Pen Pals
"I donated a kidney to my wife and I would like to talk to someone who donated to a spouse." "My sister is donating part of her liver to her daughter and I am very worried. Can I talk to someone about this?" "I am thinking about donating a kidney to my dad. I wish I could talk to another donor." Often, the best way to find the answers and support we need is to talk to families that understand what we are feeling - families that have been in situations like ours. The Living Donor Network allows living donors and family members to correspond by posting and responding to ads online.
We encourage you to post an ad or reply to a letter here. You can reply to as many people as you wish - just be sure to include the ad number with each reply, as indicated on the response form.
To submit an ad: Complete the submission form with your letter, name and e-mail address. We will post the letter anonymously online by using a number instead of your name. Any initial responses to your ad will come directly to the NKF to ensure your privacy. We will then forward the responses to you and you can decide whether to contact and continue correspondence with each person directly.
To respond to an ad: Complete the submission form with your name, e-mail address and letter. We will forward your response, along with your name and e-mail address, to the ad number that you requested (responses are not posted online). Please note that responding to an ad is not anonymous - you must provide your name and e-mail address so that the person can contact you.
| Ad 371 |
| Posted on August 5, 2008 |
| I am a living donor. I would be happy to share my thoughts and experiences with anyone considering becoming a living donor. |
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| Ad 367 |
| Posted on May 14, 2008 |
| I recently matched to donate a kidney to a friend of mine. I'm 21 years old, female, and in pretty good health. I feel like this is exactly what should be happening, but I'm still kind of nervous. I just want to make sure I know everything I can before everything happens. |
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| Ad 366 |
| Posted on April 9, 2008 |
| My 18 year old son suffered total renal failure this past January...he's about to be put on a list for a donor.
This entire kidney transplant proccess is new 2 me, and would really appreciate chatting with someone around my sons age, that is going threw the same, as he and I have a difficult time talking about it.
Thank You & God Bless |
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| Ad 364 |
| Posted on March 25, 2008 |
| In October of 2007 I donated a kidney to someone I had never met. I'm 42 years old, married, and the father of three teenagers (if I can survive teenagers I can survive anything!). Nearly six months post op I've had no complications and have resumed my very physically active life style. I'm happy to answer any questions from others who are thinking of donating a kidney. |
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| Ad 363 |
| Posted on March 25, 2008 |
| Hello everyone. I am a 37 year old female located in Oklahoma. I have recently been tested to see if I can be a ld for my husband's aunt. This will be her second transplant. Her kidney that she has now is a little over 18 years old. We just found out that we match. I am wondering what the next step is. They didn't give her much information when they called. Her last kidney was not a living donor so this is a first for her also. Now that we match, what will happen? And I want to know about recovery. My family is beginning to freak out, they do not want me to do it. They are worried about the risks to me. Somehow they have in in their minds that I am more at risk than to recipient. I am not sure where they got that information. Anyone have info about this that I can share with them? Anyway, any info that you have will be helpful. Thanks in advance. Janie |
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| Ad 362 |
| Posted on February 27, 2008 |
| My brother(66) has is in dialysis due to Wegner's and has talked to me(55) about donating a kidney. I have an active job as a middle school teacher and my youngest is in high school. I have been avoiding talking about with him because I am worried about long term effects and possibly losing insurance. Also my brother does not have a good track record with following doctor's orders. I would love to hear from someone with experience. Will this interfere with enjoyment of retirement years? |
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| Ad 361 |
| Posted on January 9, 2008 |
| My son died by drowning in the bathtub when he was 14 months old. This happened in February of 1991. December 30th he would have been 17 years old. Although I have had many years to deal with this tragedy, I have always wondered one thing. How are the people that received his organs doing today. I received a letter shortly after his death with an update on the people that received the organs and how it affected their lives. I was told I would eventually receive another letter but never did. Does anyone know how to go about finding this information? I know that often now days the families of the organ recipients are open to communicating with the donor families. Is there a forum for this? |
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| Ad 360 |
| Posted on January 9, 2008 |
| I am a 24 year female who recently donated my kidney to my uncle in November. I believe this experiance has changed the rest of my life. It has taught me to not take my family for granted. Even though I am having minor complications, I would do it all over again if I could. |
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| Ad 358 |
| Posted on December 20, 2007 |
| I donated a kidney to my brother three years ago, and would be happy to discuss my experience with people who are thinking of donating. |
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| Ad 357 |
| Posted on December 20, 2007 |
| I WOULD LIKE TO TALK TO ANY ONE WHO IS OR ALREADY HAS DONATED A KIDNEY.I GAVE MY HUSBAND ONE AFTER 5 YEARS OF DYALISS.WE WENT TO UMD IN 8/05 AND ITS BEEN SO WONDERFUL TO SEE THE STUFF I HAD NEVER SEE HIM DO.I HAVE TO KIDS 13 AND 9 THAT WAS A CRAZY TIME I THOUGHT THERS NO WAY I COULD DO THIS I WAS SOOOOO SCARED TO BE SO YUNG AND LIVE LIKE WE DID BAXTER BOXES UP STARES DOWN,I THANK GOD EVERY DAY TO LOOK AND THINK I REALY WAS PUT HEAR FOR THIS REASON AND I WOULD IT 5 TIMES OVER EVERYTHING WAS SO WONDERFUL LIKE SOMTHING HAD TO GO WRONG BUT NO THINGS WENT SO GREAT I WENT HOME TOOK CARE OF MY KIDS (WE WERE GONE ALMOST2 MONTHS IT TOOK US 2YRS TO GET THERE)AND HE WENT BACK TO WORK AND MADE IT SO WORTH WILD TO SEE SOMEONE JUST SO LOST IN WHAT WOULD MAKE THINGS SO WRONG IN LIFE TO WHAT DID I DO TO MAKE IT SO GREAT.DONT EVER DOUGHT IT ITS NOT THAT PAINFUL AND SOOO WORTH IT. |
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| Ad 356 |
| Posted on November 26, 2007 |
| My Name is Joel klompas and I reside in South Africa Johannesburg.I was diagnosed in 1992 with a rare kidney disease and my kidneys failed in 1997.I underwent my first transplant which was hyper acute rejection. I underwent another transplant on my birthday six November 1999. It was very very successful from a cadarva.I was on large amounts of immunosuppressants and today it is eight years later. My kdiney is working like a dream and things are good. I feel very well and my urea and creatinin are normal.I am just so grateful to my donor and the family of the donor for giving me a gift of life.That person is my angel and will always be my true angel. |
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| Ad 355 |
| Posted on November 26, 2007 |
| I am 29 years old and my father just recently had to start kidney dialysis. My mom recently found out she is not able to be the donor due to a history of high blood pressure. I was cleared from my doctor to pursue testing to find out if I am a match, but my dad is not in favor of it. Since I am not yet married and do want to have kids he thinks me giving a kidney now with prevent me from having children or will cause complications. Is this true? I can not seem to find a lot of information on this online. Would love any information or personal experiences in this area. Thanks so much! |
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| Ad 354 |
| Posted on November 26, 2007 |
| good morning -afternoon
I have had three kidney transplants since I was four years old. On March 16 of 2008 I will be celebrating my 25 years of my kidney transplant. What keeps me going in life is faith and belivieing in angels and God. And never give up. There is no such thing in giving up. Why because life is like a flower or river. Worst thing I do not like is taking all those meds. that is sad thing. |
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| Ad 352 |
| Posted on October 18, 2007 |
| I donated a kidney to my brother on 5/12/03 and can say it is one of the best things I have ever done. To see his health improve so fast once he had a functioning kidney was amazing. The surgery and recovery is tuff on the donor, but worth it. If you are considering donating and need someone to talk to or ask questions, feel free to contact me. |
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| Ad 351 |
| Posted on October 10, 2007 |
| My brother needs a kidney transplant.My mum is 69 and is determined to go ahead with it. She is 6\3 compatable and I am 6\6. I have 2 other brothers who are 6\5 and 6\4. I want to do it but I've just started a years couse and financially can't back out it. I want to do it, and feel bad asking my brothers who are more financially secure, especially if I am the best match. I know money shouldn't come into it, but I have kids and a mortgage to pay. Not sure what to do? |
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| Ad 350 |
| Posted on October 9, 2007 |
| Hi. Ilost the most wonderful husband on 3/6/05 of a sudden heartattack. Hi name was dennis.Dennis would go out of his way to help anyone. We have three wonderful boys who dennis worshiped.Life has been really hard for me since i lost Dennis. He was my best friend and we were never appart for the 20 years we had. i am so lost without him and the only thing that helps me to keep going is knowing that he was able to help others with his donation. i still havent recieved any letters from the recipients but pray that i will. i miss dennis so much and my life will never be the same. My only hope is that i will here from somebody and be able to let them know what an amazing and giving man he was. cathy |
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| Ad 349 |
| Posted on October 1, 2007 |
| My sister had renal failure in oct 05. She's in her 30's. Since then she has been on dialysis. I have not slept a full night since. (Afriad of getting a call that she's gone)I would like to give her my kidney but the expense is tremendous. does anyone know if there is a voluntary organisation that does these transplant for free? I am worried sick that we're sitting by and just watching her demise because of lack of funds. thanks in advance. |
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| Ad 348 |
| Posted on September 24, 2007 |
| Greetings ALL patients... I am SICK and TIERD of being SICK and TIERD~ can anyone relate? I have been on and off dialysis since 1987-- I need laugh! anyone heard any good ones lately? Lets be friends- life is getting OLD to me and I am only 44~ looking forward to hearing from YOU! all my best. |
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| Ad 347 |
| Posted on September 20, 2007 |
| My 41 year old has End Stage Renal Failure and was jost told that he has to get the gland taken out of his neck because they are making his renal failure worse. His doctor called today and stated that he has to have surgery in a week because his health is descending. Have anyone had such a procedure down? Does anyone know the organization that was on the nightly news, that is helping patients in need of a kidney? |
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| Ad 346 |
| Posted on September 20, 2007 |
| Hello, My husband suffers from a rare kidney disease called Alports Syndrome. It affects the kidney's, hearing, and vision. He has been on dialysis for 8 months now and constantly going into congestive heart failure. His hearing is completely gone and almost all of his vision as well. We have recently brought Hospice into the home to try and make things a little easier. Unfortunately I am not a match and nor do we have the ten percent to put up to get on the transplant list. We have four small children, and I guess what I am wondering is if I volunteer to donate a kidney to someone, would it make it easier to get one for my husband before it's too late? Any information or advice would be greatly appreciated. Thank you and God Bless |
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| Ad 345 |
| Posted on August 28, 2007 |
| I have to make a decision if I'm going to donate my kidney to my nephew. Please can some tell me who had donate a kidney. Is his/her quality of life the same. And what if you develope an illness later - putting a lot of stress on you one kidney? |
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| Ad 344 |
| Posted on August 23, 2007 |
| i have three kidney transplant since i was four yr old .but march 16 1983 i have my 3rd kidney transplant next march of 2008 i will have my transplant for 25 yr's and still going strong i am enjoying life like playing golf biking and working you may send me a e-mail if you would like/sure would be cool fine pen pal |
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| Ad 343 |
| Posted on August 23, 2007 |
| I just got word that I am going to be the donor for my bother in law, we are going to do the transplant in Sept. I am so happy and excited that I will be able to help him and he will be able to get off dialysis. It is going to be a miracle. |
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| Ad 340 |
| Posted on August 23, 2007 |
| Hi I;m 21 years old and just lost my mom in April. She donated everything she could. I just am having a hard time missing her and wanted to know if there is anyone that could talk to me and help with this tragic time. Thank you. |
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| Ad 339 |
| Posted on August 21, 2007 |
| Hi, I was diagnosed with chronic kidney disease about a year ago. I have not started dialysis yet, but will in the next few months. I am interested in communicating with other people who have chronic kidney disease and becoming friends. If you are interested, please send me a message... |
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| Ad 336 |
| Posted on June 19, 2007 |
| I'm a donor mom - we lost our precious son Jimmy in October of 2002 to pneumonia. Jimmy was a special boy in so many ways, it helped us to find out that his corneas went to NYC and Las Vegas, and his heart valves went to a 10-day-old boy in California. I know this is a long shot, but I'd love to talk to any or all of those people who received Jimmy's gifts. I'd also be interested in talking with parents whose children have received transplants, to share our perspectives. Thanks for reading and sharing. |
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| Ad 335 |
| Posted on June 19, 2007 |
| My sister and I are going on our 7th anniversary of the kidney transplant. It was a GREAT experience seeing my sister almost immediatly look so much better after the transplant. We have both led very normal lives since then and if ANYONE is considerring giving a loved one or anyone a kidney and are feeling a bit nervous, please feel free to contact me. We are both in our mid to late 40's and everytime I see my sister I literally gave thanks to the man above for allowing me to give my sister the gift of life. I Love my sister very much and I feel so blessed to have been able to be there for her. God Bless you you even considerring giving someone a kidney. |
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| Ad 333 |
| Posted on May 25, 2007 |
| Hi My son Anthony was struck by a car in Arizona on Jan 21 2006, we had to take him off of life support on Jan 25th. So far we know that he has saved 5 people lives with his "gift of life". I am looking to chat with other people who are going thru the same thing. Not a da goes by when I dont think of him and some days the pain is unbearable. |
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| Ad 331 |
| Posted on October 23, 2007 |
| hello im melissa my brother was a organ donor in oct.1996 he was in a fatal car accident i guess i didnt have time to grieve 6 months later my oldest brother was in an accident also he was left paralized he lived for 4 years before we lost him also. i just wish to help someone else i know the lonely nights and guilt i still feel from time to time. it would just be nice to have someone to share and talk to someone who has been though it also |
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| Ad 330 |
| Posted on October 23, 2007 |
| I AM A 49 YEAR OLD DISABLED WOMAN WHO FOUND OUT ALMOST 3 WEEKS AGO THAT I HAVE TYPE 2 DIABETES.I WOULD LIKE EMAIL FRIENDS THAT HAVE TYPE 2 DIABETES. |
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| Ad 329 |
| Posted on May 10, 2007 |
| My husband is thinking of donating a kidney to a friend. I'm worried. What if he has a health problem in the future? Will he be able to get life insurance in the future with just one kidney? What is the recovery time for someone who donates?
