Pen Pals
"I donated a kidney to my wife and I would like to talk to someone who donated to a spouse." "My sister is donating part of her liver to her daughter and I am very worried. Can I talk to someone about this?" "I am thinking about donating a kidney to my dad. I wish I could talk to another donor." Often, the best way to find the answers and support we need is to talk to families that understand what we are feeling - families that have been in situations like ours. The Living Donor Network allows living donors and family members to correspond by posting and responding to ads online.
We encourage you to post an ad or reply to a letter here. You can reply to as many people as you wish - just be sure to include the ad number with each reply, as indicated on the response form.
To submit an ad: Complete the submission form with your letter, name and e-mail address. We will post the letter anonymously online by using a number instead of your name. Any initial responses to your ad will come directly to the NKF to ensure your privacy. We will then forward the responses to you and you can decide whether to contact and continue correspondence with each person directly.
To respond to an ad: Complete the submission form with your name, e-mail address and letter. We will forward your response, along with your name and e-mail address, to the ad number that you requested (responses are not posted online). Please note that responding to an ad is not anonymous - you must provide your name and e-mail address so that the person can contact you.
| Ad 367 |
| Posted on May 14, 2008 |
| I recently matched to donate a kidney to a friend of mine. I'm 21 years old, female, and in pretty good health. I feel like this is exactly what should be happening, but I'm still kind of nervous. I just want to make sure I know everything I can before everything happens. |
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| Ad 366 |
| Posted on April 9, 2008 |
| My 18 year old son suffered total renal failure this past January...he's about to be put on a list for a donor.
This entire kidney transplant proccess is new 2 me, and would really appreciate chatting with someone around my sons age, that is going threw the same, as he and I have a difficult time talking about it.
Thank You & God Bless |
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| Ad 365 |
| Posted on April 7, 2008 |
| My 18 year old son suffered total renal failure this past January...he's about to be put on a list for a donor.
This entire kidney transplant proccess is new 2 me, and would really appreciate chatting with someone around my sons age, that is going threw the same, as he and I have a difficult time talking about it.
Thank You & God Bless |
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| Ad 364 |
| Posted on March 25, 2008 |
| In October of 2007 I donated a kidney to someone I had never met. I'm 42 years old, married, and the father of three teenagers (if I can survive teenagers I can survive anything!). Nearly six months post op I've had no complications and have resumed my very physically active life style. I'm happy to answer any questions from others who are thinking of donating a kidney. |
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| Ad 363 |
| Posted on March 25, 2008 |
| Hello everyone. I am a 37 year old female located in Oklahoma. I have recently been tested to see if I can be a ld for my husband's aunt. This will be her second transplant. Her kidney that she has now is a little over 18 years old. We just found out that we match. I am wondering what the next step is. They didn't give her much information when they called. Her last kidney was not a living donor so this is a first for her also. Now that we match, what will happen? And I want to know about recovery. My family is beginning to freak out, they do not want me to do it. They are worried about the risks to me. Somehow they have in in their minds that I am more at risk than to recipient. I am not sure where they got that information. Anyone have info about this that I can share with them? Anyway, any info that you have will be helpful. Thanks in advance. Janie |
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| Ad 362 |
| Posted on February 27, 2008 |
| My brother(66) has is in dialysis due to Wegner's and has talked to me(55) about donating a kidney. I have an active job as a middle school teacher and my youngest is in high school. I have been avoiding talking about with him because I am worried about long term effects and possibly losing insurance. Also my brother does not have a good track record with following doctor's orders. I would love to hear from someone with experience. Will this interfere with enjoyment of retirement years? |
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| Ad 361 |
| Posted on January 9, 2008 |
| My son died by drowning in the bathtub when he was 14 months old. This happened in February of 1991. December 30th he would have been 17 years old. Although I have had many years to deal with this tragedy, I have always wondered one thing. How are the people that received his organs doing today. I received a letter shortly after his death with an update on the people that received the organs and how it affected their lives. I was told I would eventually receive another letter but never did. Does anyone know how to go about finding this information? I know that often now days the families of the organ recipients are open to communicating with the donor families. Is there a forum for this? |
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| Ad 360 |
| Posted on January 9, 2008 |
| I am a 24 year female who recently donated my kidney to my uncle in November. I believe this experiance has changed the rest of my life. It has taught me to not take my family for granted. Even though I am having minor complications, I would do it all over again if I could. |
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| Ad 359 |
| Posted on January 2, 2008 |
| My husband donated his kidney to his sister last month. He had no relationship with here prior to the surgery and circumstances surrounding the surgery made it very difficult for me. The surgery took place out of state and I was not there, I was not involved in any of the process by my husbands family. I had concerns prior to the surgery about what a great risk he was taking when we have two small children. Since the transplant we have seen no signs of gratitude from his sister or family. We are struggling financially and each day is difficult he is in pain. This seems like such a bad experience and it was one I never wanted to go through. He knew my feelings and had the surgery anyway Each day my mind is filled with thoughts of betrayal and I can't seem to shake it off. I love him so much but our marriage seems like it is falling apart and I don't know what to do. I can't find any support groups, any books. Everyone I have talked to had a great experience and is glad they donated, as is he. I just feel all alone and that no one understands how I feel. His sister is doing fine and living a normal life yet we never here from her. And our life has become very difficult, he can't help me with our children or any houswework. I am working as much as I can to pay our bills. Everyhting is falling on me when I didn't even want this to happen. His sister has been ungrateful and has no idea what we are going through. It was alomst as if his gift was expected. |
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| Ad 358 |
| Posted on December 20, 2007 |
| I donated a kidney to my brother three years ago, and would be happy to discuss my experience with people who are thinking of donating. |
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| Ad 357 |
| Posted on December 20, 2007 |
| I WOULD LIKE TO TALK TO ANY ONE WHO IS OR ALREADY HAS DONATED A KIDNEY.I GAVE MY HUSBAND ONE AFTER 5 YEARS OF DYALISS.WE WENT TO UMD IN 8/05 AND ITS BEEN SO WONDERFUL TO SEE THE STUFF I HAD NEVER SEE HIM DO.I HAVE TO KIDS 13 AND 9 THAT WAS A CRAZY TIME I THOUGHT THERS NO WAY I COULD DO THIS I WAS SOOOOO SCARED TO BE SO YUNG AND LIVE LIKE WE DID BAXTER BOXES UP STARES DOWN,I THANK GOD EVERY DAY TO LOOK AND THINK I REALY WAS PUT HEAR FOR THIS REASON AND I WOULD IT 5 TIMES OVER EVERYTHING WAS SO WONDERFUL LIKE SOMTHING HAD TO GO WRONG BUT NO THINGS WENT SO GREAT I WENT HOME TOOK CARE OF MY KIDS (WE WERE GONE ALMOST2 MONTHS IT TOOK US 2YRS TO GET THERE)AND HE WENT BACK TO WORK AND MADE IT SO WORTH WILD TO SEE SOMEONE JUST SO LOST IN WHAT WOULD MAKE THINGS SO WRONG IN LIFE TO WHAT DID I DO TO MAKE IT SO GREAT.DONT EVER DOUGHT IT ITS NOT THAT PAINFUL AND SOOO WORTH IT. |
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| Ad 356 |
| Posted on November 26, 2007 |
| My Name is Joel klompas and I reside in South Africa Johannesburg.I was diagnosed in 1992 with a rare kidney disease and my kidneys failed in 1997.I underwent my first transplant which was hyper acute rejection. I underwent another transplant on my birthday six November 1999. It was very very successful from a cadarva.I was on large amounts of immunosuppressants and today it is eight years later. My kdiney is working like a dream and things are good. I feel very well and my urea and creatinin are normal.I am just so grateful to my donor and the family of the donor for giving me a gift of life.That person is my angel and will always be my true angel. |
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| Ad 355 |
| Posted on November 26, 2007 |
| I am 29 years old and my father just recently had to start kidney dialysis. My mom recently found out she is not able to be the donor due to a history of high blood pressure. I was cleared from my doctor to pursue testing to find out if I am a match, but my dad is not in favor of it. Since I am not yet married and do want to have kids he thinks me giving a kidney now with prevent me from having children or will cause complications. Is this true? I can not seem to find a lot of information on this online. Would love any information or personal experiences in this area. Thanks so much! |
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| Ad 354 |
| Posted on November 26, 2007 |
| good morning -afternoon
I have had three kidney transplants since I was four years old. On March 16 of 2008 I will be celebrating my 25 years of my kidney transplant. What keeps me going in life is faith and belivieing in angels and God. And never give up. There is no such thing in giving up. Why because life is like a flower or river. Worst thing I do not like is taking all those meds. that is sad thing. |
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| Ad 353 |
| Posted on November 19, 2007 |
| Looking for donor family.
