National Kidney Foundation Patient-Centered Outcomes Research (PCOR) Stakeholders' Conference
Walt Disney World Swan and Dolphin, Orlando, FL
Saturday, April 22, 2017; 7:30am - 2:00pm
The National Kidney Foundation (NKF) is working with the Patient-Centered Outcomes Research Institute (PCORI) to understand how patients and their care partners can meaningfully influence and contribute to Chronic Kidney Disease (CKD) research. The National Kidney Foundation Patient Centered Outcomes Research Stakeholders’ Conference will bring together 100 patients, caregivers, stakeholders and academics to identify patient-centered research priorities—and challenges—for kidney disease. The Stakeholders’ Conference will be facilitated by both a patient and researcher and will feature patient, caregiver and researcher panel discussions and break-out group sessions. Attendees will gain insight into the experiences of patients, caregivers and researchers; learn more about the importance of patient centered outcomes research (PCOR), and identify best practice strategies for actively engaging patients in kidney disease research.
Click here to read the Press Release
Chairs: Teri Browne, PhD, MSW, NSW-C & Derek Forfang
Katina Lang-Lindsey, PhD, LMSW
Michael Germain, MD
Jamie Green, MD
Rachel Patzer, PhD, MPH
Wendy St. Peter, PharmD
Mark Unruh, MD
|7:30am - 8:00am||Registration & Breakfast|
|8:00am - 8:45am||Introducation to Kidney Disease PCOR|
|8:45am - 9:15am||The Patient & Caregiver PCOR Experience Panel|
|9:15am - 9:45am||Patient-Centered Outcomes Reseachers Panel|
|9:45am - 10:00am||Questions|
|10:00am - 10:15am||Break|
|10:15am - 12:15pm||Breakout Session: Kidney Disease PCOR Priorities Identification & Discussion of Ideas/Solutions to Address Barriers to Patient/Caregiver Engagement in Research|
|12:15pm - 1:00pm||Lunch|
|1:00pm - 2:00pm||Group Panel Discussion - Identifying the Highest Priority PCOR Issues and Ideas/Solutions to Address Barriers to Patient/Caregiver Engagement in Research|
Deadline: April 21, 2017
Registration is complimentary, and includes breakfast and lunch. Registration is limited, so register early!
Patients and Caregivers - Click Here to Register
Researchers - REGISTRATION IS CLOSED
Rooms are available at the Walt Disney World Swan and Dolphin at a discounted group rate of $255 per night (plus tax), based on availability. Click here to make a reservation.
A room block has been reserved at the Courtyard Marriott Orlando at a discounted group rate of $100 per night (plus tax). Complimentary shuttle service will be provided to/from the Dolphin Convention Center. Click here to make a reservation.
The Stakeholders’ Conference is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award. For more information visit www.pcori.org
Questions? Contact Us