Can anyone help? |
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| Ad 328 |
| Posted on May 2, 2007 |
| My 20 year old daughter needs a kideny transplant and I want to donate. I'd like to have someone to talk to that has gone through this. |
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| Ad 327 |
| Posted on April 10, 2007 |
| My daughter was diagnosed with renal failure and hypertension in November 2006. She is 21. She has not been under doctor care consistently since January 2007. When she last had blood work done, her kidneys were functioning at 27%, lately she has been bruising very easily and her legs are swelling. I'm certian her kidneys are worse. She has no medical insurance. Does anyone have any information on how to find agencies or organizations that could help her with medical costs? |
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| Ad 325 |
| Posted on April 3, 2007 |
| I recently found out that my brother needs a kidney. My brother and I are not close and my husband thinks I should not even consider being a donor for him if I were a match. I have so many questions and concerns about the whole thing but don't want to cause added stress for my parents or brother right now. I don't have health insurance so would the costs of the surgery and recovery be covered by my brother's insurance? How risky is the surgery for the donor...I have heard it is harder on the donor than the recipient. Has anyone ever been a match but not been able to go through with being a donor to a relative? |
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| Ad 324 |
| Posted on March 21, 2007 |
| I am 40 yo and am donating a kidney to my sister next month at Columbia/NY Pres. Hospital. I am curious to hear form others that have gone through this. As the surgery approaches my nerves are getting alittle anxious. I am in the medical field and understand the surgery extensively,however nothing takes the place of hearing from others who have been through this before us.Thank you. |
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| Ad 323 |
| Posted on March 21, 2007 |
| I am a 33 year old mother of 5 who will be having a failing kidney removerd on 3/15/2007. I must admit I am completely terrified and am looking for words of "something". I have had stones for the last 3 years, the last 2 larger than golf balls and still intacted. Should I be this scared??? |
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| Ad 322 |
| Posted on March 21, 2007 |
| My father, with chronic renal failure,complicated by diabetes and hypertension, is awaiting a kidney transplant deu to chronic rnal failure.The cost of the operation transpotr and the drugs is a severe burden to my level of economy.Of the thousands of kind-hearted people who have had the experience of the mental agony of having had such an operation or having had such a relative to attend on;I humbly request to mail me only if you could find the slightest way of helping me.God bless you!. |
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| Ad 321 |
| Posted on March 21, 2007 |
| I lost my sister to a brain anyerism in May of 2005. Almost two years now and it still feels like yesterday. We donated everything we could she was a very giving person. I have heard back from one of the recipients and I am gratefull for that. I still have a really hard time with her death. Anyone who has lost a loved one to an aneurisym (can I slaughter the word any more)and or brain death and wants to talk I could use someone to talk to that has some common grief. Thanks |
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| Ad 320 |
| Posted on March 1, 2007 |
| my beatiful wife went thru stage 4 cancer five years ago , her five year remission period is coming up in may . however she recieved the highest possible doses of radiation and chemotherapie, it has led to a failing liver , is there anyone who can tell us what direction we should take from here . we were told she cannot be a candidate for a transplant because of the cancer treatments , please help us |
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| Ad 319 |
| Posted on February 21, 2007 |
| i am 49 years old my husband gave a kidney five years ago, we both are doing great. we have been married almost 32 years, it was the greatest gift that he could of ever gave me, we had three wonderful sons together. my 22 year old son pass away with cancer 8 years ago , god has been so good to me , sometimes we dont understand but he knows every thing . debbie thomas |
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| Ad 318 |
| Posted on February 20, 2007 |
| I am 36 years old and is about to get tested for match for my cousin who is in need of kidney. My parents live in out of country and when I told them, they are very angry that I made this decision. They are worried that it is too much for me. But my cousin needs a kidney badly. Any similar situation? |
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| Ad 316 |
| Posted on January 25, 2007 |
| I have a 13 year old son with hypoplastic kidneys that we just found out about in January of 2005. My son is now awaiting his kidney transplant. I went to UAB and had the donor work-up I tested positive as a match to be his donor but I had uterine fibroids that were causing severe anemia. I had surgery in December for the fibroids now we're awaiting a date to return to UAB for the actual transplant. We are both a little nervous. My son worries all the time that he is going to die. I am looking for anyone that has had a child that had a transplant and could talk to him via mail or by phone to help ease his worries and mine. |
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| Ad 316 |
| Posted on January 25, 2007 |
| I have a 13 year old son with hypoplastic kidneys that we just found out about in January of 2005. My son is now awaiting his kidney transplant. I went to UAB and had the donor work-up I tested positive as a match to be his donor but I had uterine fibroids that were causing severe anemia. I had surgery in December for the fibroids now we're awaiting a date to return to UAB for the actual transplant. We are both a little nervous. My son worries all the time that he is going to die. I am looking for anyone that has had a child that had a transplant and could talk to him via mail or by phone to help ease his worries and mine. |
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| Ad 315 |
| Posted on January 16, 2007 |
| I recently lost my son, he was 21 years old. He passed away November 10th last year. He passed out at Walmart while I was cashing my check in the store. When the ambulance came he told me right away there was something wrong with his head, he had lost all his body fluids. He had immediate surgery but had to many fluids on his brain. Afer the surgery they told me his brain was not responding and he wasn't going to make it. I have a daughter and two grandchildren. They live about 400 miles from me. I have family here and they are very helpful but don't truly know what I am going through. I would like to talk with someone that can help me get through the tough times. |
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| Ad 314 |
| Posted on January 12, 2007 |
| hello. my husband died of a massive corornary on oct 26 2006. i donated all that i could. i know that both corneas were donated and would like to hear from either the ones looking thru his beautiful brown eyes or any one else that might be able to relate or that might just want to talk. it hasnt even been three months and i am not coping very well.i need help bad. please anybody.... |
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| Ad 313 |
| Posted on January 8, 2007 |
| I'm 23 and 7 months ago gave a kidney to a stranger. If any of you have ANY questions about living donation and the whole process...please ask me. |
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| Ad 312 |
| Posted on January 3, 2007 |
| I am fifteen year old girl and I had a really strange condition in my foot (kinda like a flat foot but it was damaging my knee and hip and I walked with a severe limp) and the fifth doctor we saw said that he had never seen anyone walk as poorly as I did. So after a few tests I had foot surgery in which I recieved two bone grafts from a donor, which reshaped my foot and hopefully will help how I walk. Talking with an Air Force recruiter he said that there was no way I could pass a physical the way I walked, but now if everything goes right, I can fulfill my dream of being a C-5 pilot. I was just wondering if there is anyway that I could contact the donor's family to thank them. |
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| Ad 311 |
| Posted on January 3, 2007 |
| My six year old son will need a second transplant. He has BK and EBV right now and I am wondering if any other transplant recp. have rec'd a second kidney transplant after contracting the BK virus or EBV. He was 14 months old and rec'd his grandmother's kidney. I was a match the first time but was told that I may not be a match this time. He can not do PD at home so now we will drive 1 1/2 hours to the Diaylis unit. I also have a 3 yr that is finding it diffcult. Diaylsis has not started yet but we were prepared for that after staying two weeks in the hospital for dehydration over Thanksgiving break. If any one can help please contact me. |
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| Ad 310 |
| Posted on November 30, 2006 |
| Hello! My 19 year old daughter wants to donate a kidney to her father and is in the beginning stages of being tested. I keep getting negative feedback from many people that I tell about this. I guess people think that it will be dangerous for my daughter and that it is to much to ask of her. Are we, as parents, doing a bad thing by considering her as a doner? My husband never had to ask her; she freely offered. Has anyone else experienced this reaction from friends and family? |
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| Ad 309 |
| Posted on November 17, 2006 |
| Hello. I am a mum age 48. My 12 year old son has chronic renal failure & is being worked up to a transplant. It is likely that I will be the live donor. I would very much welcome any contact from anyone in same or similar position, especially in terms of those who are self employed in a physically demanding job. This is my situation. I am also a single mum and would also like information from anyone about what to get set up by friends & family for the aftercare of bothj myself & my son after the procedure. Many thanks. Bernadette |
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| Ad 308 |
| Posted on November 3, 2006 |
| I have just found out that I match a friend that is in need of a kidney. I am really not worried about having the surgery because they are so up to date on this type of surgery. What I am worried about is the financing. My husband and I live from paycheck to paycheck, we have two boy's that are in College. I just would like to speak to someone that may have been maybe in the same situation that we are in. I really want to help my friend. |
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| Ad 307 |
| Posted on November 3, 2006 |
| I am in the beginning process of being tested for my dad who is 63. He needs a kidney.. I am alittle scared... Anyone with common interest? |
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| Ad 306 |
| Posted on November 3, 2006 |
| Hi everyone. I am 25 years old and have been married to my husband for almost 2 years now. I knew that he was in need of a transplant before we even began dating and now I am in the process of trying to find out if I may be able to give him one of mine. He has been on dialysis for 9 years now and we have been unable to have children due to his health problems (the dialysis has made him infertile). I was wondering if anyone knows of any men who have been able to father a child only after receiving a transplant? I would also be interested in talking with anyone who has or will donate to a spouse. Thank you! |
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| Ad 305 |
| Posted on October 19, 2006 |
| my husband is cared with dialysis for over a year. i have 2 questions that nobody including the doctors could answer them till today .. i hope you can help us ! 1) my husband is suffuring during the dialysis from massive headaches. he suffers every day till he goes to sleep. he feels light headed. why does it happen & how can we avoid it from happening ? 2)during the dialysis, his blood presure drops immidietly & he faints.why does it happen & how can we avoid it from happening ? you are our last hope because he is suffering , i will thank you very much for answering us, even if you can tell us to who we can talk to .. |
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| Ad 304 |
| Posted on October 19, 2006 |
| I am in the beginning stages of a possible kidney transplant to my mom. I would like to hear from others who have gone through the same or getting ready to! I look forward to talking with you. God Bless! |