I am posting this to help my friend Karen in her search:
"Hi all: I never got the chance to meet my donor family. Back in 1972, everything was confidential and then when I did try in 2004, all records are destroyed after 15 years. Back then, donor families lived within city limits. I had several people trying to find them as well as myself leaving messages on donor sites. But the door kept closing. I have written a poem in honor of all you Heros and Angels out there who gave the gift of life and living. My first transplant over 34 years ago was at UC Medical Center San Francisco 11/6/72. I was 16 at the time and all that they told me was my donor was younger than me killed in a vehicle accident. So, if anyone out there knows of a family that lived in the San Francisco Bay Area that lost a child in a car accident early November 1972 and the family selflessly gave their son organs to help others to live, love and laugh once again, please let me know weddick@COMCAST.NET. Now on to your poem and I thank you all and love you all with all of my kidney." *In Honor of My Donor Family* I received a gift back in ’72 It came from someone I never knew. It came with no card, ribbon or bows But sent to me that’s all I know. It didn’t arrive in a box or sack And is a gift one would never send back. The gift in size is rather small Compared to its power to conquer all. You’ll never hold this gift in your hand It’s given to people throughout the land... This beautiful gift has set me free What a precious gift and given to me. This gift was given out of selfless love And delivered to me with help from above. These gifts are so priceless, valuable and few When you know of this gift, you will agree too. With this gift I can hold my head high To dream the impossible and reach for the sky. This gift has taught me to scream and shout Now let me tell you what this gift is about. This gift will not be taken in strife The gift I speak of is that of life. The gift of life handed me a key It opened doors and set me free. Organs aren’t needed at your final destination Leave them on Earth without hesitation. Every human will someday be called to come home Your organs may stay and continue to roam. No need for organs in the heavens above Leave them on Earth for others to live & love. Now that all has been said and done Please donate your organs and give life to one. Let’s spread the news let’s scream and shout Organ donation is what it’s all about! |
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| Ad 352 |
| Posted on October 18, 2007 |
| I donated a kidney to my brother on 5/12/03 and can say it is one of the best things I have ever done. To see his health improve so fast once he had a functioning kidney was amazing. The surgery and recovery is tuff on the donor, but worth it. If you are considering donating and need someone to talk to or ask questions, feel free to contact me. |
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| Ad 351 |
| Posted on October 10, 2007 |
| My brother needs a kidney transplant.My mum is 69 and is determined to go ahead with it. She is 6\3 compatable and I am 6\6. I have 2 other brothers who are 6\5 and 6\4. I want to do it but I've just started a years couse and financially can't back out it. I want to do it, and feel bad asking my brothers who are more financially secure, especially if I am the best match. I know money shouldn't come into it, but I have kids and a mortgage to pay. Not sure what to do? |
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| Ad 350 |
| Posted on October 9, 2007 |
| Hi. Ilost the most wonderful husband on 3/6/05 of a sudden heartattack. Hi name was dennis.Dennis would go out of his way to help anyone. We have three wonderful boys who dennis worshiped.Life has been really hard for me since i lost Dennis. He was my best friend and we were never appart for the 20 years we had. i am so lost without him and the only thing that helps me to keep going is knowing that he was able to help others with his donation. i still havent recieved any letters from the recipients but pray that i will. i miss dennis so much and my life will never be the same. My only hope is that i will here from somebody and be able to let them know what an amazing and giving man he was. cathy |
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| Ad 349 |
| Posted on October 1, 2007 |
| My sister had renal failure in oct 05. She's in her 30's. Since then she has been on dialysis. I have not slept a full night since. (Afriad of getting a call that she's gone)I would like to give her my kidney but the expense is tremendous. does anyone know if there is a voluntary organisation that does these transplant for free? I am worried sick that we're sitting by and just watching her demise because of lack of funds. thanks in advance. |
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| Ad 348 |
| Posted on September 24, 2007 |
| Greetings ALL patients... I am SICK and TIERD of being SICK and TIERD~ can anyone relate? I have been on and off dialysis since 1987-- I need laugh! anyone heard any good ones lately? Lets be friends- life is getting OLD to me and I am only 44~ looking forward to hearing from YOU! all my best. |
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| Ad 347 |
| Posted on September 20, 2007 |
| My 41 year old has End Stage Renal Failure and was jost told that he has to get the gland taken out of his neck because they are making his renal failure worse. His doctor called today and stated that he has to have surgery in a week because his health is descending. Have anyone had such a procedure down? Does anyone know the organization that was on the nightly news, that is helping patients in need of a kidney? |
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| Ad 346 |
| Posted on September 20, 2007 |
| Hello, My husband suffers from a rare kidney disease called Alports Syndrome. It affects the kidney's, hearing, and vision. He has been on dialysis for 8 months now and constantly going into congestive heart failure. His hearing is completely gone and almost all of his vision as well. We have recently brought Hospice into the home to try and make things a little easier. Unfortunately I am not a match and nor do we have the ten percent to put up to get on the transplant list. We have four small children, and I guess what I am wondering is if I volunteer to donate a kidney to someone, would it make it easier to get one for my husband before it's too late? Any information or advice would be greatly appreciated. Thank you and God Bless |
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| Ad 345 |
| Posted on August 28, 2007 |
| I have to make a decision if I'm going to donate my kidney to my nephew. Please can some tell me who had donate a kidney. Is his/her quality of life the same. And what if you develope an illness later - putting a lot of stress on you one kidney? |
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| Ad 344 |
| Posted on August 23, 2007 |
| i have three kidney transplant since i was four yr old .but march 16 1983 i have my 3rd kidney transplant next march of 2008 i will have my transplant for 25 yr's and still going strong i am enjoying life like playing golf biking and working you may send me a e-mail if you would like/sure would be cool fine pen pal |
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| Ad 343 |
| Posted on August 23, 2007 |
| I just got word that I am going to be the donor for my bother in law, we are going to do the transplant in Sept. I am so happy and excited that I will be able to help him and he will be able to get off dialysis. It is going to be a miracle. |
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| Ad 342 |
| Posted on August 23, 2007 |
| To all other doner families: I was shocked on june 2nd, 2004 when I recieved a note on my front door when I returned home from shopping. The note reas please contact Daytona Beach ploice dept as soon as possible. all sorts of things were going through my mind, but never once would I have guessed that my son John would have attempted suicide by shooting himself in the head. But I was told to go to the hospital emergency room right away. I cant say how I got there in one piece, but I did & was told that my son was in surgery & the doctor would talk with me as soon as he could. So still not knowing much,I was directed to a waiting room, where I found my sons girlfriend & a couple of her family members. When I asked her what was going on, she told me that John had shot himself in the head, & that she called 911 & they came right away & now he was in surgery. I had a ton of questions, but was frozen & could not think clearly, all I wanted was to see my baby ( I always called him my baby, even though he was 23 years old.)
The next 3 or four hours were a blurr, but all sorts of things were going through my mind. Finally the surgeon came & took me to a small room, where he explained that my son had severe brain damage, & he had done all he could do & that we would have to wait & see how things developed, & the next few hours were the most important. I was allowed to see him, when I got to the recovery room where they had my son, I lost it & just could not believe what I was seeing, what had caused him to do this, was it something I should of seen coming, or why, why, why. I still 3 years later do not have any answers as to why. I will live the rest of my life trying to figure out why. I sit & cry, think of all the good times we shared, & miss him so much. I decided right away, that if I could not have my son anymore, that some good should come out of all this, & contacted Translife, through the hospital & was very glad to have someone there who could answer all my questions, & help me with the decision to give life to others through my loss. I have recieved 2 letters from one of the kidney recipients & am so very happy that she is living a healthier life.
