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Living Donation Resources

Coalition on Donation: Living Donor Information
A not-for-profit alliance of national organizations and local coalitions that educate the public about organ and tissue donation, correct misconceptions about donation and create a greater willingness to donate.

Organ Procurement and Transplantation Network (OPTN): About Living Donation
Information about living donation from the unified transplant network established by the United States Congress (National Organ Transplant Act of 1984).

Scientific Registry of Transplant Recipients (SRTR)
The SRTR supports the ongoing evaluation of the scientific and clinical status of solid organ transplantation in the United States. It is administered by the University Renal Research and Education Association (URREA) with the University of Michigan. This is a good resource for data and references on donation and transplantation in the U.S.

National Transplant Assistance Fund (NTAF)
The NTAF is a not-for-profit resource that helps raise funds for transplant recipients and living donors. NTAF provides fundraising ideas and guidance for patients raising money for uninsured medically related expenses.

National Kidney Foundation Information and Councils

A to Z Guide
National Kidney Foundation's comprehensive guide to kidney disease and related conditions.

NKF Affiliates
Looking for local information? Find addresses, websites, news and events for your NKF affiliate office.

People Like Us
"People Like Us" members learn to effectively communicate their personal stories and to participate in activities related to the public policy initiatives the Foundation addresses.

Patient and Family Council
Founded in 1995, the National Kidney Foundation's Patient and Family Council is dedicated to issues affecting individuals with kidney disease and their families.

transAction Council
Established in 1996, the National Kidney Foundation's transAction Council is committed to meeting the unique needs and concerns of individuals with all types of organ transplants.

NKF of Georgia's Living Donor Program
A professional and community outreach program dedicated to increasing the number of living donors through education, advocacy and support.

Questions Children Ask: Helping Children Adjust When a Parent Has Kidney Failure

Writing to Donor Families and Living Donors: A Simple Guide for Organ or Tissue Transplant Recipients (PDF 198kb)

Writing to Transplant Recipients: A Simple Guide for Donor Families and Living Donors (PDF - 225kb)

Transplantation Information

Division of Transplantation
Government organization that provides Federal oversight and funding support for the nation's organ procurement, allocation, and transplantation system; coordinates national organ and tissue donation activities and funds research to learn more about what works to increase donation; administers the national bone marrow registry program.

Transweb
Information about transplantation and donation including pictures, stories, and audio clips of the NKF's US Transplant Games and Donor Recognition Ceremony.

American Society of Transplantation
Transplant professionals dedicated to research, education, advocacy and patient care in transplantation science and medicine.

North American Transplant Coordinators Organization (NATCO)
Professional society of more than 1,750 transplant coordinators representing the largest group of transplant professionals in North America.

Transplant Living
The Transplant Living Web site offers an easy-to-navigate collection of information and resources that help transplant patients and their families make the best possible decisions about their treatment and future health.

Organ, Tissue and Eye Donation Information

United Network for Organ Sharing
The United Network for Organ Sharing (UNOS) is a non-profit organization that operates the Organ Procurement and Transplantation Network and maintains a national system to assure equal access for all patients needing organs for transplantation.

The Living Bank
The oldest and largest organ donor education organization in the United States, and the only national organ donor registry that keeps computerized records of organ donor data for future retrieval in an emergency.

Association of Organ Procurement Organizations (AOPO)
Private, nonprofit organization recognized as a national representative of organ procurement organizations (OPOs).

American Association of Tissue Banks (AATB)
Facilitates the provision of high quality transplantable human tissue in quantities sufficient to meet national needs.

Eye Bank Association of America (EBAA)
Dedicated to the restoration of sight through the promotion and advancement of eye banking.

National Marrow Donor Program
The National Marrow Donor Program aims to establish, maintain and improve a system that provides bone marrow transplants from volunteer unrelated donors for patients with leukemia and other life threatening blood diseases.

Related Health Organizations

American Liver Foundation
National voluntary organization dedicated to preventing, treating, and curing hepatitis and other liver and gallbladder diseases through research and education.

American Lung Association
Health organization that fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.

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