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| Ad 303 |
| Posted on October 19, 2006 |
| Hi. My sister had a liver transplant over 10 years ago. I am so thankful that she is alive. I have gotten to know her better and her children have got their mom. I would like to talk to other people who have family members or member who have had a transplant too. Thank you |
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| Ad 302 |
| Posted on September 26, 2006 |
| My friend has just told me that he has kidney failure. Doctors told him that he can not go on list for a kidney because of his weight size. He is overweight. I am having difficutly understanding why doctors would deny him to go on the list while he waits for a kidney and lose weight??? He reports that kidney is at a 12? Which I guess is extremely low PLease respond, thank you |
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| Ad 301 |
| Posted on September 25, 2006 |
| Hello, I am a type 1 diabetic, with stage four renal failure. My GFR is about 10%. I was listed for a Kidney/Pancreas Transplant on 6/28/06. Last week I had to have a CAPD catheter placed in my abdomen. I will start training for the dialysis on 10/2/06. With CAPD you do the exchanges yourself at home. I would love to hear from someone that is either going through what I am or someone that has already gone through this step and has had their transplant already. Looking forward to hearing from you. |
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| Ad 300 |
| Posted on September 13, 2006 |
| HI MY SISTER IS DONATING 1 OF HER KIDNEYS TO MY MUM, BUT I AM VERY WORRIED ABOUT IT. I DO HOPE THEY RECOVER SOON. I WOULD LIKE TO SPEAK OR EMAIL ANYONE IN SIMILAR CIRCUMSTANCES. |
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| Ad 299 |
| Posted on September 5, 2006 |
| My father has reenal failure and is 59 years of age.He is like a god to me and I wish to donate one of my kidneys to him. I will please like to know from previous doners what to expect from my health point of view. I am 29 years old and I work in the heavy industry invironment. Will I be able to continue my work and play sports. |
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| Ad 298 |
| Posted on August 30, 2006 |
| Hello, I am 41 years old and have been approved to donate my kidney to my sister-in-law she is not related to me by blood but we were a perfect match. I felt God led us through this process and expected to have the surgery in June 06. However, that did not happen and now I am feeling scared. We will try for December 06 now. Can anyone who has donated a kidney tell me what to expect afterwards? Will I gain weight? A doctor told me I would need to get a list of what I should and should not eat or take as medication after the surgery. I would like to know the real facts about donating a kidney, the surgery and what it will do to me. I am not trying to sound selfish I would just like to know true facts. I would love to hear from you. |
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| Ad 297 |
| Posted on August 23, 2006 |
| my son has liver damage he is 31 he might need a transplant i want to see if i can use some of mine |
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| Ad 296 |
| Posted on August 14, 2006 |
| My brother is needing a kidney. He just lost a kidney that my sister gave him about 7 years ago. My other sister and I are the living doners for him. We talked tonight and we are both in agreement that we want, and will, give my brother a kidney, but we would like to wait until he REALLY needs it. He is 48 yrs. old. He is doing ok for now. It seems that our kidney is only going to last for just a few years, like my sisters. I want him to get the most out of it. I have not talked to him yet. Is this surgery harder on males then females? What kind of recovery time are we looking at.Thanks for any replys. |
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| Ad 293 |
| Posted on July 28, 2006 |
| I'm a 66yr.old woman that has just been told by my local doctor that my health is probably good enough to donate a kidney to my 42yr.old daughter. she has 13% use of one kidney and is soon to be prepared for dialysis. she is very ill, with other problems, including being unable to keep food down, she just spent 5 days in hosp. being rehydrated. What exactually do I do now? What can I expect surgically-recovery-is there coverage financially? I'm on Medicare. |
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| Ad 289 |
| Posted on June 28, 2006 |
| I donated a kidney to my sister not even a year ago and i cant tell you how happy i feel of what i did, there is not regrets what so ever. You can call me or email me anytime and ask questions and i will be happy to answer all the questions of the world of my experience. |
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| Ad 288 |
| Posted on June 15, 2006 |
| My mother had a bi-lateral lung transplant on April 21, 2006. She is doing very well with the lungs. However, we were recently told that she is in the early stages of kidney failure due to one of the rejection drugs Prograf. We knew this could happen but, according to her doctors it usually occurs after about 3 years. I would like to know if anyone else has been through this and how are you coping? |
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| Ad 287 |
| Posted on June 12, 2006 |
| I am a 27 year old Dialysis Technician who is going to get tissue typed on 6/13 to give one of my patients a kidney. This is something that I want to do, I am not being financially compensated for it, I was not asked by this man to do it, and I firmly believe that this is what I should be doing...but I am afarid of what my co-workers, family, and friends are going to say. I told my mom and she says that I need to go to the laywers and get all this paperwork done and protection from being fired or sued and I don't see why if I am giving the gift of life that I need to be going to a laywer. I need some advice...from a live donor, a live donor recipient, anyone who may shed some insight on this for me. Thank you! |
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| Ad 286 |
| Posted on June 12, 2006 |
| Hi my name is Windy I am from newjersey my husband went in to end stage renal on april 27,2006 an started his first treatment that day.Well all I know is Iwas not prepared or my husband he just recieved a call from his doctor when he was at work an said his potasseum was high an go to the hospital.my husband is 36.I never knew your life can change in a matter of seconds.do we have any new dialysis patients out there. |
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| Ad 285 |
| Posted on May 30, 2006 |
| HI. MY NAME IS TARA AND I AM THE MOTHER OF A 5-YEAR-OLD GIRL NAMED ERYN. ERYN GOT NEPHROTIC SYNDROME AT THE AGE OF 15 MONTHS AFTER A MMR VACCINATION. RIGHT BEFORE SHE TURNED 3, SHE WENT INTO RENAL FAILURE AND WENT ONTO PERITONEAL DIALYSIS. THIS PAST WEEK (MAY 2006), SHE WAS TAKEN TO THE HOSPITAL AND PUT ON HEMODIALYSIS. WE WILL NOW HAVE TO DRIVE AN HOUR TO GET TO THE KIDNEY CENTER FOR DIALYSIS... NOT THE WAY I WANTED TO SPEND MY SUMMER! I WOULD LIKE TO TALK TO SOME OTHER PARENTS OF ESRD KIDS. IT IS HARD TO BE A MOTHER, WIFE, DAUGHTER, COLLEGE STUDENT AND CAREGIVER ALL AT THE SAME TIME. WE ARE IN FLORIDA, ALONG THE EAST COAST. WE ARE STILL WAITING TO GO TO THE TRANSPLANT COORDINATOR SO THAT SHE CAN GET TISSUE TYPED. SHE IS TYPE O+ BLOOD. ANYONE WHO HAS BEEN THROUGH THIS, I WOULD APPRECIATE THE CONTACT! |
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| Ad 282 |
| Posted on April 25, 2006 |
| I have worked at a local coffee shop for about four years now and have become familiar with some of the regulars.. I've been told that one is in desparate need of a kidney and is not expected to live much longer if he doesnt find one. I have just found out that we are a match. I dont even know this mans last name. Is it strange for me to want to give a organ to somebody I hardly know?..I've been reading some of these adds and mostly everybody donates to someone whose very close to them...I would really like some feed back to help me with my decision. |
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| Ad 281 |
| Posted on April 17, 2006 |
| Hello,My mom needs a liver,Can anyone tell me if I can give her half of my liver? I'm pretty sure we have the same blood type.She is in the liver failure stage and we need to act fast.If you or anyone know anything on the subject please email me ASAP.Thanks so much. |
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| Ad 280 |
| Posted on April 10, 2006 |
| My husband is in need of a Type O kidney. He is 32 & has lived all of his life with just one kidney. We have found that now that kidney if failing. Yesterday we found that as of right now he has 19.5 function of this kidney & we are now going to be entered on the UNOS list? All of our family & friends have been very supportive, but none of them are eligable for giving him a kidney? I am obviously worried, but would like to get as much information as possible to help my husband. I was hoping that someone out there could help me to get the process started? I am just in the dark. Thank you. |
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| Ad 279 |
| Posted on April 10, 2006 |
| my uncle is 40 and needs a liver i want to donate how and wht do i do |
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| Ad 278 |
| Posted on April 4, 2006 |
| Hi, I am considering donating part of my liver to my girlfriend's husband. She herself wants to donate to her husband but I don't think she will be able to because she has health issues herself. She won't listen to me when I tell her I am willing to donate. I know she's worried about me. I would love to hear from anyone who has been a donar that would share their experience with me. |
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| Ad 276 |
| Posted on March 24, 2006 |
| Hello... I don't know where to start. I had no idea how serious this is. My brother, just wrote me a letter telling me that he needed a liver in order to stay alive. He is given untill the end of this year to live.[2006] We are not blood relatives, his mother married my father. He lives in California, I live in Oregon. He is in his 40's. He wrote to his mother asking her for her help 10 years ago and she said it was too hard to do anything about it. I don't understand her reasoning. So, he is pleading me to help him. I'm doing what I can, looking on the internet, writing to people, asking for help or suggestions or ?? I don't know ANYTHING on this subject but I do want to help my brother. Thank you and God bless. |
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| Ad 275 |
| Posted on March 24, 2006 |
| I am beginning the testing process to donate a kidney to a friend. I would love to speak with someone who has donated to a non-family member. I know that speaking with someone who has been there will help with any nervousness I might have!! |
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| Ad 274 |
| Posted on March 24, 2006 |
| I would like to hear from someone who has donated to a spouse. I am 25 and although deemed a suitable match for my husband, one transplant facilty ultimately cancelled the surgery as the renal scan revealed the larger of my kidneys had a double artery. Now another center is reconsidering the case, using the other larger kidney. I would like some input from people who have already donated, either to a spouse or using the non traditional larger kidney |
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| Ad 273 |
| Posted on March 24, 2006 |
| Had a kidney tranplant and had a baby after.From Newfoundland{Canada}. |
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| Ad 272 |
| Posted on March 24, 2006 |
| Hi, I have a kidney that isn't working and I have to have it removed. I will still have one that is in good working order, but I am concerned and have questions about the recovery time, after having a kidney removed. How long will the hospital stay be and how long does it ususally take at home, before you can return to work? Thank You. |
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| Ad 271 |
| Posted on March 7, 2006 |
| Hi, I am going to donate my kidney to my Dad on 3/17/06 and I am soooo nervous. I know this is something I must do but my fears are taking over. I have never had surgery before and I'm afraid for my 4 year old that something may go wrong. Can someone that has gone through this recently help calm my anxiety? |
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| Ad 270 |
| Posted on March 2, 2006 |
| I donated one of my kidneys to my nephew on april 10th 1997. I would love to talk with anyone who has or is thinking of donating to someone. If you have questions or just want to chat about anything. |
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| Ad 269 |
| Posted on March 2, 2006 |
| I am 27 years young as of last week and am donating part of my liver to my dad. The questions I have right now are pretty basic. Please contact me if you have donated part of your liver.