I just wanted to say that I was blessed to have 23 wonderful years with my son, now he lives through all the recipients. |
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| Ad 341 |
| Posted on August 23, 2007 |
| I was almost into te operating room yesterday 8/9/07 to donate a kidney to my father. The anasthesiologist basically stopped the procedure because she had a question about a medication that I had been taking since November 2006. I had fully disclosed my entire medical history and ALL of the medication that I am presently taking. The anasthesiologist who cleared me on Monday 8/6/07 said nothing to me about the medication. I have had so many issues with the donor coordinator and people not doing their job that when this happened I lost all faith in the doctors. There has been a total lack of communication between the staff and my family that now we will have to go to another hospital and start the process over. I feel so let down-I was under the impression that organ donation would have been handled differently-the people involved a little kinder. The support system at the hospital is sub-par at best. When I addressed the head surgeon about the issues with some of his staff members his response was that we can't live in the past and my view of things were not as he understood them. I felt like my complaints and feelings are being ignored. Has anyone experienced moving to another hospital after all of the testing has been completed? |
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| Ad 340 |
| Posted on August 23, 2007 |
| Hi I;m 21 years old and just lost my mom in April. She donated everything she could. I just am having a hard time missing her and wanted to know if there is anyone that could talk to me and help with this tragic time. Thank you. |
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| Ad 339 |
| Posted on August 21, 2007 |
| Hi, I was diagnosed with chronic kidney disease about a year ago. I have not started dialysis yet, but will in the next few months. I am interested in communicating with other people who have chronic kidney disease and becoming friends. If you are interested, please send me a message... |
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| Ad 336 |
| Posted on June 19, 2007 |
| I'm a donor mom - we lost our precious son Jimmy in October of 2002 to pneumonia. Jimmy was a special boy in so many ways, it helped us to find out that his corneas went to NYC and Las Vegas, and his heart valves went to a 10-day-old boy in California. I know this is a long shot, but I'd love to talk to any or all of those people who received Jimmy's gifts. I'd also be interested in talking with parents whose children have received transplants, to share our perspectives. Thanks for reading and sharing. |
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| Ad 335 |
| Posted on June 19, 2007 |
| My sister and I are going on our 7th anniversary of the kidney transplant. It was a GREAT experience seeing my sister almost immediatly look so much better after the transplant. We have both led very normal lives since then and if ANYONE is considerring giving a loved one or anyone a kidney and are feeling a bit nervous, please feel free to contact me. We are both in our mid to late 40's and everytime I see my sister I literally gave thanks to the man above for allowing me to give my sister the gift of life. I Love my sister very much and I feel so blessed to have been able to be there for her. God Bless you you even considerring giving someone a kidney. |
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| Ad 334 |
| Posted on June 19, 2007 |
| Hello; My name is Marie, I lost my mother to an aneurysm May 1,1999. I was told she was brain dead. Still don't quit understand everything about brain death. But have been explained some about it. She was 65. She donated her corneas,and liver. I've been told that a doctor in New York recieved the liver and was doing fine. And the corneas went to two different women. Both are also doing fine the last time I was informed. But I would love to hear from the recipients if posible and see how they are. I also lost my husband of 35 years very suddenly and unexpectly. One morning he went to work and the same morning a couple of hours later I was getting a call that he was being rushed to the hospital due to passing out and not being able to revive him. It took an hour and forty-five minutes to bring him back. Then he stayed in acoma. Pasted away three days later. He donated his tissues. Anyone interested in corresponding I would like that very much. I've found having friends is very helpful. Also to write in a journal as though you are writing to the loved one you lost. Marie |
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| Ad 333 |
| Posted on May 25, 2007 |
| Hi My son Anthony was struck by a car in Arizona on Jan 21 2006, we had to take him off of life support on Jan 25th. So far we know that he has saved 5 people lives with his "gift of life". I am looking to chat with other people who are going thru the same thing. Not a da goes by when I dont think of him and some days the pain is unbearable. |
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| Ad 332 |
| Posted on May 25, 2007 |
| I began the living donor process two months ago. I desperately wanted to give my mother who had just recently gone on dialysisi a kidney so she would never have to go through another session of dialysis. In the last two weeks I have gone through several thousand dollars worth of testing. Our surgery was scheduled for May 25th and we just recieved a call on May 18th telling us we were not a match. The news was extrememly devestating for myself and even more so for my mother. We really had our hearts set on the donation just to have things taken right out from underneath us. I can not for the life of me understand why I went through all of the testing before they did the crossmatch. In the back of my mind they should have had the results of the crossmatch before they scheduled the surgery and had eveyone so emotionally involved. I can honestly say I have never been so devestated in my whole life. I pray every day and night that something will happen and we will get some answers to why things were done the way they were. I am realizing that is not going to happen. Now I would like to focus my attention on finding a kidney for my mother. My father called me and told me there was a segement on Good Morning America yesterday regarding living kidney donations. I was not able to see that clip, but I have found this site in the meantime. My father was the wrong blood type and my B38 antibodies were reacting with hers. This has been the most devasting experience for all of us. Where do we go from here? |
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| Ad 331 |
| Posted on October 23, 2007 |
| hello im melissa my brother was a organ donor in oct.1996 he was in a fatal car accident i guess i didnt have time to grieve 6 months later my oldest brother was in an accident also he was left paralized he lived for 4 years before we lost him also. i just wish to help someone else i know the lonely nights and guilt i still feel from time to time. it would just be nice to have someone to share and talk to someone who has been though it also |
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| Ad 330 |
| Posted on October 23, 2007 |
| I AM A 49 YEAR OLD DISABLED WOMAN WHO FOUND OUT ALMOST 3 WEEKS AGO THAT I HAVE TYPE 2 DIABETES.I WOULD LIKE EMAIL FRIENDS THAT HAVE TYPE 2 DIABETES. |
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| Ad 329 |
| Posted on May 10, 2007 |
| My husband is thinking of donating a kidney to a friend. I'm worried. What if he has a health problem in the future? Will he be able to get life insurance in the future with just one kidney? What is the recovery time for someone who donates?
Can anyone help? |
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| Ad 328 |
| Posted on May 2, 2007 |
| My 20 year old daughter needs a kideny transplant and I want to donate. I'd like to have someone to talk to that has gone through this. |
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| Ad 327 |
| Posted on April 10, 2007 |
| My daughter was diagnosed with renal failure and hypertension in November 2006. She is 21. She has not been under doctor care consistently since January 2007. When she last had blood work done, her kidneys were functioning at 27%, lately she has been bruising very easily and her legs are swelling. I'm certian her kidneys are worse. She has no medical insurance. Does anyone have any information on how to find agencies or organizations that could help her with medical costs? |
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| Ad 326 |
| Posted on April 3, 2007 |
| Hello, My son Jason was declared "Brain Dead" on his 19th birthday, April 6, 1999, in a Dallas, Texas hospital. We lived in a suburb of Dallas and he hit a cow in the road on his way to work April 2, 1999 (Good Friday). It was dark and extremely foggy this day and he simply did not see it. My heart was shattered. It has truly been a hard (soon to be 8 years). Anniversaries are always hard and twice as hard with it also being his birthday. Jason had told me when he renewed his driver's license at 18 that should anything happened to put him in this situation that he wanted to be a donor. One year later I honored his request. In the beginning I wrote a few letters to his recipients, but never received a response. So, I stopped writing. I thought how cold, but then later came to realize just how does someone say "thank you" knowing that the new life Jason gave brought me my greatest pain. Also, I am told the recipient families were discouraged from communicating with us by the Transplant Alliance. But April 7, 1999 (the date of organ harvest) is a day that we will each mark every year, you in joy and I in sorrow. I just want to wish you well and know that you are doing okay. The only information that I have is that some that had been on dialysis received his kidney and pancreas and this cured them of diabetes and from being on dialysis, someone else received his other kidney, and someone received his liver. I do know the person that received the liver lived only a city over from where we live and that he has since passed away. I was told the medicines the he took awaiting the transplant had taken a toll. However, after receiving Jason's liver he was able to live a year longer. I like to think of it as he had that extra year to do something important that otherwise would not of been able to do had it not been for Jason's gift. We were unable to donate Jason's heart. The medications the hospital had him on to keep him alive had enlarged his heart. We also donated bone and tissue. I am pleased that part of Jason is able to live on when he couldn't. I still have hope of meeting his recipients someday soon. God Bless. |
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| Ad 325 |
| Posted on April 3, 2007 |
| I recently found out that my brother needs a kidney. My brother and I are not close and my husband thinks I should not even consider being a donor for him if I were a match. I have so many questions and concerns about the whole thing but don't want to cause added stress for my parents or brother right now. I don't have health insurance so would the costs of the surgery and recovery be covered by my brother's insurance? How risky is the surgery for the donor...I have heard it is harder on the donor than the recipient. Has anyone ever been a match but not been able to go through with being a donor to a relative? |
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| Ad 324 |
| Posted on March 21, 2007 |
| I am 40 yo and am donating a kidney to my sister next month at Columbia/NY Pres. Hospital. I am curious to hear form others that have gone through this. As the surgery approaches my nerves are getting alittle anxious. I am in the medical field and understand the surgery extensively,however nothing takes the place of hearing from others who have been through this before us.Thank you. |
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| Ad 323 |
| Posted on March 21, 2007 |
