Professional Resources

RENAL RELATED RESOURCES

• The Nephron Information Center - Try virtual dialysis for basic patient and family education. Includes listing of US dialysis units.Includes information on nutrition issues.

• RENALWEB - News, useful information, new products, services, and educational resources for the dialysis industry.
• dialysisfinder.com - Resource to locate dialysis clinics across the USA for transient dialysis or transfer.
• Kidney Options - Information on living well with kidney disease.
• Kidney School - Kidney School is Life Options’ free, interactive, on-line kidney learning center in sixteen 30-minute modules. Topics range from treatment choices to nutrition to sexuality and fertility.
• Home Dialysis Central - One-stop source of information and support about PD and home hemo. Find a clinic that offers home treatments, talk to other professionals, download resources, and more.

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GOVERNMENT & RELATED SITES

• White House
• U.S.Senate
• U.S. House
• Thomas Legislative Site - Includes information on bills, postal & e-mail addresses for members of Congress.
• Centers for Medicare & Medicaid Services (CMS) - This has links to the ESRD program, Medicare and other CMS-related sites, SSA and legislative information.
• Medicare
• Social Security Administration
• Federal Register
• Forum of ESRD Networks
• USRDS (United States Renal Data System)
• National Institute of Diabetes, Digestive and Kidney Disorders
• MEDLINE - The world's most extensive collection of published medical information, coordinated by the National Library of Medicine.
• HEALTHFINDER - A gateway site to help consumers find health and human services information quickly.
• NIH Health Information Page - Provides a single access point to the consumer health information resources of the National Institutes of Health.
• HCMS Nursing Home Compare - Provides information about Medicare and Medicaid certified nursing homes across the country.
• CHID online - Combined Health Information Database from the National Institute of Health.
• Center for Disease Control and Prevention (CDC)
• Department of Health and Human Services
• Health Resources and Services Administration
• National Health Information Center
• Agency for Healthcare Research and Quality
• Occupational Safety and Health Administration

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REHABILITATION/DISABILITY RESOURCES

• Life Options Rehabilitation Program - Many links to renal organizations.
• National Rehabilitation Information Center

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PATIENT SUPPORT RESOURCES

• NKF Consitituent Councils Membership - NKF has four Constituent Councils that serve: patients and families (Patient & Family Council), transplant recipients and people awaiting transplant (transAction Council), living and potential living donors (Living Donor Council), and donor families (National Donor Family Council).
• American Association of Kidney Patients
• American Kidney Fund
• American Association of Kidney Patients
• DialysisEthics.org - This group's mission is to improve quality of care and ethical treatment of patients in the US.
• National Patient Air Transport Hotline for Transplant Patients: Refers callers to the most appropriate, cost-effective charitable, or commercial air service. Tel: (800) 296-1217
• NEPHKIDSE-mail-based Nephrology Discussion Groups for parents of children with renal disease.
• The Kidney Transplant Dialysis Association
• Medical Matrix
• DIALYSIS_Support - A Yahoo internet message board.

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TRANSPLANT RELATED SITES

• HelpHOPELive (formerly National Transplant Assistance Fund)
• TRIO
• UNOS - With links to other transplant organizations including transplant centers.
• NKF transAction Council
• TransWeb - Information and links related to transplantation
• Renalworld - information on all aspects of renal disease, including transplantation.
• Transplant Living - information and resources for transplant patients
• The Gift of a Lifetime - Photo-documentary journey about organ donation and transplantation
• National Living Donor Assistance Center

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RENAL PUBLICATIONS

• ESRD: Choosing a Treatment That's Right For You
• Hypertension Dialysis and Clinical Nephrology (HDCN): Renal Diseases Electronic Journal (articles on clinical nephrology and dialysis issues, published online).
• Dialysis & Transplantation
• NephrOnline - Website for the publication "Nephrology News and Issues"

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OTHER MEDICAL RESOURCES

• American Diabetes Association
• European Dialysis and Transplant Association
• Family Caregiver Alliance
• Internet Drug Index
• Choices.org - Contains information on advance directives in all 50 states
• Last Acts - Information regarding end-of-life issues
• PKD Foundation - Polycystic Kidney Disease Research Foundation website.
• Medical Alert Jewelry

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SOCIAL WORK LINKS

• NASW - Has a human services chat net.
• NASW Press - Details of products, services of NASW Press.
• CANSW - Canadian Association of Nephrology Social Workers
• Information For Practice - from New York University Ehrenkranz School of Social Work
• CEU4U - online continuing education courses for social workers
• Think Cultural Health - FREE on-line and/or DVD educational resource for cultural competency training in healthcare available to all health care providers
• KDQOL-Complete — Use, score and manage the KDQOL-36 to meet the Conditions for Coverage requirements and document compliance for CMS surveyors.

Back to CNSW Home Page

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DIETITIAN LINKS

• Academy of Nutrition and Dietetics (formerly American Dietetic Association)
• AND - Renal Dietitians Practice Group (RPG)
• Canadian Association of Nephrology Dietitans (formerly AND)

Back to CRN Home Page

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NURSE/TECHNICIAN LINKS

• Nephrology Nursing Certification Commission (NNCC)
• Board of Nephrology Examiners - Nursing - Technology (BONENT)
• National Nephrology Certification Organization (NNCO)
• American Nephrology Nurses Association (ANNA)
• American Academy of Nurse Practitioners (AANP)

Back to CNNT Home Page

ADVANCED PRACTITIONER LINKS

• American Nephrology Nurses Association (ANNA)
• American Academy of Nephrology Physician Assistants (AANPA)
• American Academy of Physician Assistants (AAPA)
• American Academy of Nurse Practitioners (AANP)
• American Nurses Association

Back to CAP Home Page

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RESOURCES FOR OTHER KIDNEY DISEASE PROFESSIONALS

• K/DOQI
• The NKF Newsroom
• NKF Office of Advocacy and Government Relations
• National Renal Administrators Association (NRAA)
• Renal Physicians Association (RPA)