Thank you and wish us luck! |
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| Ad 268 |
| Posted on February 27, 2006 |
| My husband just donated a kidney last Friday, Feb. 17,2006 to his best friend if you have any question please feel free to ask. |
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| Ad 267 |
| Posted on February 21, 2006 |
| Hi, I donated a kidney to my father almost four years ago now, my life has changed 100%since then, I feel better now than I ever have because once you go through something like that your perspective on life changes. My father is doing great, no rejection of any sort to this day. If anyone needs to ask me a question or just needs to vent out their fears please don't hesitate to ask. Yes it's a scary thing, but it is so worth it in the end. Before the surgery I had never ever been in the hospital, I had never even broken a bone. If I can do it anyone can! |
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| Ad 265 |
| Posted on January 23, 2006 |
| My son is twelve years old and was recently diagnosed with chronic kidney disease. He only has 20% kidney function and will need a kidney transplant in the very near future. This is all new to the both of us considering that he has never been sick before until now. My son and I both are looking for pen pals to discuss concerns and feelings with. I would like for him to have someone he can write to possibly keep some of this off his mind. He is a wonderful child with a kind heart. |
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| Ad 264 |
| Posted on January 10, 2006 |
| I have recently found out that my dad (who does not live near me) has the great need for a liver. He will make it for a year or so without it. I am willing to give part of my liver to him and hopefully in time. I am scared and have no clue as to how to get started with the process. Can someone help awnser my questions? |
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| Ad 263 |
| Posted on January 10, 2006 |
| I have just begun testing so that I can donate my kidney to my best friends husband. It, for me seems like the natural thing to do. Yea it's a little scary but, you know the way I look at it is that I will be giving life and hopefully alot more years to these great friends of mine. The surgery is hopefully going to be within the next 2 months. I would like to hear from people who have donated a non-related kidney and what the outcome is. God Bless to all who give this gift of life. |
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| Ad 262 |
| Posted on January 10, 2006 |
| My dad needs a kidney transplant and I am going to be tested to see if I am a match. I have a 2 year old daughter and my husband does not agree with my decision, but will honor it. I know I am elgible for FMLA but am not sure about disability thru my employer. Honestly, it scares me to death to think about surgery. But I want to help my dad. Just want someone to communicate with who understands. |
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| Ad 255 |
| Posted on October 19, 2005 |
| Hi my mom has Chronic Kydney Disease and I want to know the possibiltys if I can donate my kydney to her. |
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| Ad 254 |
| Posted on October 13, 2005 |
| I donated a kidney to my brother almost 2 years ago. I would be glad to answer any questions that you might have concerning the testing, surgery and what it is like a couple of years later. |
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| Ad 253 |
| Posted on September 21, 2005 |
| My Dad has suffered with kidney failure for a while now. My mum is going to be the kidney donar, which me and my sister are very scared about. the transplant could be next year. It will be very hard for me and my sister to cope even though we have a big supportive family. We are both in our early twenties. Has anyone been through a similar experience. We are also a bit scared of the kidney rejecting and stuff after the surgery. |
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| Ad 252 |
| Posted on September 21, 2005 |
| Hi. My name is Katie. On June 2nd, 2004, I became a live organ donor when I donated the right lobe of my liver to my mom in need of a transplant. It was truly the best day of my life! Knowing that we both gave each other the "Gift of Life" is the most amazing feeling! The transplant team at the hospital is like family to us. We keep in touch on a regular basis! I love them!!
I was 19 years old when I became a live donor. I am now 20 years old. I would love a penpal - maybe someone around my age who is a live organ donor as well. I would also love to share my experience with anyone who is going through this process now and who has questions or advice.
God Bless you all and remember - Donate the Gift of Life!! |
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| Ad 251 |
| Posted on August 23, 2005 |
| I'm a 33 year old male who had a transplant. One of my major concerns is developing B.K. virus(polyoma virus). Can anyone tell me what percentage of the transplant recipients will develop this virus and lost there kidneys? Does this virus affect certain recipients and not others? Are there any blood tests available that can be done to find out if the transplant recipient has B.K. virus? |
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| Ad 251 |
| Posted on September 21, 2005 |
| Hi my name is Tim I'm 20 years old and I had a kidney transplant back in 1993. I was wondering if any one could tell me if kidney disease can affect me by having children and if it will cause my sperm count to be to low. I have some doctors right now that don't know anything about my situtation just know i have kidney disease and they are swearing it should be impossible for me to get my fiance pregnant. |
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| Ad 250 |
| Posted on August 23, 2005 |
| Story: I am getting ready for a kidney transplant for my husband..I have had to loose 40 pounds and go through alot of testing i am really nervous about the sergury and just want to see if i can hear form others to ease my worries. We are scheduled to go through the sergury 9-20-05 |
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| Ad 249 |
| Posted on August 15, 2005 |
| I am 42 years old female and donated part of liver to my cousin's daughter who is 6 years old, the surgery date was April 25, 2005 in Edmonton, Alberta There was alot of test that I went threw in February and March 2005. On March 23nd we found out that I was a perfect match. The recovery is going well, I was in the hospital for 10 days and then in the outpatient area for 1 week after. My incision was infected twice but antibotics cleared it up. I would encourage everyone to be a living donor, it is wonderful to give the gift of life. |
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| Ad 248 |
| Posted on July 27, 2005 |
| m a proud mom of a little boy who also have downs syndrome and Im thinking of donate my kidney to my son so he can live a happy life |
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| Ad 246 |
| Posted on July 14, 2005 |
| My 47 year-old sister needs a kidney transplant and I've offered to be a donor. We're just at the beginning of the process, but already I found out I have to take meds (INH) for six months for a latent tb infection before I can be considered. Her team is in Miami and I live in the SF Bay Area. I'm looking for someone who's been a donor, preferably someone who had surgery at Jackson Memorial (her hospital) and even better, someone who had to take these drugs first. |
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| Ad 245 |
| Posted on July 13, 2005 |
| My daughter has offered part of her liver to me. I am not taking any med's right now except for lactulose,as I had tips placed April 13th 2005---I have had 3 bleeds)...my question is...my hair is starting to fall out. I am taking a good multi vit...but my hair is falling out all over my clothes, hanging on my arms.
I just had my eval at the Lahey Clinic to see if I am a good canidate for a live liver donor. My thinking is a bit fuzzy right now ..as is my typing. Any tips or advice about my hair?? |
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| Ad 244 |
| Posted on July 11, 2005 |
| I am a fifty four year old grandma who gave my beautiful grand daughter a kidney one week ago.She is only two years old and still in in ICU but getting better every day.The joy this has given me out weights the pain and any discomfter I have felt. I have decided to become a doner so when the Lord calls me home someone can still have life. We all need to have love for our fellow man and what a gift to know someone will live on with this gift. Please keep us in your prayers and I will you also. |
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| Ad 243 |
| Posted on July 8, 2005 |
| February 9, 2005 I was blessed by the fact I was able to donate a kidney to my husband. I am 55 years old and my husband is 58. The expierence of being able to have him back to normal out weighs any pain I endured. We have always felt we were sole mates and this procedure has made us sure of it now. My husbands kidneys failed in June of 2004. If you have an opportunity to donate please do. |
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| Ad 242 |
| Posted on July 5, 2005 |
| I am asking for some advice,I have been married for 2 years and found out recently that my 22 yr old husband has been diagnosed with end stage renal disease. He only has 20% total function, and luckily has not gone on dialysis,the good news is MUSC transplant center has preferenced me his wife as his living donor, this is a true blessing, however I am worried because I just found out that I might be pregnant. I of course would be happy if we were going to be having a baby but I still want to be able to donate to him. If anyone has any advice I would really appreciate it. also in response to some other ads you can still have a baby after donation, just to answer some questions. |
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| Ad 241 |
| Posted on June 29, 2005 |
| I am considering donating a kidney to my cousin. I am very willing to go through it, but I am very concerned about the recovery. My husband's job provides no personal days and I have 2 girls (4 and 8) to take care of. Both my mom and mother-in-law will be nearby to help, but I want to be able to get back into things. I am hoping I can bear the pain, but I would like more details than 4-6 weeks recovery. Thanks for any help and God Bless!!! |
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| Ad 240 |
| Posted on June 23, 2005 |
| I'd love to correspond with anyone in my perdicament...I was diagnosed in Jan with chronic kidney failure....I currently am working with 25%kidney function and all has been stable. Well anyways...I goofed with my birth control and now I found out I'm pregnant. My GYN scared my some...she began to talk to me anout "Steel Magnolias":( and stuff. My nephrologist on the other habd was more positive and told me overall I should be happy! She told me with a lot of supervision this can definitely be possible. I am confused and so so so scared right now. I'd appreciate if anyone can share similar stories...how was the pregnancy? Birth? The baby? Preeclampsia? Any help/support/stories would be so appreciated. I want this to work so so so bad especially because I KNOW this will be my last baby! Thank you in advance and God bless! |
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| Ad 239 |
| Posted on June 23, 2005 |
| My father is suffering with kidney failure. I have never seen a man more determined to beat this, even though he knows it is unbeatable. He has watched his diet, writing down every gram of protein that he eats. What a trouper. His last results came back and they are just climbing. I am hoping to be a match for Dad, so that he doesn't have to go through dialysis. I have been on many websites and read a lot of personal stories, it all seems to be a successful operation. |
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| Ad 238 |
| Posted on June 21, 2005 |
| My Mom needs a liver transplant and I really want to be a live doner, so does my daughter. Can anyone tell me what all happens? I am trying to find out all I can!! I can't stand to see her suffer any more! God saved me from an accident 2 years ago and no one could belive I lived through it, maybe this is why he saved my life?? Please, any one who can give me some info I really would love it. God Bless. |
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| Ad 237 |
| Posted on June 6, 2005 |
| Hi, I'm 19 years old and I'm considering donating my kidney to my mother in law. I just need to know what the side effects are after the surgery. Is there a lot of pain afterwards? Are my chances higher for getting kidney disease? And most importantly does it lower my chances for getting pregnant? Any input would be greatly appreciated. |
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| Ad 236 |
| Posted on May 31, 2005 |
| My 19 year old daughter has been on dialysis for 19 months. No family member has been a match and even 2 friends who were willing were not suitable. So we keep searching. She is O positive and may have to wait 5 more years for a cadaver kidney. I am thinking of trying to list her in another state to increase her chances. Does anyone know if this is possible? Thanks. |
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| Ad 235 |
| Posted on May 31, 2005 |
| I am 21 and will be donating a kidney to my step-grandmother on June 29th. I was hoping to talk to someone close to my age who has been through this process and also someone who might know about foundations for financial aid for living donors. Thanks! |
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| Ad 234 |
| Posted on May 13, 2005 |
| hello i'm 36 yrs old and i have a 15 yrs old son that's having a kidney transplant next month and i'm the donor and i was just wanting to talk to someone who has giving a kidney to their child. which to me is the greatest gift of all. thanks |
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| Ad 233 |
| Posted on May 13, 2005 |
| My husband despertly needs a kidney transplant. My question is , is there any hope that I being A+ can donate a kidney to him, being 0+ |
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| Ad 231 |
| Posted on May 9, 2005 |
| My fiancee will be donating his kidney to his sister may 13th. I am very worried as I know nothing about this procedure and due to financial reasons I will not be traveling with him. I would just like to know what is involved during recovery. |
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| Ad 230 |
| Posted on May 6, 2005 |
| Hello, my name is Nathan and I am planning on becoming a non-directed kidney donor. I work with children, one of whom has Type 1 diabetes and I have been inspired by his courageous life to donate. I am seeking personal insight on the process of donating itself, but more specifically insight from people who have non-directly donated a kidney. Thanks in advance for your support and wisdom. |
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| Ad 229 |
| Posted on May 4, 2005 |