| I am a 33 year old mother of 5 who will be having a failing kidney removerd on 3/15/2007. I must admit I am completely terrified and am looking for words of "something". I have had stones for the last 3 years, the last 2 larger than golf balls and still intacted. Should I be this scared??? |
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| Ad 322 |
| Posted on March 21, 2007 |
| My father, with chronic renal failure,complicated by diabetes and hypertension, is awaiting a kidney transplant deu to chronic rnal failure.The cost of the operation transpotr and the drugs is a severe burden to my level of economy.Of the thousands of kind-hearted people who have had the experience of the mental agony of having had such an operation or having had such a relative to attend on;I humbly request to mail me only if you could find the slightest way of helping me.God bless you!. |
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| Ad 321 |
| Posted on March 21, 2007 |
| I lost my sister to a brain anyerism in May of 2005. Almost two years now and it still feels like yesterday. We donated everything we could she was a very giving person. I have heard back from one of the recipients and I am gratefull for that. I still have a really hard time with her death. Anyone who has lost a loved one to an aneurisym (can I slaughter the word any more)and or brain death and wants to talk I could use someone to talk to that has some common grief. Thanks |
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| Ad 320 |
| Posted on March 1, 2007 |
| my beatiful wife went thru stage 4 cancer five years ago , her five year remission period is coming up in may . however she recieved the highest possible doses of radiation and chemotherapie, it has led to a failing liver , is there anyone who can tell us what direction we should take from here . we were told she cannot be a candidate for a transplant because of the cancer treatments , please help us |
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| Ad 319 |
| Posted on February 21, 2007 |
| i am 49 years old my husband gave a kidney five years ago, we both are doing great. we have been married almost 32 years, it was the greatest gift that he could of ever gave me, we had three wonderful sons together. my 22 year old son pass away with cancer 8 years ago , god has been so good to me , sometimes we dont understand but he knows every thing . debbie thomas |
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| Ad 318 |
| Posted on February 20, 2007 |
| I am 36 years old and is about to get tested for match for my cousin who is in need of kidney. My parents live in out of country and when I told them, they are very angry that I made this decision. They are worried that it is too much for me. But my cousin needs a kidney badly. Any similar situation? |
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| Ad 317 |
| Posted on February 1, 2007 |
| MATTHEW WAS BORN JULY 31,1986.HE WEIGHED 7 pounds and 1 ounce and was 21 inches long.the day he was born was the happiest days of my life.He was a beautiful baby boy.At the age of five months, he started to crawl and at seven months was pulling up on furniture to stand. Matthews first words was 'da-da' at the age of nine months.He was potty trined at age one.Matthew started kindergarten in 1991 at Big Sandy.This is where also was raised. I Will never forget that first day of school.He was so small he had to crawl onto the bus. He was the smallest child in his class.My son was a very loving,giving and caring person. He would give someone the shirt off his own back if he thought they needed it I CAN REMEMBER ONE TIME, THERE WAS AN OLDER LADY THAT RAN off the road. Matthew stopped to help her .She offered him money and he refused .He told her that god had told him to stop to help her.Matthew lived for the lord and love to go to church .It did not matter what church it was, as long as he could go.He was there every time the doors were open.Matt was very close to his family.Bob; his grandfather;and Matthew were inseparable.They were like two peas in a pod.Matthew was also very close to his sister,miranda.Matthew would do anything for her and nothing could come between them.They had a wonderful relationship .My son also loved me and he was not afraid toshow it.He would tell me all the time,'mom,I love you' and he would hug my neck.Most boys his age would be embarrassed to hug their mom in public, but not Matthew.No matter where we were,at school or the store, if matthew felt to hug me he would.I miss those words and hugs from him so very much.Matthew also had a step father,David.He was very close to him and loved him.Blood didnt matter to matt .He thought of david as his father and David felt the same. Matthew was almost 19 years og age and only weeks from graduation when he passed away.He was so looking forward to his graduation.One day Matt came home and tried on his cap and gown for me.I Started to cry.I could not believe my little boy was almost grown.He asked me,'Mom,are you proud of me?'.I told him i was proud of him and always would be no matter what.I am glad i got to see my son in that cap and gown because i didnt get to see him in it at his long awaited graduation.The day i lost myson,a part of me was lost too.I would do anything to see his face or feel his arms around me again.I would even take his place if i could. I miss him more than words could ever say.I decided to donate my sons organs because i know it is what matt would have wanted.He would have wanted to help people even in his passing.It helps me to go on knowing that my son,MATT lives on through others.I hope to hear from you soon or meet you face to face. |
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| Ad 316 |
| Posted on January 25, 2007 |
| I have a 13 year old son with hypoplastic kidneys that we just found out about in January of 2005. My son is now awaiting his kidney transplant. I went to UAB and had the donor work-up I tested positive as a match to be his donor but I had uterine fibroids that were causing severe anemia. I had surgery in December for the fibroids now we're awaiting a date to return to UAB for the actual transplant. We are both a little nervous. My son worries all the time that he is going to die. I am looking for anyone that has had a child that had a transplant and could talk to him via mail or by phone to help ease his worries and mine. |
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| Ad 316 |
| Posted on January 25, 2007 |
| I have a 13 year old son with hypoplastic kidneys that we just found out about in January of 2005. My son is now awaiting his kidney transplant. I went to UAB and had the donor work-up I tested positive as a match to be his donor but I had uterine fibroids that were causing severe anemia. I had surgery in December for the fibroids now we're awaiting a date to return to UAB for the actual transplant. We are both a little nervous. My son worries all the time that he is going to die. I am looking for anyone that has had a child that had a transplant and could talk to him via mail or by phone to help ease his worries and mine. |
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| Ad 315 |
| Posted on January 16, 2007 |
| I recently lost my son, he was 21 years old. He passed away November 10th last year. He passed out at Walmart while I was cashing my check in the store. When the ambulance came he told me right away there was something wrong with his head, he had lost all his body fluids. He had immediate surgery but had to many fluids on his brain. Afer the surgery they told me his brain was not responding and he wasn't going to make it. I have a daughter and two grandchildren. They live about 400 miles from me. I have family here and they are very helpful but don't truly know what I am going through. I would like to talk with someone that can help me get through the tough times. |
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| Ad 314 |
| Posted on January 12, 2007 |
| hello. my husband died of a massive corornary on oct 26 2006. i donated all that i could. i know that both corneas were donated and would like to hear from either the ones looking thru his beautiful brown eyes or any one else that might be able to relate or that might just want to talk. it hasnt even been three months and i am not coping very well.i need help bad. please anybody.... |
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| Ad 313 |
| Posted on January 8, 2007 |
| I'm 23 and 7 months ago gave a kidney to a stranger. If any of you have ANY questions about living donation and the whole process...please ask me. |
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| Ad 312 |
| Posted on January 3, 2007 |
| I am fifteen year old girl and I had a really strange condition in my foot (kinda like a flat foot but it was damaging my knee and hip and I walked with a severe limp) and the fifth doctor we saw said that he had never seen anyone walk as poorly as I did. So after a few tests I had foot surgery in which I recieved two bone grafts from a donor, which reshaped my foot and hopefully will help how I walk. Talking with an Air Force recruiter he said that there was no way I could pass a physical the way I walked, but now if everything goes right, I can fulfill my dream of being a C-5 pilot. I was just wondering if there is anyway that I could contact the donor's family to thank them. |
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| Ad 311 |
| Posted on January 3, 2007 |
| My six year old son will need a second transplant. He has BK and EBV right now and I am wondering if any other transplant recp. have rec'd a second kidney transplant after contracting the BK virus or EBV. He was 14 months old and rec'd his grandmother's kidney. I was a match the first time but was told that I may not be a match this time. He can not do PD at home so now we will drive 1 1/2 hours to the Diaylis unit. I also have a 3 yr that is finding it diffcult. Diaylsis has not started yet but we were prepared for that after staying two weeks in the hospital for dehydration over Thanksgiving break. If any one can help please contact me. |
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| Ad 310 |
| Posted on November 30, 2006 |
| Hello! My 19 year old daughter wants to donate a kidney to her father and is in the beginning stages of being tested. I keep getting negative feedback from many people that I tell about this. I guess people think that it will be dangerous for my daughter and that it is to much to ask of her. Are we, as parents, doing a bad thing by considering her as a doner? My husband never had to ask her; she freely offered. Has anyone else experienced this reaction from friends and family? |
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| Ad 309 |
| Posted on November 17, 2006 |
| Hello. I am a mum age 48. My 12 year old son has chronic renal failure & is being worked up to a transplant. It is likely that I will be the live donor. I would very much welcome any contact from anyone in same or similar position, especially in terms of those who are self employed in a physically demanding job. This is my situation. I am also a single mum and would also like information from anyone about what to get set up by friends & family for the aftercare of bothj myself & my son after the procedure. Many thanks. Bernadette |
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| Ad 308 |
| Posted on November 3, 2006 |
| I have just found out that I match a friend that is in need of a kidney. I am really not worried about having the surgery because they are so up to date on this type of surgery. What I am worried about is the financing. My husband and I live from paycheck to paycheck, we have two boy's that are in College. I just would like to speak to someone that may have been maybe in the same situation that we are in. I really want to help my friend. |
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| Ad 307 |
| Posted on November 3, 2006 |
| I am in the beginning process of being tested for my dad who is 63. He needs a kidney.. I am alittle scared... Anyone with common interest? |
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| Ad 306 |
| Posted on November 3, 2006 |
