Professional Resources
Renal Related Resources | Government Resources | Rehabilitation/Disability Resources | Patient Support Resources | Transplant Related Sites | Renal Publications | Other Medical Resources | Social Work Specific Sites | Dietitian-Specific Sites | Nurse/Technician-Specific Sites | Resources for Other Kidney Disease Professionals
RENAL RELATED RESOURCES
- The Nephron Information Center - Try virtual dialysis for basic patient and family education. Includes listing of US dialysis units.
Plus http://www.nephron.com/nutrition.html - RENALNET - Links to lots of renal-related sites.
- RENALWEB - News, useful information, new products, services, and educational resources for the dialysis industry.
- American Association of Kidney Patients
- National Patient Air Transport Hotline for Transplant Patients
- American Kidney Fund
- DialysisEthics.org - This group's mission is to improve quality of care and ethical treatment of patients in the US.
- NephroWorld - Virtual community and marketplace for all things related to nephrology.
- Dialysis Online! - an open web forum for renal patients and professionals.
- dialysisfinder.com - Resource to locate dialysis clinics across the USA for transient dialysis or transfer.
- Health Information Library - Distributors of Kidney Series Patient Education publications, including the Nephrology Resource Directory.
- Kidney Options - Information on living well with kidney disease.
- Kidney School - Kidney School is Life Options free, interactive, on-line kidney learning center in 16 30-minute modules. Topics range from treatment choices to nutrition to sexuality and fertility.
- Home Dialysis Central - One-stop source of information and support about PD and home hemo. Find a clinic that offers home treatments, talk to other professionals, download resources, and more.
GOVERNMENT & RELATED SITES
- White House
- U.S.Senate
- U.S. House
- Thomas Legislative Site - Includes information on bills, postal & e-mail addresses for members of Congress.
- Centers for Medicare & Medicaid Services (CMS) - This has links to the ESRD program, Medicare and other CMS-related sites, SSA and legislative information.
- Medicare
- Social Security Administration
- Federal Register
- Forum of ESRD Networks - This page has links to all networks; for further information, contact forum@richmond.infi.net.)
- USRDS (United States Renal Data System)
- National Institute of Diabetes, Digestive and Kidney Disorders
- MEDLINE - The world's most extensive collection of published medical information, coordinated by the National Library of Medicine.
- HEALTHFINDER - A gateway site to help consumers find health and human services information quickly.
- NIH Health Information Page - Provides a single access point to the consumer health information resources of the National Institutes of Health.
- HCMS Nursing Home Compare - Provides information about Medicare and Medicaid certified nursing homes across the country.
- Policy Information Exchange Online Website - Has links to many health/mental health websites.
- CHID online - Combined Health Information Database from the National Institute of Health.
REHABILITATION/DISABILITY RESOURCES
- Handicapped Resource Association
- Life Options Rehabilitation Program - Many links to renal organizations.
- National Rehabilitation Information Center
PATIENT SUPPORT RESOURCES
- American Association of Kidney Patients - Information about AAKP and its chapters, links to Forum of ESRD Networks. Visit the Renal Link Mall. The Boulevard Mall has disability resources and a patient chat room.
- transAction Council
- RenalNet - Online discussion forums for professionals and patients.
- Nephrology E-mail-based Discussion Groups for Patients and Patient's Families:
- IgAn (mailman@mailman.srv.ualberta.ca) IgA Nephropathy.
- NEPHKIDS (mailman@mailman.srv.ualberta.ca) For parents of children with renal disease.
To subscribe send e-mail to the address in brackets with one or more of the following commands on separate lines:
subscribe igan
subscribe nephkids - DIALYSIS_SUPPORT
To subscribe go to the above link and click "Join This Group" or send an e-mail to: dialysis_support-subscribe@yahoogroups.com
- The Kidney Transplant Dialysis Association
- TravAble Travel for the Disabled - bit.listserv.travel-1
- Medical Matrix
- DIALYSIS_Support - A Yahoo internet message board.
TRANSPLANT RELATED SITES
- National Transplant Assistance Fund
- TRIO
- UNOS - With links to other transplant organizations including transplant centers.
- NKF transAction Council
- TransWeb - Information and links related to transplantation
- Renalworld - information on all aspects of renal disease, including transplantation.
- Transplant Health - information and resources for transplant patients
- The Gift of a Lifetime - Photo-documentary journey about organ donation and transplantation
- National Living Donor Assistance Center
RENAL PUBLICATIONS
- ESRD - Choosing a Treatment That's Right For You
- Hypertension Dialysis and Clinical Nephrology (HDCN): Renal Diseases Electronic Journal (Articles on clinical nephrology and dialysis issues, published online.
- Lifetimes
- Transplant Chronicles
- ENEPH.com - Website for the journal "Dialysis and Transplantation"
- NephrOnline - Website for the publication "Nephrology News and Issues"
OTHER MEDICAL RESOURCES
- American Diabetes Association
- European Dialysis and Transplant Association
- Family Caregiver Alliance
- Impotence Resource Center (Geddings Osbon Sr. Foundation)
- Internet Drug Index
- Choices.org - Contains information on advanced directives in all 50 states
- Book Retailer: Search "chronic renal failure" for listing at www.Amazon.com
- Dialysis Cruises and Tours
- Last Acts - Information regarding end-of-life issues
- PKD Foundation - Polycystic Kidney Disease Research Foundation website.
- American Diabetes Association
- Rx List - Medication information
SOCIAL WORK LINKS
- NASW - Has a human services chat net.
- NASW Press - Details of products, services of NASW Press.
- New York University Ehrenkranz School of Social Work
- Computer Users in the Social Services Network
- CEU4U - online continuing education courses for social workers
- CANSW - Canadian Association of Nephrology Social Workers
- Think Cultural Health - FREE on-line and/or DVD educational resource for cultural competency training in healthcare available to all health care providers
DIETITIAN LINKS
- American Dietetic Association - ADA
- Cardiovascular Disease Task Force-Executive Summary
- Canadian Association of Nephrology Dietitans (formerly AND)
NURSE/TECHNICIAN LINKS
- Nephrology Nursing Certification Commission (NNCC)
- Board of Nephrology Examiners - Nursing - Technology (BONENT)
- National Nephrology Certification Organization (NNCO)