| was interesed in chatting with someone about after the transplant the pain and the discomfort, and what is expected time of possible recovery. Thank you in Advance |
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| Ad 228 |
| Posted on April 29, 2005 |
| HI MY NAME IS CHRISTINA SOME PEOPLE CALL ME CHRISSY. I JUST WANT TO SAY MY HEART GOES OUT TO EVERYONE. |
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| Ad 227 |
| Posted on April 28, 2005 |
| Hi, my name is Paula and I plan to be a living kidney donor for my 14 year old daughter who was just diagnosed with chronic renal failure. I would like to talk to any parents that might be or have gone through this. Its only been a month since we learned that she had anything wrong with her kidneys and her doctor is already talking about transplantion. I would really like to talk to someone that can really understand what my family is going through right now. |
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| Ad 226 |
| Posted on April 26, 2005 |
| Hi my name is Erica and I am 22 years old. I was diagnosed with kidney failure 1 year ago and will eventually need a transplant. I am very scared being that my mom died when I was 18 due to kidney disease. I would just like to talk to someone who knows about these type of things or just for support. |
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| Ad 225 |
| Posted on April 22, 2005 |
| Hi! My name is Joanne and I am 32 years old.On February 9th 2005,I donated My kidney to my wonderful brother.We are both doing great.I guess I didn"t realize how much it was going to change his life.He looks so much better and has lots of new energy.People consider me a hero,I feel lucky I still have my brother.After the operation I thought I was going to die,but it is all worth it and I wouldn"t change it for the world.I would love to share my story to anyone that would listen or has a similiar story. |
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| Ad 224 |
| Posted on April 13, 2005 |
| I just found out my 17 year old sister has kidney failure,and will need a transplant. I am about to be 30 and have three daughters;9,7,& 2 yrs. old. My sister has dreams of becoming a mom oneday herself. I am wondering if its possible to have a baby with one kidney. We have a total of nine siblings in our family and all of us are ready and willing to give her our kidney. I am wondering whats all involved in a transplant.How long is recovery for the donar?How do you qualify?Or know if you match up?Do you have the same blood type?Sex?Age?Does it matter? I have so many questions,and would appreciate ANY feed back on this matter. Two weeks ago her kidney was not a problem-that we knew of.It's all a shock,and I want any info that you may feel is helpful in this matter. The sooner I understand the sooner she gets well! Thank You. |
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| Ad 221 |
| Posted on March 21, 2005 |
| I donated a kidney to someone I did not know at the time.I met him three months into testing.His wife was a friend of mine from 12 yrs ago.I only seen her whenever I went to the doctors office.One time I went she told me she got married and told me his story about how sick he was and that he was on dialysis for,four years and that he needed a kidney transplant.She said he had a small family and no one matched and he didn't want her to do it cause he would need her to take care of him.I asked her his blood type and it was the same as mine so I offord.after alot of testing I was a perfect match.the surgery went great for the both of us we are both doing great.He of course is doing better than me cause there was nothing wrong with me but he was very sick so he feels like a new person and I feel the same.If you would like any advice or just want someone to listen I'll be here. |
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| Ad 219 |
| Posted on March 14, 2005 |
| I am a 30 year who got a living donor kidney transplant from my sister in 1991. It has been almost 14 years and I am the bill of health. I just wanted to find other people who have had transplants due to a fluke illness or problem other than disease. My own kidneys had failed due to a urinary tract infection and was wondering how many there are out there. I am a normal and active person and even work in a hospital and am plannig to become a nurse. |
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| Ad 218 |
| Posted on March 3, 2005 |
| My father will be 70 in August'05. He thinks he is too old to receive a kidney from me (I am 47). The other choices are dialysis or death. He does not want to go on dyalisis. He is talking about chelation therapy. Has anyone out there in there seventies received a successful kidney transplant. Also, how long will dyalisis without a kidney transplant prolong life and what kind of quality of life does one have at that age? I am seeking answers. Please want you help. God bless you |
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| Ad 216 |
| Posted on February 15, 2005 |
| Hi! My name is Teri and I am a 24 year old female who was just released from the hospital following a successful kidney transplant. I would love to talk to someone my age who has undergone the same experience and possibly answer some questions. I would also be interested in talking to someone who has had a successful transplant and gone on to become pregnant and have a successful pregnancy, since that is one of my biggest concerns. I would love to hear from anyone just to share experiences. Thanks! |
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| Ad 215 |
| Posted on February 10, 2005 |
| Hi my name is Eric and I was a liver donar for my stepfather. As a matter of fact I was the first one to have this type of surgery at Rush Presbiterian in Chicago. If anyone has any questions regarding the surgery or what it is like to be part of this surgery please feel free to email me. |
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| Ad 214 |
| Posted on February 9, 2005 |
| My son,Hunter,was diagnosed with FSGS recently. He is turning 3 on March,11 2005. He has proven resistant to the prednisone. He goes for his next appointment in March. The doctor says chemotherapy is the next step. Any advice or comments as to the treatment for this disease would be greatly appreciated. |
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| Ad 213 |
| Posted on February 8, 2005 |
| Hi, my name is Cheryl. My husband needs a liver transplant . He has been listed for transplant for 1 year. He is in the hospital now and I am told a living donar is the only hope. Anyone willing to donate so far was not exceptable to the transplant center due to age, weight and height. My husband is 6 feet tall so they said the donar needs to be tall also or the liver will not be big enough to take a section. My husband contracted hep-c through a blood transfusion many years ago to save his life and now it is killing him. His chest is filled with fluid so they put a chest tube in to drain it but now they are at a loss of what to do. If they pull it he can't breathe. He is so sick. His weight now is at 125. Not much for being 6 ft tall. My daughter is losing her father and there is nothing I can do about it. Please PRAY for Harry. |
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| Ad 211 |
| Posted on February 2, 2005 |
| Hi! My name is Midge and am a liver donor. In June 2004 I donated part of my liver to my brother-in-law. We are not blood related. He is doing great! If anyone has any questions or just wants to talk about donation or any aspect of it, just respond to my ad. |
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| Ad 210 |
| Posted on January 31, 2005 |
| I AM A 69 YEAR OLD WOMAN WHO HAS POLYCYSTIA KIDNEY DISEASE.(PKD). FOUND OUT I HAD THIS IN MY MIDDLE 20'S. MY KIDNEY'S FAILED 4 YEARS AGO AND HAVE BEEN ON DIALYSIS AND ON THE TRANSPLANT LIST FOR 4 YEARS. HAD BOTH KIDNEY'S REMOVED 2 YEARS AGO. ALL OF OF FAMILY HAS BEEN TESTED BUT FOULD OUT ALL HAVE PKD ALSO. I AM BLOOD TYPE O. WANT TO KNOW IF OTHERS HAVE THE SAME PROBLEM AS I AND HOW LONE THEY WERE ON WAITING LIST BEFORE THEY REC'D A TRANSPLANT |
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| Ad 209 |
| Posted on January 21, 2005 |
| I just found out that my mom needs a kidney transplant, i am going to go through with it, but i'm kind of scared as to what it will limit me to do.any advice is greatly appreciated. |
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| Ad 208 |
| Posted on January 20, 2005 |
| I recently found out my brother has bilateral renal failure now almost at end stage. I am 35 years old with four children living in Israel. My strongest concerns are related to long and short term medical concerns for myself and how this will effect my ability to return to working and living. Could someone give me there experience of recovery process both from long and short term views. Also, what help from the government or other sources is available for donors to cover expenses? Thank you. |
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| Ad 207 |
| Posted on January 20, 2005 |
| I JUST RECENTLY DONATED TO SOMEONE THAT I WAS NOT RELATED TO. ME AND THE MAN THAT RECIEVED MY KIDNEY IS DOING GREAT. OUR SURGERY WAS ON JANUARY 6, 2005. OUR PROCESS STARTED LAST SUMMER. HE TOLD ME THAT THREE OUT OF SIX ANTIGENS MATCHED UP. HE SAID THAT WAS ALMOST LIKE BEING RELATED TO EACH OTHER. I'M GLAD THAT I DID THIS. KNOWING THAT WHAT I DID ACTUALLY SAVED SOMEONE'S LIFE IS AN AWESOME FEELING. I ENCOURAGE ANYONE TO DO IT. |
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| Ad 206 |
| Posted on January 10, 2005 |
| I am a 41 year old female. I just donated a kidney to my 50year old sister on Dec 7, 2004. I am looking for advice on how to safely return to my previous physical activities. I honestly don't know what to expect. Our transplant was done oversea, so we did not receive specific instruction. Any advice? |
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| Ad 205 |
| Posted on December 20, 2005 |
| My father has been diagnosed with liver cancer six months ago, and had gone through various treatment since then, but with little effect. Now his doctor suggested that having a liver transplant is the only option left to save his life. Being the only person in the family as the possible donor, I'm eager to learn from anyone who has gone through the same process. I'm the only child in the family, so both of my parents are concerned about the risks involved and long term implications subsequent to the operation. Appreciate any advice! |
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| Ad 204 |
| Posted on December 15, 2004 |
| I am a 44 year old living female non-related kidney donor. My recipient male partner died on October 5, 2004. We underwent surgery together 18 years ago at the University of Wisconin-Madison transplant center. We had an incredibly healthy 14 years together as the last 4 years, he struggled with renal failure, heart disease, dialysis, strokes, amputations, and diabetes. He returned to the care of his parents and I continued my education. His friendship, love, and support was an incredible gift and I cherish the relationship we shared. I would be happy to try to answer any questions regarding a kidney donation as I am a living non-related donor. |
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| Ad 203 |
| Posted on December 3, 2004 |
| HI, I'm new at this. My name is Lynne.My fiance is in need of a kidney.We will soon be married. I have 2 children from a previous marriage ages 6(girl)& 4(boy).He has been my childrens father figure for 2years now. He is 25years old and have been on the transplant list for approx.3years.I wish I could donate to him but we don't match. If aneone could give me some advice or tell me what I should do Or what is expected of me I will greatly appricate it. GOD BLESS YOU ALL and THANK YOU |
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| Ad 202 |
| Posted on November 29, 2004 |
| I am considering donating a kidney via stranger to stranger donation. I would like to know if any of you have done this, and what steps you took to start the process. Any information you can provide will be appreciated. |
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| Ad 201 |
| Posted on November 29, 2004 |
| HELLO MY NAME IS MELINDA I AM 42 YEARS OLD AND I HAVE END-STAGE RENAL FAILURE FOR ABOUT 10 YEARS NOW I HAVE THE THING IN MY ARM TO GO ON THE MACHINE BUT HAVE NOT WENT ON IT YET THANK THE LORD YOU KNOW I WOULD LIKE TO HAVE A PEN PAL TO TALK TO SO IF THERE ANYONE OUT THERE PLEASE WRITE ME I LOVE TO HERE FROM YOU . |
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| Ad 200 |
| Posted on October 27, 2004 |
| Hi I am going to donate akidney to my dad and I fell very nervous. I want to give him the gift to live very healthy. I love him very much and hope everything turns out fine. I am so nervous because I want to also live healthy. I want to have a family and be their for my kids. |
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| Ad 199 |
| Posted on October 27, 2004 |
| Hi! My name is Lisa and I am 34-years old. I am speaking with a gentleman concerning being his living donor. He needs a kidney and if I am a match I am going to give him one. He was a stranger, but we've been talking and have a lot in common professionally. I was just wondering if anyone would like to give me a little input. I am experiencing a lot of negative reactions with family and friends, but my immediate family is supportive. I would just like to talk with someone who has been through this. |
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| Ad 198 |
| Posted on October 21, 2004 |
| Hello, I am wondering if I want to donate my kidney to my mom. DO we have (me or my mom) to pay anything for the surgery in the hospital. |
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| Ad 197 |
| Posted on October 20, 2004 |
| Hi, I am 30 year old female from Malaysia. You can call me Lisa. To shorten the story. My mom is a cancer patient and she need to undergo the Bone Marow Transplant. I wish to know whether is this the best solution for her? And can we donate to our mom? I am preety scared. I need some of you guys opinion. Please email to me soon. She haven't do it. But, soon. Still in discussion. Thanks and please pray that God gives her the strenght to go through. God Bless You. Lisa |
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| Ad 196 |
| Posted on October 20, 2004 |
| I recently read an article in PEOPLE Magazine about living donors and became very interested in donating one of my kidneys. I am fairly young (20) and have no one specific to donate too. However I know there are year long waiting lists and many people who need transplants. This website has been very informative but I'd like to hear from someone who has been in my postion before, interested in donating. |
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| Ad 195 |
| Posted on October 20, 2004 |
| I am cosidering being a living kidney donor to someone I met when my mom was in the hospital. To my knowledge, I am healthy except for high cholesterol. Does anyone know if I would be turned down should we match? |
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| Ad 194 |
| Posted on September 30, 2004 |
| For those of you that is a Live Kideny Donor.. I have questions. What am i to expect after the surgery..