| Hi everyone. I am 25 years old and have been married to my husband for almost 2 years now. I knew that he was in need of a transplant before we even began dating and now I am in the process of trying to find out if I may be able to give him one of mine. He has been on dialysis for 9 years now and we have been unable to have children due to his health problems (the dialysis has made him infertile). I was wondering if anyone knows of any men who have been able to father a child only after receiving a transplant? I would also be interested in talking with anyone who has or will donate to a spouse. Thank you! |
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| Ad 305 |
| Posted on October 19, 2006 |
| my husband is cared with dialysis for over a year. i have 2 questions that nobody including the doctors could answer them till today .. i hope you can help us ! 1) my husband is suffuring during the dialysis from massive headaches. he suffers every day till he goes to sleep. he feels light headed. why does it happen & how can we avoid it from happening ? 2)during the dialysis, his blood presure drops immidietly & he faints.why does it happen & how can we avoid it from happening ? you are our last hope because he is suffering , i will thank you very much for answering us, even if you can tell us to who we can talk to .. |
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| Ad 304 |
| Posted on October 19, 2006 |
| I am in the beginning stages of a possible kidney transplant to my mom. I would like to hear from others who have gone through the same or getting ready to! I look forward to talking with you. God Bless! |
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| Ad 303 |
| Posted on October 19, 2006 |
| Hi. My sister had a liver transplant over 10 years ago. I am so thankful that she is alive. I have gotten to know her better and her children have got their mom. I would like to talk to other people who have family members or member who have had a transplant too. Thank you |
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| Ad 302 |
| Posted on September 26, 2006 |
| My friend has just told me that he has kidney failure. Doctors told him that he can not go on list for a kidney because of his weight size. He is overweight. I am having difficutly understanding why doctors would deny him to go on the list while he waits for a kidney and lose weight??? He reports that kidney is at a 12? Which I guess is extremely low PLease respond, thank you |
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| Ad 301 |
| Posted on September 25, 2006 |
| Hello, I am a type 1 diabetic, with stage four renal failure. My GFR is about 10%. I was listed for a Kidney/Pancreas Transplant on 6/28/06. Last week I had to have a CAPD catheter placed in my abdomen. I will start training for the dialysis on 10/2/06. With CAPD you do the exchanges yourself at home. I would love to hear from someone that is either going through what I am or someone that has already gone through this step and has had their transplant already. Looking forward to hearing from you. |
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| Ad 300 |
| Posted on September 13, 2006 |
| HI MY SISTER IS DONATING 1 OF HER KIDNEYS TO MY MUM, BUT I AM VERY WORRIED ABOUT IT. I DO HOPE THEY RECOVER SOON. I WOULD LIKE TO SPEAK OR EMAIL ANYONE IN SIMILAR CIRCUMSTANCES. |
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| Ad 299 |
| Posted on September 5, 2006 |
| My father has reenal failure and is 59 years of age.He is like a god to me and I wish to donate one of my kidneys to him. I will please like to know from previous doners what to expect from my health point of view. I am 29 years old and I work in the heavy industry invironment. Will I be able to continue my work and play sports. |
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| Ad 298 |
| Posted on August 30, 2006 |
| Hello, I am 41 years old and have been approved to donate my kidney to my sister-in-law she is not related to me by blood but we were a perfect match. I felt God led us through this process and expected to have the surgery in June 06. However, that did not happen and now I am feeling scared. We will try for December 06 now. Can anyone who has donated a kidney tell me what to expect afterwards? Will I gain weight? A doctor told me I would need to get a list of what I should and should not eat or take as medication after the surgery. I would like to know the real facts about donating a kidney, the surgery and what it will do to me. I am not trying to sound selfish I would just like to know true facts. I would love to hear from you. |
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| Ad 297 |
| Posted on August 23, 2006 |
| my son has liver damage he is 31 he might need a transplant i want to see if i can use some of mine |
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| Ad 296 |
| Posted on August 14, 2006 |
| My brother is needing a kidney. He just lost a kidney that my sister gave him about 7 years ago. My other sister and I are the living doners for him. We talked tonight and we are both in agreement that we want, and will, give my brother a kidney, but we would like to wait until he REALLY needs it. He is 48 yrs. old. He is doing ok for now. It seems that our kidney is only going to last for just a few years, like my sisters. I want him to get the most out of it. I have not talked to him yet. Is this surgery harder on males then females? What kind of recovery time are we looking at.Thanks for any replys. |
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| Ad 293 |
| Posted on July 28, 2006 |
| I'm a 66yr.old woman that has just been told by my local doctor that my health is probably good enough to donate a kidney to my 42yr.old daughter. she has 13% use of one kidney and is soon to be prepared for dialysis. she is very ill, with other problems, including being unable to keep food down, she just spent 5 days in hosp. being rehydrated. What exactually do I do now? What can I expect surgically-recovery-is there coverage financially? I'm on Medicare. |
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| Ad 292 |
| Posted on July 11, 2006 |
| Hello, My uncle is in REAL need for a Kidney. He has to do dialisys (sp?) 3 times a day, and all night. He is my dad's identical twin but my dad can't donate because of other medical problems. When he first needed the kidney, I didn't want to donate because I hadn't had a baby yet or anything (I found out now that it wouldn't have an effect). Anyway, I had a beautiful baby girl about 6 months ago, and at our family reunion in June, my uncle got up in front of the entire family and told about how he needs a kidney so badly. It totally broke my heart. So, I asked him what his blood type was and he said O+. I am O+ too and I know he can only get from O people. I felt like that was a sign that I needed to do it. I talked with my husband and he was really worried about me doing it, but I did a lot of research and he decided that he wasn't really happy about it, but he would support me. So, after about 2 weeks of research and praying, I called my uncle and told him that I wanted to do it. I am currently going through all of the tests to see if I can donate my kidney to my uncle. Anyway, I would like to know everything anyone would like to tell me. I am NOT scared at all of the surgery. I have had a few surgeries, including a c-section, so that is no big deal. But, I am afraid of something happening to me and my baby girl having to grow up without a mommy. Also, I know this sounds selfish, but I have had to be on a diet my ENTIRE life in order to maintain a healthy weight and I read that someone gained like 100lbs over a short time after they donated. She didn't know if there was a connection, does anyone know?? ALso, how painful was it? I didn't even think my c-section was very painful afterwards. Did you get it done laproscopically (sp?)? How long were you off work? I am an accountant (desk job) so I am hoping to go back to work ASAP. Also, I won't be getting paid for some of the time off. Have you heard of any places that give you aid for stuff like this? Any info you would like to give me would be much appreciated. Thanks |
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| Ad 291 |
| Posted on July 5, 2006 |
| I donated my kidney about a year ago. When I woke from after the surgery, my left testicle was swollen and very painful. In fact, the day after surgery, I was taking pain medication for my testicles, not for the surgery. When this didn’t improve, my doctor sent me to an urologist. He told me that I had an infection and put me on heavy doses of antibiotics for about six weeks. Nothing changed. When I went back to see him, he said that I had simply developed varicose veins in my testicles. When I returned to my doctor with the news, she sent me to another urologist. This time, I was told that swollen and painful testicles were not uncommon for male Kidney donors and that her male donor patients usually recover in about a year. Well, it’s been 14 months and my testicles are still swollen and painful. I must protect them at all times. I have lost my trust in doctors for not telling me this could happen to me before I donated my kidney and for not being forthcoming giving me the run-around (saying I had an infection, prescribing antibiotics, and then blaming it on varicose veins). I curse the doctors every time I drive over a pothole because shakes and bumps like this causes me great pain. I’m having some other problems as well. I’m feeling pain under behind my left rib where they took my kidney. It’s getting progressively worse…kept me up last night. I know I should contact ST. John Hospital in Detroit where I had the surgery; but I don’t trust them to be honest with me. I’d like to know if there are other male donors who have had similar experiences. |
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| Ad 290 |
| Posted on July 5, 2006 |
| In November of 2005 my husband was told after 15 years with a transplanted (cadaver) kidney it was failing. In March of 2006 I was tested for compatability and was a match. I went through all of the testing. Cat scan, EKG, kidney ultrasound, etc. Talked to the social worker and transplant coordinator and everything was great. My urologist also gave the go ahead. Surgery was set for May 25, 2006 and was postponed because my urologist was going out of town that day. Next date was set for June 8, 2006. We went on June 5 for our final crossmatch and was told the next day, two days before surgery that we were no longer compatible. The reason being my husbands nephrologist sent him for a blood transfusion in April, 2006 and unknown to us this changed everything. Not only were we no longer compatible but he was also sensitized (48%) which means he is now only compatible with 48% of the population. Just would like to let any recipient out there with a living donor to know the devastation that can come from a blood transfusion before transplant. Sometimes this cannot be avoided in our case it could have been but we were never told the circumstances that could arrise from this procedure. Just please be aware as we would never want anyone to suffer as much as we have. My husband is out on disablilty. We have three children and he is only 44 years old. He is on dialysis now three times a week. We were almosy unable to go on vacation because all but one of the dialysis centers were filled. It has changed our lives. In fact his cousin was just tested and is not compatible either. The heartache goes on and on. |
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| Ad 289 |
| Posted on June 28, 2006 |
| I donated a kidney to my sister not even a year ago and i cant tell you how happy i feel of what i did, there is not regrets what so ever. You can call me or email me anytime and ask questions and i will be happy to answer all the questions of the world of my experience. |
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| Ad 288 |
| Posted on June 15, 2006 |
| My mother had a bi-lateral lung transplant on April 21, 2006. She is doing very well with the lungs. However, we were recently told that she is in the early stages of kidney failure due to one of the rejection drugs Prograf. We knew this could happen but, according to her doctors it usually occurs after about 3 years. I would like to know if anyone else has been through this and how are you coping? |
