.03 mb)

Coping Effectively A Guide and Their Families (11-10-0503) (PDF* download)
Dialysis Patients' Bill of Rights and Responsibilities (11-65-1639) (PDF* download)

Getting the Care You Need

Dialysis Lab Log (11-50-0224) (Call 800-622-9010 to request a free copy)
Hemodialysis: What You Need to Know (11-50-0214) (PDF* download)
Hemodialysis Access: What You Need to Know (11-50-0216)
Home Hemodialysis A Guide for Patients and their Families (11-10-0329) (PDF* download)
Managing Anemia When You Are on Dialysis (11-50-0217) (PDF* download)
Peritoneal Dialysis: What You Need to Know (11-50-0215) (PDF* download)
A "New Normal": Life on Dialysis--The First 90 Days (11-10-0307) (Call 800-622-9010 to request a free copy)

Your Safety on Dialysis Treatment: In-Center and at Home (12.9 mb)

Home Hemodialysis A Guide for Patients and Their Families (11-10-0329) (PDF* download)
Health Care Team
Planning for Emergencies A Guide for People with Chronic Kidney Disease (11-10-0807) (PDF* download)
What you Should know About Dialyzer Reuse A Guide for hemodialysis patients and their Families. (11-10-0335) (PDF* download)
What You Should Know About Infectious Diseases: A Guide for Hemodialysis Patients and Their Families. (Fact sheet online only)

What the New Rules Mean for You (11.7 mb)

Discuss your experiences and feelings on our Patient and Family Council message board

Transplantation

Nutrition and Fitness After Transplantation (13.8mb)
Affording and Taking Immunosuppressants and Other Medications
- 10.9mb

Transplantation: Living Well on Immunosuppressive Medicines - available hard copy only, call 800-622-9010 and ask the Information Specialist who answers the phone to send you a booklet, individual copies are free for patients and professionals
Adherence Coffee Talk
From Illness to Wellness: Life After Transplant
Transplant Chronicles

Living Well on Immunosupressive Medications

Nutrition and Transplantation
Taking Control: Money Matters For People With Chronic Kidney Disease

Living Well on Immunosuppressive Medications
- 48kb
Transplantation: Living Well on Immunosuppressive Medicines - available hard copy only, call 800-622-9010 and ask the Information Specialist who answers the phone to send you a booklet, individual copies are free for patients and professionals.

Reducing the Risk of Cancer After Transplantation
- Dr. E. Steve Woodle, biographical summary Download Audio - 1 mb
- Introduction to Cancer After Transplantation, NKF Research about What Patients Know, don't know and want to know about cancer; Steps to reduce risk, the role of immunosuppression (Dr. Woodle) Download Audio - 20 mb

Preparing for Disasters and Other Types of Emergencies: Information for Transplant Recipients