A Strict Diet? No Physical Activites? "I own 7 horses and I want to be able to ride them with my children and enjoy life.. Will I be restricted?" Will I have ongoing pain for the rest of my life? Anything Else? Please help.. I want to be mentally prepared for it. |
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| Ad 193 |
| Posted on September 30, 2004 |
| I am looking for anyone who suffers or has a family member that suffers from Iga Nephropathy. Lets Talk |
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| Ad 191 |
| Posted on September 13, 2004 |
| Helllo. Since I am new to this list, I am introducing myself. My name is Cindy and I am 40-something years old. I am a living kidney donor. Last year, I gave a kidney to my then 14-year-old daughter. She became ill with Henoch-Schonlein purpura when she was 13. Within less than a year, she had end-stage kidney disease and started dialysis. I would like to get to know other people who may have an experience like mine, or may wish to get feedback from a living donor; perhaps because they are thinking of donating. I am living proof that one can donate a kidney and lead a full, normal life. |
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| Ad 190 |
| Posted on August 27, 2004 |
| hi, i donated my kidney to my father 6 months ago.We are both doing very well,However i am having some problems in my own head dealing with it.I would not like to go into much detail here and possibly scare anyone else away from donating.I would appericate if anyone knew of a web-adress or an E-mail address where i could speak to someone who could understand. thanks |
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| Ad 188 |
| Posted on August 26, 2004 |
| hi...im doing a study about living organ donors for minors. i really need to know what laws govern organ donations in the US for children. since most of you here has been through this situation, if you have any input that would be greatly appreciated. thank you and goodluck to you all. |
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| Ad 186 |
| Posted on August 6, 2004 |
| MY MOM IS GOING TO BE NEEDING A KIDNEY SOON AND I TOLD HER I WOULD GIVE HER ONE OF MINE BUT SHE TOLD ME I WAS TO HEAVY AND THE DOCTORS WOULDNT DO IT, IM 6'-1" AND 290 LBS, IF ANYONE KNOWS WHY THIS WOULD BE A PROBLEM OR ANY OTHER PROBLEMS OF BEING A DONOR, PLEASE LET ME KNOW ...THANK YOU SO MUCH ! WAYNE |
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| Ad 185 |
| Posted on August 6, 2004 |
| Hello, my boyfriend just had a kidney transplant on April 29th of this year. I am looking for friends just to talk to and maybe get to now other patience |
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| Ad 184 |
| Posted on July 16, 2004 |
| My mother was recently diagnosed with kidney failure. We had not spoken in almost 7 years. Suddenly she calls me and tells me she has kidney failure and wants me to donate a kidney to her. I am so mixed up. I always had the mindset of being for organ donation, but figured that would happen after I died. I never even thought about donating while I was alive...That may sound awfully selfish, but the thought never really crossed my mind. I would greatly appreciate any help any of you could give me not only with the facts but also with the mental part of it I guess. The fear of the unknown I suppose you could say. Thanks very much. |
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| Ad 182 |
| Posted on July 6, 2004 |
| Hi everyone,im a 37 year old male living in Staffordshire England i have been a renal patient since i was 21, i have been through various forms of Dialysis and have recieved two succesfull transplants over the years ,i suppose i have been one of the lucky ones during this time and have been able to continue working full time but it aint all been plain sailing,i would love to her from anyone to either chat about there time living with renal failure or also to people who are considering to donate to there loved ones or there friends.Thanks for reading this and take care. |
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| Ad 181 |
| Posted on June 28, 2004 |
| Hi,I am a 18 girl who receive a kidney transplant on jan 2004 and till this day i have been looking for a place to chat with young people like me who have had a kidney transplant if there are any young people out there who would like to meet some one new i would love to chat with you,so hope i can talk to some one soon... |
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| Ad 179 |
| Posted on June 14, 2004 |
| I will be donating my kidney to my husband on July 13, 2004. He is currently on dialysis and for the most part in good spirits. He is only 33 and has always been a hard worker. He has been missing numerous amounts of days from work and is our family's sole provider. While he is very prideful and does not like to ask for assistance; I was wondering are there any additional programs outside of SSI that helps families in this type of need. We have a two small children of our own and two relatives that we have been raising for the past 4 years due to other circumstances. When we undergo surgery, we have to arrange for babysitting and camps not too mention easing their minds that mommy and daddy will be okay. If anyone has had a similiar circumstance please let me know. |
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| Ad 178 |
| Posted on June 8, 2004 |
| I'm a 21 year old living kidney donor. I donated a kidney to my grandfather in November 2003 and I have had more trouble then i ever expected. My grandfather is rejecting the kidney which is very hard to handle and I have had very bad depression since the surgery. I have never been depressed a day in my life so this is very hard for me. I would just like to talk to someone who has gone threw the same thing as me and could share some of their stories. My friends and family are great but no one really understands unless they have been threw the same thing. So anyone who would like to talk please write me I would really love to talk. |
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| Ad 177 |
| Posted on May 28, 2004 |
| Hello everyone, my name is Mario. I'd like to tell everyone whats my reason in posting this ad. Today my father called me and asked me for a favor. One of his co-workers has just recently came over to the states. and he brong along his 8 mnth old daughter. his daughter is suffering from liver failure, she had a previous surgery in Mexico that did not go as well as everyone thought. I, myself dont have all the facts about my fathers co-workers` situation. But i`d would want to know who can help me find the information i need, so this baby girl can real fulfilling life. so please do these people and myself a favor and give us any information that can help us. thank you |
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| Ad 176 |
| Posted on May 28, 2004 |
| Hi, I am a 32 year old female who will be donating a kidney to my 55 year old mother in June. I would like to talk to anyone who has donated through laproscopic surgery and started a family after. I would like to know how long after the surgery my husband and I could start to have children or if there were any complications with pregnancies. Thanks. |
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| Ad 175 |
| Posted on May 18, 2004 |
| My husband will be needing a liver transplant. He has 2 possible live donars in a sister and brother. The sister is most likely. I was wondering if anyone had given part of their liver to a family member? I understand both the donor and receivers livers grow to full size within days! It's fabulous! I was just wondering if the receiving person would still need anti rejection drugs if they received from a brother or sister? |
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| Ad 174 |
| Posted on May 11, 2004 |
| Hi, I am a 24 yr old with a 6mo old on dialysis. He was born with a valve blockage that eventually destroyed his kidneys by the time of his birth. I am hoping that I can be his donor for his transplant. I would appreciate talking to anyone who has been a donor and can give me some advice about what to expect and what to do to make sure I am in great shape for the transplant if considered. Thanks in Advance. |
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| Ad 170 |
| Posted on March 24, 2004 |
| I am a 35 year old mother of one that just (3/4/04) donated a kidney to my best friend. Next to the birth of my son, it was the best experience in my life. I would be happy to correspond with anyone considering the donation process. |
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| Ad 169 |
| Posted on March 18, 2004 |
| Lately I have been going through some things that I didn't expect to happen. My sister needs a heart transplant. The doctors say that she has an heart of an 95 year old man and she is having chest pains and I don't know what to do. My emotions are very mixed up and I would like to have some one help me through this. The waiting list is very long 2 to 3 years long and I don't think that she has that much time. |
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| Ad 168 |
| Posted on March 16, 2004 |
| I am a match for my best friend, and I have decided to donate. I am a 32-year-old attorney. I would like to talk to anyone who has donated to a friend, because I need advice about how to deal with friends and family members who are against my donating. |
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| Ad 167 |
| Posted on March 15, 2004 |
| I donated a kidney to my sister in DEC,1999,(I was age 31 and my sister age 40) I never thought twice about donating to my sister, she means the world to me and I would do it all over again. There is no greater feeling than giving the gift of life! I would be happy to share my experience with any one who is considering being a living donar. |
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| Ad 165 |
| Posted on March 8, 2004 |
| Our 18 year old daughter began dialysis in Dec. 2003. The transplant team has warned us that the largest group of kidney transplants that fail are young people, due to non-compliance. I want to give her one of my kidneys if I match, but I am also very concerned as she doesn't take her meds or self-cath as often as is necessary. She postpones or avoids taking responsibility, which the doctors say is a pretty typical situation with teenagers. I wonder if anyone else has some experience with this situation. |
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| Ad 164 |
| Posted on March 3, 2004 |
| My mother is in a condition where she needs a kidney. I had doubts and frustration about the post surgery effects. After reading stories on your site, it has given me sprit and comfort. I am willing to donate my kidney to my mother. Only I have few questions, how much time it would take me to recover so I can plan my leave from office, and as being the offspring how much chances of matching do I have for kidney transplantation. Please email me anyone who has knowledge regarding this matter. Once again this is a great site, and God bless and help all who are under these circumstances. I would like to talk to someone who has gone through these crises. I would appreciate it. |
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| Ad 163 |
| Posted on March 3, 2004 |
| I'm a 37 year old female strongly considering being a kidney donor for my husband which is now in end stage renal failure since Oct 2003. I know it is difficult for anyone that has to go through this in there life. But I'm thankful that I have God on our side to help to cope with everything that he is experiencing. So if anyone can give information that would be helpful for both of us would be great we both know that we could sure us the advice. |
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| Ad 162 |
| Posted on February 18, 2004 |
| Hi, I am a 41 year old male searching to discuss with others the opportunities for me to become a non-direct donor. After doing much chatity work and distant donations, I feel this non-direct organ donation is the type of thing which is good. Anyfeed back from others associated with this program would be greatly appreciated. |
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| Ad 161 |
| Posted on February 13, 2004 |
| I have noticed several ads regarding a daughter/father donation- In July of 2002, I donated my kidney (at age 29) to my father (at age 62). I would be happy to share my experience or answer any questions. Kristen Jervey |
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| Ad 159 |
| Posted on February 13, 2004 |
| Hi! I donated a kidney to my husband during spring break of 2001 and he is doing great. The doctors said that as soon as they released the clamp off the kidney it started working right away. We now have a 8 month old son and my husband has'nt had any problems with his kidney. He has six sisters and three brothers which all were tested I was the only match. Now his mother, one brother, and one sister have end stage renal failure just as he had and they all go to dialysis. My husband did'nt want me to dondate my kidney even though he hated dialysis but I talked him into it. |
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| Ad 158 |
| Posted on February 13, 2004 |
| I am a 38 year old man who donated a kidney to a friend. I would like to encourage anyone who is considering the gift to do it as I have never for a second regretted my decision and my friends health has improved greatly. |
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| Ad 157 |
| Posted on February 4, 2004 |
| I am a 47 year old female and received my sister's kidney in April 2003. I had polycystic kidneys and both of my kidneys had to be removed. I would love to speak with someone who has had a Kidney transplant as the hospital I went to does not have a support group and I feel I am in great need of one. Thanks for your understanding. |
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| Ad 156 |
| Posted on February 2, 2004 |
| I am a 21 yr old female who is looking to donate a kidney to my 60 yr old father. My mom died 2 yrs ago, my older brother has high blood pressure and cannot donate and my younger brother is too young. I am really scared and would like to talk to someone who has gone through it already or is in similar position I am in. |
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| Ad 155 |
| Posted on January 8, 2004 |
| I am a 56 year old female. I donated my kidney to my brother almost 7 years ago. I have never regretted it. It was the most amazing thing I have ever done. I am so moved when I hear of someone who has donated their kidney, or someone who wants to. What a blessing to be able to give the gift of life. By the way, my brother is doing fantastic! |
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| Ad 154 |
| Posted on January 8, 2004 |
| Hi, I am a 38 year old female being tested this week to see if I can donate a kidney to my 69 year old father. I'm excited about the chance to give him the gift of life but also a little scared. I would love to talk to other donors about their experience. |
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| Ad 152 |
| Posted on January 8, 2004 |
| Hi Everyone,
I donated my Kidney to my Identical Twin almost 5 years ago. I know the pressures, anxieties and doubts one goes through. I am here for you if you need someone to listen or would like to chat about all that is going on with donation. I look forward to talking to you. God Bless. Petra |
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| Ad 151 |
| Posted on December 12, 2003 |
| Hello, I was wondering if anyone would be able to help a friend of my family, or offer me any advice as to how I may help them. There is a 15 year old girl who is in the hospital with and enlarged heart. She has to have a heart transplant or the doctors are saying that she will not make it. I, and her family are having a hard time trying to figure out how you go about the process of finding one. The doctors are saying that normally you have to wait 6-9 months, but unfortunetly she doesn't have that long. You kind of just feel like maybe if you go the extra mile, you'll find something. At least that's how I feel. I am just asking anyone who reads this, if you have any advice or information that could help, I would appreciate it.