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| Ad 287 |
| Posted on June 12, 2006 |
| I am a 27 year old Dialysis Technician who is going to get tissue typed on 6/13 to give one of my patients a kidney. This is something that I want to do, I am not being financially compensated for it, I was not asked by this man to do it, and I firmly believe that this is what I should be doing...but I am afarid of what my co-workers, family, and friends are going to say. I told my mom and she says that I need to go to the laywers and get all this paperwork done and protection from being fired or sued and I don't see why if I am giving the gift of life that I need to be going to a laywer. I need some advice...from a live donor, a live donor recipient, anyone who may shed some insight on this for me. Thank you! |
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| Ad 286 |
| Posted on June 12, 2006 |
| Hi my name is Windy I am from newjersey my husband went in to end stage renal on april 27,2006 an started his first treatment that day.Well all I know is Iwas not prepared or my husband he just recieved a call from his doctor when he was at work an said his potasseum was high an go to the hospital.my husband is 36.I never knew your life can change in a matter of seconds.do we have any new dialysis patients out there. |
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| Ad 285 |
| Posted on May 30, 2006 |
| HI. MY NAME IS TARA AND I AM THE MOTHER OF A 5-YEAR-OLD GIRL NAMED ERYN. ERYN GOT NEPHROTIC SYNDROME AT THE AGE OF 15 MONTHS AFTER A MMR VACCINATION. RIGHT BEFORE SHE TURNED 3, SHE WENT INTO RENAL FAILURE AND WENT ONTO PERITONEAL DIALYSIS. THIS PAST WEEK (MAY 2006), SHE WAS TAKEN TO THE HOSPITAL AND PUT ON HEMODIALYSIS. WE WILL NOW HAVE TO DRIVE AN HOUR TO GET TO THE KIDNEY CENTER FOR DIALYSIS... NOT THE WAY I WANTED TO SPEND MY SUMMER! I WOULD LIKE TO TALK TO SOME OTHER PARENTS OF ESRD KIDS. IT IS HARD TO BE A MOTHER, WIFE, DAUGHTER, COLLEGE STUDENT AND CAREGIVER ALL AT THE SAME TIME. WE ARE IN FLORIDA, ALONG THE EAST COAST. WE ARE STILL WAITING TO GO TO THE TRANSPLANT COORDINATOR SO THAT SHE CAN GET TISSUE TYPED. SHE IS TYPE O+ BLOOD. ANYONE WHO HAS BEEN THROUGH THIS, I WOULD APPRECIATE THE CONTACT! |
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| Ad 284 |
| Posted on May 12, 2006 |
| Before I went away on my trip to Milwaukee Wisconsin my close friend who is not a family member of mine has been on diaylsis for quite some time. On arrrving back into Boston I had blood work done to see if I was a match to my friend Eddie who is 62 years old myself being 37 years old. I found out a week later through the transplant office that I was a perfect match for my close friend Eddie. so the next step was to meet with a social worker at Brigham and Womens Hospital which I did. the thrird step is having my phycology Eval for the Kideny on Monday May 22, following that evaluation. The transplant will set me up for an appt. for a catscan on my kidneys. and the last setp is meeting with my freinds doctor who is the Urologist that will schedule the kidney operation. I have made a conscience descion about this procedure which I have done many hours of research online and talking to the transplant center at Brigham and Womens Hospital. If I told you that I wasn't scared or nervous I would be lying. How long does it take after surgey for recooperation and is there going to be a changed diet for me for the rest of my life? Can I live a healthy life which just one Kidney? any useful information anyone can send me will or coorespond with me will be very helpful I hope to hear from you soon take care.... |
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| Ad 283 |
| Posted on April 25, 2006 |
| I HAD JUST FOUND OUT OVER EASTER WEEKEND THAT MY HUSBAND IS IN COMPLETE KIDNEY FAILURE. AND I DID FIND HIM A KIDNEY DOCTOR,BUT I HAVE NOT HEARD BACK FROM THE KIDNEY DOCTOR AS TO WHAT DAY,TIME THIS KIDNEY DOCTOR WANTS TO SEE MY HUSBAND & I HAVE NOT ALSO BEEN ABLE TO FIND OUT WHAT OTHER KIND OF PLANS OF TREATMENT ARE AVAILABLE FOR HIM. I HAVE EVEN CALLED THE CLOSEST HOSPITAL & PUT MY HUSBAND ON THE NATIONAL KIDNEY TRANSPLANT LIST BECAUSE HE DOES NOT NEED JUST 1 KIDNEY HE NEEDS 2 KIDNEYS. I JUST DON'T KNOW WHAT TO DO FOR HIM RIGHT KNOW I AM TOTALLY LOST. I HAVE NEVER HAD TO GO THROUGH SOMETHING LIKE THIS BEFORE. AND AS FOR TRYING TO GET A KIDNEY FROM A FAMILY MEMBER THAT IS LIKE IMPOSSIBLE BECAUSE THEY ARE ALL EITHER ADICTED TO DRUGS OR ALCOHOL OR THEY JUST DON'T WANT TO BE BOTHERED OR THEY JUST EVEN THINK THAT IT IS JUST A MADE UP LIE. BUT THAT IS NOT THE CASE BECAUSE I HAVE THE LAB RESULTS & THE LAB RESULTS DO NOT LIE ABOUT THIS KIND OF THING. I DON'T EVEN KNOW WHAT CAUSED THIS. BUT I DO KNOW THIS MUCH & I HAD JUST FOUND THIS MUCH OUT & IT GOES ALL THE WAY BACK TO JANUARY 28,2004 WHEN MY HUSBAND & I HAD GONE TO THE HOSPITAL BECAUSE HE WAS IN SUCH PAIN DOWN IN HIS TESTICALS & SO THEN WHILE WE WERE THERE & WAITING THE EMERGENCY ROOM PHYSICIAN SCHEDULES MY HUSBAND FOR A NON CONTRAST CT SCAN & THATS WHEN THE NON CONTRAST CT SCAN SHOWED THAT MY HUSBAND HAS 1 RENAL CYST ON THE RIGHT KIDNEY & 2 RENAL CYST ON THE LEFT KIDNEY KNOW AS TO WEATHER OR NOT THIS IS THE CAUSE OF HIS COMPLETE KIDNEY FAILURE I HAVE NO CLUE. |
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| Ad 282 |
| Posted on April 25, 2006 |
| I have worked at a local coffee shop for about four years now and have become familiar with some of the regulars.. I've been told that one is in desparate need of a kidney and is not expected to live much longer if he doesnt find one. I have just found out that we are a match. I dont even know this mans last name. Is it strange for me to want to give a organ to somebody I hardly know?..I've been reading some of these adds and mostly everybody donates to someone whose very close to them...I would really like some feed back to help me with my decision. |
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| Ad 281 |
| Posted on April 17, 2006 |
| Hello,My mom needs a liver,Can anyone tell me if I can give her half of my liver? I'm pretty sure we have the same blood type.She is in the liver failure stage and we need to act fast.If you or anyone know anything on the subject please email me ASAP.Thanks so much. |
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| Ad 280 |
| Posted on April 10, 2006 |
| My husband is in need of a Type O kidney. He is 32 & has lived all of his life with just one kidney. We have found that now that kidney if failing. Yesterday we found that as of right now he has 19.5 function of this kidney & we are now going to be entered on the UNOS list? All of our family & friends have been very supportive, but none of them are eligable for giving him a kidney? I am obviously worried, but would like to get as much information as possible to help my husband. I was hoping that someone out there could help me to get the process started? I am just in the dark. Thank you. |
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| Ad 279 |
| Posted on April 10, 2006 |
| my uncle is 40 and needs a liver i want to donate how and wht do i do |
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| Ad 278 |
| Posted on April 4, 2006 |
| Hi, I am considering donating part of my liver to my girlfriend's husband. She herself wants to donate to her husband but I don't think she will be able to because she has health issues herself. She won't listen to me when I tell her I am willing to donate. I know she's worried about me. I would love to hear from anyone who has been a donar that would share their experience with me. |
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| Ad 277 |
| Posted on April 4, 2006 |
| I am 34 years old. I have a 27 year old half sister who has been on dialysis for close to 10 years probably. She developed or discovered her kidney problems when she was about 18. She had dropped out of highschool to have a baby and probably got enough health care, for the first time in her life, to know her true physical condition which involved a problem with her kidneys. I have not been in contact with her as we grew up in a very disfunctional environment. She currently lives in Iowa (in poverty). She is obese and needs to lose weight to be eligible for a transplant I think. I was never tested to see if my kidney was a match. She lives in Iowa near my step father (her father) and his family. He is an alcoholic and I do not keep in contact with him. As a result I lost contact with my half sister as well. I would just like to know what it is like to donate; how to get tested to see if I am a match and if it even matters if I donate or not. Is the donar list likely to help someone like her or would she likely suffer the fate of so many American's who live in poverty (second-class treatment of no treatment)? |
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| Ad 276 |
| Posted on March 24, 2006 |
| Hello... I don't know where to start. I had no idea how serious this is. My brother, just wrote me a letter telling me that he needed a liver in order to stay alive. He is given untill the end of this year to live.[2006] We are not blood relatives, his mother married my father. He lives in California, I live in Oregon. He is in his 40's. He wrote to his mother asking her for her help 10 years ago and she said it was too hard to do anything about it. I don't understand her reasoning. So, he is pleading me to help him. I'm doing what I can, looking on the internet, writing to people, asking for help or suggestions or ?? I don't know ANYTHING on this subject but I do want to help my brother. Thank you and God bless. |
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| Ad 275 |
| Posted on March 24, 2006 |
| I am beginning the testing process to donate a kidney to a friend. I would love to speak with someone who has donated to a non-family member. I know that speaking with someone who has been there will help with any nervousness I might have!! |
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| Ad 274 |
| Posted on March 24, 2006 |
| I would like to hear from someone who has donated to a spouse. I am 25 and although deemed a suitable match for my husband, one transplant facilty ultimately cancelled the surgery as the renal scan revealed the larger of my kidneys had a double artery. Now another center is reconsidering the case, using the other larger kidney. I would like some input from people who have already donated, either to a spouse or using the non traditional larger kidney |
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| Ad 273 |
| Posted on March 24, 2006 |
| Had a kidney tranplant and had a baby after.From Newfoundland{Canada}. |
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| Ad 272 |
| Posted on March 24, 2006 |
| Hi, I have a kidney that isn't working and I have to have it removed. I will still have one that is in good working order, but I am concerned and have questions about the recovery time, after having a kidney removed. How long will the hospital stay be and how long does it ususally take at home, before you can return to work? Thank You. |
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| Ad 271 |
| Posted on March 7, 2006 |
| Hi, I am going to donate my kidney to my Dad on 3/17/06 and I am soooo nervous. I know this is something I must do but my fears are taking over. I have never had surgery before and I'm afraid for my 4 year old that something may go wrong. Can someone that has gone through this recently help calm my anxiety? |
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| Ad 270 |
| Posted on March 2, 2006 |
| I donated one of my kidneys to my nephew on april 10th 1997. I would love to talk with anyone who has or is thinking of donating to someone. If you have questions or just want to chat about anything. |
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| Ad 269 |
| Posted on March 2, 2006 |
| I am 27 years young as of last week and am donating part of my liver to my dad. The questions I have right now are pretty basic. Please contact me if you have donated part of your liver.