Thank you to everyone!! |
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| Ad 150 |
| Posted on November 18, 2003 |
| My 6 year old daughter was diagnosed two years ago with a chronic kidney disease called FSGS. She will need a transplant in the future. We are the same blood type but no tissue of antigen testing has been done yet. I would like to get any information possible on being a living donar and what the requirements are. thanks. |
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| Ad 149 |
| Posted on November 17, 2003 |
| I am looking to speak with anyone who has donated a kidney to a parent. I am 25 years old and would like to donate a kidney to my father. Although deep within my heart I know I should do it, I can't help but be afraid for myself and my dad. Please email me, I have so many questions. Thank you. |
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| Ad 148 |
| Posted on November 14, 2003 |
| WOULD LIKE TO HAVE A PENPAL TO WRITE AND SHARE THINGS WOTH I AM DISAABLED FROM END-STAGE RENAL FAILURE AND I STAY AT HOME ALOT AND I GET BORED MOST OF THE TIME I HAVE D2 KIDS ONE AT WITH ME AND THE OTHER LIVES WITH HER DAD I AM MARRIED FOR 12 YEARS NOW LIKE TO GO FISHING,CAMPING AND TRAVELING |
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| Ad 146 |
| Posted on October 22, 2003 |
| It has been over a year now that I was diagnoised with Kidney failure. My two kids were tested but I carry the RH factor and both were denied to be donors. I have a twin brother who has been tested and results sent to Northwestern Hospital in Chicago. We each have different socialworkers and right now I can't get a yes or no from anyone not even my brother. Dyalisis has gotten so depressing for me lately, I wonder if I'll ever see a transplant........sometimes I'd rather just stop dyalisis, especially not knowing if I'll ever get a transplant, Can anyone help me on this information...I can't get on Indianapolisis list until Northwestern says No....living soi close to Il. but Indiana address gives me an opportunity to get on both list.....Somebody answer me.... |
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| Ad 144 |
| Posted on October 20, 2003 |
| hello i just found out today that my 44 year old brother has chrosis of the liver and unless treated soon he could die in 3 to 6 months.i went to the internet and found out that i could be a live organ donor.and i will be for my brother if this can save his life he has 4 children and i want him to see them grow up.iam 33 years old and in good health if anyone has gone thru this please let me know.cause i will do anything to save his life thank you and God bless |
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| Ad 143 |
| Posted on October 9, 2003 |
| Hello , I am A 35 year old female , and I am going to be giving my daddy a kidney on Nov.13th . And I have decided I want to to it the old fashion way , anyone with some information please E-mail me. thank you |
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| Ad 142 |
| Posted on September 5, 2003 |
| i am a hairdresser. one of my clients was in desperate need of a kidney. his family hs a genetic disease called, p.k.d. no one in his family could donate, and no one else that tried was a match. i was more than willing, and by the miracles of God, i was a perfect match! our transplant took place on august 15, 2002. tony ruffino was the recipient. we have just celebrated our 1 year anniversary. he is doing great! he has never even had a slight rejection. i was lucky enough to be one of the first people to have a new procedure called "minimally invasive" i only have a 2 1/4 inch scar!!! without even lapracopic inscions. i have never felt better. i encourage everyone to consider being a living donor. not only does it change the recipients life, but has enriched mine. anyone that has questions or support please feel free to e-mail me....michelle garcia |
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| Ad 140 |
| Posted on September 2, 2003 |
| My son was born with kidney failure and was on dialysis from age 10 months until he was 5. I then donated a kidney to him. He's doing very well and is 11 years old now. I love to e-mail with other parents of kids who have had (or need) transplants. I'm also happy to help anyone who is considering becoming a living donor. |
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| Ad 139 |
| Posted on August 18, 2003 |
| Six years ago my sister had a kidney transplant, the kidney was donated by my father, unfortunatly the kidney is now failing for reasons not compatability related. I was pregnant at the time and was not considered 'suitable' now my daughter is six and I desperatly want to donate to my sole sibling, my beautiful big sister but she now has lost trust in the Hospitals. Recently, while watching the Discovery channel on Sky, I saw a documentary about the technique used at the University of Maryland, if anyone has any info or an E-mail address could you please forward this to me . Thanks and good luck to all who have donated or who are thinking of donating. |
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| Ad 138 |
| Posted on August 7, 2003 |
| I am considering becoming an altruistic non-directed kidney donor. I have a two and a half year old girl. Is there anyone out there who donated a kidney while having a toddler to care for? Any suggestions for the recuperation period while lifting is restricted? |
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| Ad 137 |
| Posted on August 7, 2003 |
| I would like to donate a kidney to my husband. He is 66 yr old, I am 65 yr old. I am in good health. We are just starting to get health records etc to the hosp. I see so many wonderful stories re donation but I don't see a lot in our age group. Would like to hear from some over 60 but not over the hill yet donar/recipients! |
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| Ad 136 |
| Posted on July 21, 2003 |
| i have had alot of health problems which began when i was three years old and i am now 24(childhood cancer survivor of 21 yrs)! i recieved a kidney from my aunt about six months ago, i thank her so much for what she has done for me and i try to show her in little ways every day how thankful i am but nothing can top the gift she gave me for christmas. i do not come across many my age that have also recieved a kidney transplant and would like to know more people. |
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| Ad 135 |
| Posted on July 18, 2003 |
| well i am 41 years old and i have chronic renal failure and my daughter wont to give me her kidney but they say is not old enough to give me one she is 17 they said when she turns 18 she could she was upset about it but i told her it would be ok maybe they can find me one.I know how people feels when they can not find one but they will some day |
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| Ad 134 |
| Posted on July 16, 2003 |
| LAst September I lost my second kidney to cancer. My doctor told me that I would have to wait at least 2 years before they would consider me for a transplant. Is that true? Everytime I talk to him i get the run around. I am extremely healthy under the circumstances. I still work full time,do diaylsis 3 times a week. I even set up a vacationout of state. I know I can live with the prognosis. But Ineed complete information , not only for me, but for my family. I don't know what to tell them. Any info I can get is better than none, and is greatly appreciated. |
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| Ad 133 |
| Posted on July 16, 2003 |
| i recieved a kidney from my aunt about 6 months ago. i am 24 yr old and couldn't be put on the waiting list b/c of all my other health problems(i am also a childhood cancer survivor, 21 yrs ago)! my mother was going to donate to me and was a great match but at the last minute the doctors decided to use her kidney as a last resort. my aunt is so wonderful and i can't thank her enough for what she has done for me; every where i go i tell everyone that she has donated a kidney to me. we even have a donor/reciepent pin, she has half, i have the other half and together they make a whole. |
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| Ad 132 |
| Posted on July 7, 2003 |
| I am 22 years old and scheduled to donate my kidney to my uncle (who is adopted, thank God we match!)Aug.1st. I would just like some information (and support) from someone who has donated. I know about the surgery, but would like more info on my and my uncles recovery. I would also like to know if anyone who has donated, had a hard time with friends or family accepting it...and how you got through it. Thanks in advance for your responses |
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| Ad 131 |
| Posted on July 1, 2003 |
| i donated a kidney to my 23-month-old son on 5/14/03 and would do it again in a heartbeat. i wish everyone out there would consider organ donation as there are so many people out there not fortunate enough to have someone close to them as a donor. if anyone out there has any questions about donation, transplant surgery, having a child with kidney disease, etc, i'd love to chat with you. i am thankful that i could give my son a second chance at life and encourage everyone to consider being a donor. |
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| Ad 130 |
| Posted on June 17, 2003 |
| Kidney Donors Unite! Hi Everybody, I'm a 42 year old single dude (still lookin' darn it!) with a 15 inch scar that I am proud of! I donated my kidney to my sister back in 1979 and she held on to my kidney for 10 years. In fact three in our family donated kidney's to her. We loved her so much! Near the end of her life she needed a liver transplant-we were all ready to give her that too!If there is anyone from Jersey out there that would like to "hook up" with a fun lovin' Irish Kidney Donor, let's start training for the donor events at next years' Transplant Games! Don't forget, You are a HERO! Let's all fight hard to stop kidney disease! |
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| Ad 129 |
| Posted on June 16, 2003 |
| I have a friend with chrosis of the liver. He is 44 yrs. old. He is at his end stage. I just recently discovered the (live doner) I am also 44 yrs old. My only problem with health is that I have fibromylgia. My friend doesn't get much or if any health care from where he lives. Mostly just diuretics and a doctor visit far and few in between. I would greatly appreciate any information on this subject. This is all new to me and since I recently have gotten a computer I never dreamed so much info. from so many places. I don't know where to start. I would like to help my friend as much as possible even if it means to be a doner. |
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| Ad 128 |
| Posted on June 16, 2003 |
| Hi everyone. I am a 36 yr. old "spouse donor". I gave my husband one of my kidneys on Aug. 8,2001. Surgeries were text book perfect and he's had no rejection since surgery. We are almost 2 years post-op and my husband is doing absolutely wonderful. He has 6 siblings all of whom got tested but none matched. I got tested and we "matched." Our surgery was in New Orleans at Tulane University Hospital. We are both fine. Our surgery was on a Wednesday. I went home on Friday and he came home on that Sunday. He did lab work weekly for the first 3 months. Then they moved him to monthly. Now, he goes every 6 months but still does blood work the first Monday of every month. Kidney took with no signs of rejection. Actually, since he came home from day one, his medication has only been adjusted ONE time and that was done in the first month post-op. I have absolutely no regrets. |
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| Ad 127 |
| Posted on June 11, 2003 |
| I gave a kidney to my mother in law in Apr 97 and she is doing well!!! Does anyone have information on any branch of the military that will accept me into the service? |
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| Ad 126 |
| Posted on June 5, 2003 |
| I am a 31 yr. old male who is in the process of donation to my 65 yr. old diabetic father. I have done some research but I am really looking to see if people know about long term effects of living on the one kidney. I also wanted to know how it might effect insurance or quality of life. Thank you for this website and your support! |
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| Ad 125 |
| Posted on May 28, 2003 |
| May 28 will be the 6th anniversary of my donation of my right kidney to my mom. She is doing well and I am fine also. I thank the doctors at Rush Pres St Lukes Hospital in Chicago for their great work with us and continued care of my mom. |
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| Ad 124 |
| Posted on May 28, 2003 |
| My doctors keep saying that I might need a Kidney Transplant soon but I dont think they ever put me on a waiting list. I was wondering if someone could tell me how to go about it. My mother wants to donate a kidney to me, but she is not sure how to go about it either. In all honesty im kinda afraid to do it cause I am only 23 and I am afraid something will go wrong.I would also like to know if someone that has been through it could tell me more about the whole thing cause I havent been told much. Thank you for any information you can provide. |
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| Ad 123 |
| Posted on May 27, 2003 |