Thank you and wish us luck! |
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| Ad 268 |
| Posted on February 27, 2006 |
| My husband just donated a kidney last Friday, Feb. 17,2006 to his best friend if you have any question please feel free to ask. |
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| Ad 267 |
| Posted on February 21, 2006 |
| Hi, I donated a kidney to my father almost four years ago now, my life has changed 100%since then, I feel better now than I ever have because once you go through something like that your perspective on life changes. My father is doing great, no rejection of any sort to this day. If anyone needs to ask me a question or just needs to vent out their fears please don't hesitate to ask. Yes it's a scary thing, but it is so worth it in the end. Before the surgery I had never ever been in the hospital, I had never even broken a bone. If I can do it anyone can! |
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| Ad 266 |
| Posted on January 26, 2006 |
| Hi. I am 44 years old and donated my kidney to my 34 year old niece on Oct 10th, 2005. We just passed the 3 month point since the surgery. I feel great and am totally back to my normal routine. My niece is doing great and her quality of life has improved sooooo much, it's crazy. If anyone wants more information from someone who went through the process first hand, I'm certainly willing to answer any questions that I can. I can say, that initially there was some concern by my loved ones but once they saw that both of us were fine, everyone understood how worthwhile this was. I totally feel blessed with being very healthy and having a spare of something that someone needed so badly. The reward for doing this really did make it worth any effort involved. All I can suggest is to think about the situation in reverse. What if you needed an organ just to have a normal life? It may sound like a lot to ask but like I said...many of us have a spare!! |
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| Ad 265 |
| Posted on January 23, 2006 |
| My son is twelve years old and was recently diagnosed with chronic kidney disease. He only has 20% kidney function and will need a kidney transplant in the very near future. This is all new to the both of us considering that he has never been sick before until now. My son and I both are looking for pen pals to discuss concerns and feelings with. I would like for him to have someone he can write to possibly keep some of this off his mind. He is a wonderful child with a kind heart. |
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| Ad 264 |
| Posted on January 10, 2006 |
| I have recently found out that my dad (who does not live near me) has the great need for a liver. He will make it for a year or so without it. I am willing to give part of my liver to him and hopefully in time. I am scared and have no clue as to how to get started with the process. Can someone help awnser my questions? |
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| Ad 263 |
| Posted on January 10, 2006 |
| I have just begun testing so that I can donate my kidney to my best friends husband. It, for me seems like the natural thing to do. Yea it's a little scary but, you know the way I look at it is that I will be giving life and hopefully alot more years to these great friends of mine. The surgery is hopefully going to be within the next 2 months. I would like to hear from people who have donated a non-related kidney and what the outcome is. God Bless to all who give this gift of life. |
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| Ad 262 |
| Posted on January 10, 2006 |
| My dad needs a kidney transplant and I am going to be tested to see if I am a match. I have a 2 year old daughter and my husband does not agree with my decision, but will honor it. I know I am elgible for FMLA but am not sure about disability thru my employer. Honestly, it scares me to death to think about surgery. But I want to help my dad. Just want someone to communicate with who understands. |
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| Ad 260 |
| Posted on January 5, 2006 |
| When I was 20 years old I went through the testing process to be a kidney donor for my father who was in end stage renal failure and was on 4 hour dialysis runs 3 days a week. I just knew I had to do this. The day before I got the call that I was approved to donate my father had a seizure due to his diabetes and the lack of oxygen caused permanent and irreversible brain damage. He passed away three weeks after this. I now have days of struggle because I mourn not only for my dad, but for the experience that we were denied. Him, myself and the whole family were so excited that he was going to get this transplant and then came such horrible disappointment. Sometimes when I read stories from families with sucessful transplants, I get angry because I was not able to donate. I woud like to talk to somebody who has gone through something similar. Has anybody lost a loved one so close to transplant time. There is nobody in my life who understands this struggle I deal with, including my family, because although they are also mourning the loss of my dad...they didn't personally experience the disappointment of being told they could donate and then not being able to! |
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| Ad 257 |
| Posted on November 28, 2005 |
| I am starting the testing to be a kidney doner for my Aunt. I find that I go through different stages of emotions. Sometimes, I get scared of the surgery. I have to fly 3,000 miles to be in a hospital near my aunt. I don't know if I'm a match yet but if I am, I know that I am going through with it. My problem is that most people think that I am nuts! My Aunt lives very far away and we haven't always been in contact. I am fifty years old and she is sixty. We were very clost when I lived near her when I was very young. I moved away when I was only 12 years old. Through the years we have talked and visited a few times but we haven't really been a big part of each others lives. When she asked me to be a doner I wasn't sure at first. But as we talked, I realized that she could die without one. She is very sincere and honest and has never put any pressure on me. My problem is that I don't have the support that I need from this end. My husband doesn't agree but says that he honor my decision. My daughter is a nurse and says that she will travel with me to help. However, everyone thinks it's crazy because my Aunt isn't an immediate family member. Has anyone out there went through any of the problems I am experiencing? Is it crazy to give the "gift of life" to her? |
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| Ad 255 |
| Posted on October 19, 2005 |
| Hi my mom has Chronic Kydney Disease and I want to know the possibiltys if I can donate my kydney to her. |
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| Ad 254 |
| Posted on October 13, 2005 |
| I donated a kidney to my brother almost 2 years ago. I would be glad to answer any questions that you might have concerning the testing, surgery and what it is like a couple of years later. |
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| Ad 253 |
| Posted on September 21, 2005 |
| My Dad has suffered with kidney failure for a while now. My mum is going to be the kidney donar, which me and my sister are very scared about. the transplant could be next year. It will be very hard for me and my sister to cope even though we have a big supportive family. We are both in our early twenties. Has anyone been through a similar experience. We are also a bit scared of the kidney rejecting and stuff after the surgery. |
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| Ad 252 |
| Posted on September 21, 2005 |
| Hi. My name is Katie. On June 2nd, 2004, I became a live organ donor when I donated the right lobe of my liver to my mom in need of a transplant. It was truly the best day of my life! Knowing that we both gave each other the "Gift of Life" is the most amazing feeling! The transplant team at the hospital is like family to us. We keep in touch on a regular basis! I love them!!
I was 19 years old when I became a live donor. I am now 20 years old. I would love a penpal - maybe someone around my age who is a live organ donor as well. I would also love to share my experience with anyone who is going through this process now and who has questions or advice.
God Bless you all and remember - Donate the Gift of Life!! |
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| Ad 251 |
| Posted on August 23, 2005 |
| I'm a 33 year old male who had a transplant. One of my major concerns is developing B.K. virus(polyoma virus). Can anyone tell me what percentage of the transplant recipients will develop this virus and lost there kidneys? Does this virus affect certain recipients and not others? Are there any blood tests available that can be done to find out if the transplant recipient has B.K. virus? |
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| Ad 251 |
| Posted on September 21, 2005 |
| Hi my name is Tim I'm 20 years old and I had a kidney transplant back in 1993. I was wondering if any one could tell me if kidney disease can affect me by having children and if it will cause my sperm count to be to low. I have some doctors right now that don't know anything about my situtation just know i have kidney disease and they are swearing it should be impossible for me to get my fiance pregnant. |
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| Ad 250 |
| Posted on August 23, 2005 |
| Story: I am getting ready for a kidney transplant for my husband..I have had to loose 40 pounds and go through alot of testing i am really nervous about the sergury and just want to see if i can hear form others to ease my worries. We are scheduled to go through the sergury 9-20-05 |
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| Ad 249 |
| Posted on August 15, 2005 |
| I am 42 years old female and donated part of liver to my cousin's daughter who is 6 years old, the surgery date was April 25, 2005 in Edmonton, Alberta There was alot of test that I went threw in February and March 2005. On March 23nd we found out that I was a perfect match. The recovery is going well, I was in the hospital for 10 days and then in the outpatient area for 1 week after. My incision was infected twice but antibotics cleared it up. I would encourage everyone to be a living donor, it is wonderful to give the gift of life. |
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| Ad 248 |
| Posted on July 27, 2005 |
| m a proud mom of a little boy who also have downs syndrome and Im thinking of donate my kidney to my son so he can live a happy life |
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| Ad 247 |
| Posted on July 20, 2005 |
| was born with one kidney and that kidney had a defect that was corrected, when the condition was discovered, at 12 yrs. old. By then, damage was done to the one kidney. I was told that pregancy would kill me, so before I got married, I had my tubes tied. My husband and I spent 11 1/2 years putting him through medical school and residency (orthopedic surgery) and adopted three children. He was killled in a plane crash 22 years later. I remarried 13 years later and during my 66th year my creatine level began to climb. My "new" husband began the testing process to give me a kidney, but he had sudden death aythemia and died at the computer 20 months ago. My oldest adopted son immediately stepped up, was tested and was a perfect match. I had the transplant on January 11, 2005 at Vanderbilt Medical Center, at 68 years old. I must add that other than this kidney problem, I am in perfect health. I have exercised my whole life and all tests were excellent. I don't have the space to say enough good things about Vanderbilt and especially Dr. Harold Helderman, the head doctor there. I tolerate the many drugs I take really well and maintain a creatine level of .8. Yeah!!!!! When I went into surgery, my creatine was 3.9 and my creatine clearence was 14. During my recovery time, I was still dealing with the loss of my second husband, the settlement of his estate, selling our lake house, our beach house on Navarre Beach, Florida being completely blown away and the wind insurance denying our claim, and the aloness of recovering without my husband. I have done it!! It is truly amazing what we can do when we have to. If anyone wants to email me (or eventually call me) I would love to share my experience. I had noone that had actually had a transplant to talk to before my surgery and I had no idea what I was facing. GOOD LUCK TO ALL!!!!!!!!!! |
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| Ad 246 |
| Posted on July 14, 2005 |
| My 47 year-old sister needs a kidney transplant and I've offered to be a donor. We're just at the beginning of the process, but already I found out I have to take meds (INH) for six months for a latent tb infection before I can be considered. Her team is in Miami and I live in the SF Bay Area. I'm looking for someone who's been a donor, preferably someone who had surgery at Jackson Memorial (her hospital) and even better, someone who had to take these drugs first. |
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| Ad 245 |
| Posted on July 13, 2005 |
| My daughter has offered part of her liver to me. I am not taking any med's right now except for lactulose,as I had tips placed April 13th 2005---I have had 3 bleeds)...my question is...my hair is starting to fall out. I am taking a good multi vit...but my hair is falling out all over my clothes, hanging on my arms.
I just had my eval at the Lahey Clinic to see if I am a good canidate for a live liver donor. My thinking is a bit fuzzy right now ..as is my typing. Any tips or advice about my hair?? |
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| Ad 244 |
| Posted on July 11, 2005 |
| I am a fifty four year old grandma who gave my beautiful grand daughter a kidney one week ago.She is only two years old and still in in ICU but getting better every day.The joy this has given me out weights the pain and any discomfter I have felt. I have decided to become a doner so when the Lord calls me home someone can still have life. We all need to have love for our fellow man and what a gift to know someone will live on with this gift. Please keep us in your prayers and I will you also. |
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| Ad 243 |
| Posted on July 8, 2005 |
| February 9, 2005 I was blessed by the fact I was able to donate a kidney to my husband. I am 55 years old and my husband is 58. The expierence of being able to have him back to normal out weighs any pain I endured. We have always felt we were sole mates and this procedure has made us sure of it now. My husbands kidneys failed in June of 2004. If you have an opportunity to donate please do. |
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| Ad 242 |
| Posted on July 5, 2005 |
| I am asking for some advice,I have been married for 2 years and found out recently that my 22 yr old husband has been diagnosed with end stage renal disease. He only has 20% total function, and luckily has not gone on dialysis,the good news is MUSC transplant center has preferenced me his wife as his living donor, this is a true blessing, however I am worried because I just found out that I might be pregnant. I of course would be happy if we were going to be having a baby but I still want to be able to donate to him. If anyone has any advice I would really appreciate it. also in response to some other ads you can still have a baby after donation, just to answer some questions. |
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| Ad 241 |
| Posted on June 29, 2005 |
| I am considering donating a kidney to my cousin. I am very willing to go through it, but I am very concerned about the recovery. My husband's job provides no personal days and I have 2 girls (4 and 8) to take care of. Both my mom and mother-in-law will be nearby to help, but I want to be able to get back into things. I am hoping I can bear the pain, but I would like more details than 4-6 weeks recovery. Thanks for any help and God Bless!!! |
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| Ad 240 |
| Posted on June 23, 2005 |
| I'd love to correspond with anyone in my perdicament...I was diagnosed in Jan with chronic kidney failure....I currently am working with 25%kidney function and all has been stable. Well anyways...I goofed with my birth control and now I found out I'm pregnant. My GYN scared my some...she began to talk to me anout "Steel Magnolias":( and stuff. My nephrologist on the other habd was more positive and told me overall I should be happy! She told me with a lot of supervision this can definitely be possible. I am confused and so so so scared right now. I'd appreciate if anyone can share similar stories...how was the pregnancy? Birth? The baby? Preeclampsia? Any help/support/stories would be so appreciated. I want this to work so so so bad especially because I KNOW this will be my last baby! Thank you in advance and God bless! |
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| Ad 239 |
| Posted on June 23, 2005 |
| My father is suffering with kidney failure. I have never seen a man more determined to beat this, even though he knows it is unbeatable. He has watched his diet, writing down every gram of protein that he eats. What a trouper. His last results came back and they are just climbing. I am hoping to be a match for Dad, so that he doesn't have to go through dialysis. I have been on many websites and read a lot of personal stories, it all seems to be a successful operation. |
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| Ad 238 |
| Posted on June 21, 2005 |
| My Mom needs a liver transplant and I really want to be a live doner, so does my daughter. Can anyone tell me what all happens? I am trying to find out all I can!! I can't stand to see her suffer any more! God saved me from an accident 2 years ago and no one could belive I lived through it, maybe this is why he saved my life?? Please, any one who can give me some info I really would love it. God Bless. |
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| Ad 237 |
| Posted on June 6, 2005 |
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| Ad 237 |
| Posted on June 6, 2005 |
| Hi, I'm 19 years old and I'm considering donating my kidney to my mother in law. I just need to know what the side effects are after the surgery. Is there a lot of pain afterwards? Are my chances higher for getting kidney disease? And most importantly does it lower my chances for getting pregnant? Any input would be greatly appreciated. |
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| Ad 236 |
| Posted on May 31, 2005 |
| My 19 year old daughter has been on dialysis for 19 months. No family member has been a match and even 2 friends who were willing were not suitable. So we keep searching. She is O positive and may have to wait 5 more years for a cadaver kidney. I am thinking of trying to list her in another state to increase her chances. Does anyone know if this is possible? Thanks. |
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| Ad 235 |
| Posted on May 31, 2005 |
| I am 21 and will be donating a kidney to my step-grandmother on June 29th. I was hoping to talk to someone close to my age who has been through this process and also someone who might know about foundations for financial aid for living donors. Thanks! |
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| Ad 234 |
| Posted on May 13, 2005 |
| hello i'm 36 yrs old and i have a 15 yrs old son that's having a kidney transplant next month and i'm the donor and i was just wanting to talk to someone who has giving a kidney to their child. which to me is the greatest gift of all. thanks |
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| Ad 233 |
| Posted on May 13, 2005 |
| My husband despertly needs a kidney transplant. My question is , is there any hope that I being A+ can donate a kidney to him, being 0+ |
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| Ad 232 |
| Posted on May 12, 2005 |
| Hello I am a living donor. Gave my brother a kidney. The coolest thing I have ever done. We were both in and out of the hospital in 5 days and are doing great. I wrote this for both of us. If anyone wants to talk about what the surgery is like drop me a line. Finding words How can words convey this feeling? That I alone Know I am feeling? Where do I go for inspiration?? |