| My friend is a diabetic and in esrf and is on dialysis 3 days/week. He has ask me to donate one of my kidneys to him and I dont know what to say to him. I dont know if we will be a match or how long he will live even with the kidney,so Im very worried about this. He told his doctor this and his doctor wants me to call him.He doesnt want his family to donate to him because they may become diabetics some day and will need their kidneys so Im the logical choice in his mind. Im in need of advise asap.Thank you |
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| Ad 122 |
| Posted on May 27, 2003 |
| My dad has chrosis of the liver. His ammoniua build up is getting so bad to where he gets confused very often. He has also had fluid buildup in his chest and abdomen. They orgionally thought he had a heart prob but ruled that out. I know he will eventually need a transplant. I would like to be the donar. I am 32 and in good health execpt that I need to lose a little weight. Has anyone been through this. I would like to know pros and cons. And what is the expectation for the future. He also has diabetes. |
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| Ad 121 |
| Posted on May 27, 2003 |
| Hello Everyone, I am donating a kidney to one of my former tennis students. The surgery is scheduled for June 4th,2003. I have know Cheryl for just over 15 years and was amazed to find out that I am a perfect match. I am not a blood relative, asian or a woman, yet God in his perfect wisdom, placed me in her life for this purpose. I am married with 2 young children. My oldest is 7 and has been to all the meetings with the Doctors. I would like to commicate with anyone in the New Jersey area who is either going through or thinking about donating. |
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| Ad 120 |
| Posted on April 29, 2003 |
| I am 31 yrs old and I am about to donate a kidney to my father on Friday the 25th at Mayo Clinic. I would like to hear from someone who has been through the process and share with me their experience. |
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| Ad 119 |
| Posted on April 21, 2003 |
| Hi my name is lou,and my husband is on hemo dyalsis at hospital but we are thinking of doing it at home has anybody got any info as i like to read as much as possible about things thank you. |
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| Ad 118 |
| Posted on April 14, 2003 |
| Hi. In a couple of days my father is starting dyalisis (did I spell that right?:)) and he is finding out if he is elidgable for a kidney transplant, and therefore if all the tests come out I may be the donar. I am trying to find out a little information about the actual surgery and anything else. Than You for any help. Hilary |
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| Ad 116 |
| Posted on April 11, 2003 |
| I donated a kidney to my sister December 12, 2002. What a wonderful experience. We are both doing great. I encourage everyone to consider being a donor. God continues to perform miracles and answer prayers. |
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| Ad 115 |
| Posted on April 8, 2003 |
| I am considering donating a kidney to my brother-in-law, who has Wegener's Disease. Both his sister and his brother (my husband) have been crossed off the list of potential donors because of high blood pressure and high cholesterol. I'm almost 54 y.o., and in good health (although I could afford to shed some weight). I want to make as informed a decision as possible, of course, so I welcome others' experiences. I'm not doing this merely out of "duty", but because my brother-in-law & his wife are not only family but also very dear friends, and I want to do whatever I can to make sure that he dies of old age & gets to see his sons grow up. |
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| Ad 114 |
| Posted on April 8, 2003 |
| Hi! My husband is a diabetic on dialysis and we just went for our first visit to consult on a transplant. Ideally, he would get a kidney and pancreas but I'd hate to have him wait. I'm thinking of donating a kidney and wondered what you could tell me, good or bad about it. What did you go through, did you regret anything? I'd appreciate any thoughts or comments. |
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| Ad 113 |
| Posted on March 26, 2003 |
| I am donating my kidney to my son at Mayo Clinic in June. I would like to get as much information as possible about the surgery, recovery etc. Thank you! |
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| Ad 112 |
| Posted on March 20, 2003 |
| My husband had a lung transplant 10 years ago and is a walking miracle!!! Now because of the side effects of the transplant meds he is in need of a kidney transplant. I would like to donate one of my kidneys for him. My question is twofold: I would like to hear from anyone who has donated a kidney to a spouse as to how they are doing physically as I am very active (52 yrs young), how long did it take to get back to "normal", etc. Has anyone had any "reservations" about donating a kidney? Also, any other lung transplants that have had kidney tranplants? |
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| Ad 111 |
| Posted on March 12, 2003 |
| Hello everyone, I am 27 years old and I just donated my kidney last Wednesday the 5th of March. I wanted to try and find others to meet and possibly make friends with who have done the same thing. It has been a week now and I feel so blessed to have been used by the Lord in such and amazing way. Anyway, please feel free to write if interested and God Bless everyone. |
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| Ad 109 |
| Posted on March 7, 2003 |
| I am highly motivated to become a kidney donor. My current quandry is this--should I worry about future insurance coverage? Does anyone have details on this? Please share. |
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| Ad 108 |
| Posted on March 3, 2003 |
| I am going through the testing process in preparation of donating a kidney to my sister. I have no reservations but by my choice, I have a limited amount of information about the surgery process, keeps my stress lower. I was wondering if there were anything someone who has donated feels would be a MUST to know about the surgery or recovery. Thank You. |
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| Ad 107 |
| Posted on February 28, 2003 |
| Hi. My 21 year old son donated his kidney to me, his mom this past Aug. We are both feeling wonderful. The transplant was done at Johns Hopkins in Balt. It was textbook perfect. However, now I am having some issues with depression. Anyone have a similar problem? Help! |
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| Ad 106 |
| Posted on February 28, 2003 |
| I'm 46 years old living in Florida and plan to donate a kidney to my 53 year old sister in Ohio who has Wegener's Disease and is on dialysis. I'm extremely active and play tennis, snow ski, scuba, and do aerobics. I also have a craft business where I pitch my own craft tent. Please share your post-surgery experiences including whether you have as much energy after the surgery as you did before, and anything that happened--expected or not. Many thanks--I'm happy to donate but not sure how/if it'll change my life! |
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| Ad 105 |
| Posted on February 21, 2003 |
I Have many questions about kidney failure and transplants, my father is a 76 years old. He has always been a healthy person until kidney failure back in 2001, my biggest concern at this point mainly is the age factor. Is he to old for this kidney transplant and what is the success rate for someone his age? |
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| Ad 104 |
| Posted on February 18, 2003 |
HI, I AM 45 YEARS OLD, I LIVE IN BRISBANE AUSTRALIA AND AM IN THE PROCESS OF DOING THE WORK UP TO DONATE A KIDNEY TO MY 55 YEAR OLD BROTHER WHO LIVES IN WAGGA N.S.W. AUSTRALIA. I WOULD LIKE TO HEAR FROM ANYONE THAT WOULD LIKE TO WRITE TO ME.I HAVE NO DOUBTS WHAT SO EVER ABOUT MY DECISION TO DO THIS. BUT OBVIOUSLY I HAVE MY FAMILY TO CONSIDER AND WOULD APPRECIATE ANY ADVICE ON MAKING MY DECISION EASIER FOR THEM TO UNDERSTAND AND ACCEPT.ALSO ANY INFORMATION ON WHAT TO EXPECT. THANKYOU. :) |
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| Ad 103 |
| Posted on February 13, 2003 |
Hello, hope everyone is well. I would like to talk with someone who has been a living donor. I am to be tested to see if I can donate a kidney to my husband who will also be having a bilateral nephrectomy at the time of transplant so if anyone has been through these kinds of experiences I would love to chat by e-mail. I have so many questions and am a little confused. Thanks |
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| Ad 102 |
| Posted on February 7, 2003 |
My daughter is donating a kidney to her brother but many concerns about pregnancy after donation. Could anyone help with a story of their own or have someone we could talk to. |
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| Ad 101 |
| Posted on February 6, 2003 |
Hello everyone, I am the Mt. Morris man who just donated a kidney to the five year old Angela Rushford. Her mother had placed an ad in a local newspaper and I answered the ad. We underwent the surgery on January 3, 2003 and are doing fine. For those of you who are contimplating the donation process I would welcome your questions and concerns. I had the LP procedure and was up walking aroung the night after the surgery. Would I do it again? IN A MINUTE!! Angela is doing well, her Kreatin level is .001. Better than any reading in the history of Kidney Transplant, so I am told. To those of you who are waiting I only wish God had given me more kidney's to donate, because I would do my best to help all of you. |
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| Ad 100 |
| Posted on February 5, 2003 |
Five years ago, I donated a kidney to my sister. She is the coolest girl Alive! I was only 18 years old, she was 21, but her kidneys just decided to give up on her. After a year on dialysis and when I was old enough to donate, we went through with the operation. I would love to share my experience with anyone that is having questions, doubts, or who has had a similar experience. I haven't ever met or talked with anyone in the states (I know a few people in Canada who have had the donation experience). Please reply, I would be more than willing to share my experience with you. |
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| Ad 99 |
| Posted on February 3, 2003 |
| Hi... My sister-in-law and best friend is in the hospital with something wrong with her liver. Doctor's don't know what yet. She keeps getting worse everyday. Doctor's have put her on the waiting list for a transplant, and have asked family and friends to be tested for possible match. Can I talk yo anyone about it?? |
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| Ad 98 |
| Posted on January 17, 2003 |
| Hi, I am 39 years old and donated a kidney to my mom on Dec 4, 2002. It was my gift to her for her 63rd birthday. We are both doing good. I did have some complications post-op but should be back to work in a couple of weeks. Often I get ask would I do it again, YES, I would minus the complications. I would like to share my experience with anyone that has any questions or concerns. |
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| Ad 95 |
| Posted on January 13, 2003 |
| My husband donated a kidney to his uncle (who had PKD) in Jan of 02. Everyone is thrilled and doing well. I am, however, frustrated at the lack of long-term data on living donors. There must be some research data out there or living donation would not be allowed. Any help or direction would be helpful. Melissa |
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| Ad 94 |
| Posted on January 6, 2003 |
| On November 10, 1970 I donated a kidney to my father at UCSF. His doctor was Samuel L. Kountz (sp?). I was 24, he was 48. In April 1971 he died of pneumocistis carinii (2nd patient diagnosed with this "new disease". My doctor was Dr. Belzer (Belzer machine). I am still doing fine! If anyone has any info regarding these M.Ds I would be interested in hearing from you (or anyone else who is a long time ago donor- I wonder how many of us are out there?-that's when donation was in its infancy. We were the first child to parent transplant at UCSF). And if anyone has any questions of me I would be happy to respond. |
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| Ad 93 |
| Posted on January 6, 2003 |
| I donated my kidney to my husband and for 5 years it has been working. Now it seems to be rejecting. I don't know how to deal with this. How do others deal with what happens during rejection to someone they love. |
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| Ad 92 |
| Posted on January 6, 2003 |
| I am considering donating a kidney to my younger sister (age 31) who has been diabetic since age. I am not getting much support because the people I have talked to are concerned that my sister will not take good care of my donated kidney since she hasn't exactly been vigilent about her health up to now. She's on an insulin pump, but her diabetes is still not under control. If I donate, of course I can't put stipulations on her, and I really do want to help her avoid becoming a dialysis patient. Does anyone out there have (or has had) concerns regarding how the recipient will treat your kidney after transplantation? |
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