NKF Patient-Centered Outcomes Research Stakeholders' Conference

National Kidney Foundation Patient-Centered Outcomes Research (PCOR) Stakeholders' Conference
Walt Disney World Swan and Dolphin, Orlando, FL
Saturday, April 22, 2017; 7:30am - 2:00pm

The National Kidney Foundation (NKF) is working with the Patient-Centered Outcomes Research Institute (PCORI) to understand how patients and their care partners can meaningfully influence and contribute to Chronic Kidney Disease (CKD) research. The National Kidney Foundation Patient Centered Outcomes Research Stakeholders’ Conference will bring together 100 patients, caregivers, stakeholders and academics to identify patient-centered research priorities—and challenges—for kidney disease. The Stakeholders’ Conference will be facilitated by both a patient and researcher and will feature patient, caregiver and researcher panel discussions and break-out group sessions. Attendees will gain insight into the experiences of patients, caregivers and researchers; learn more about the importance of patient centered outcomes research (PCOR), and identify best practice strategies for actively engaging patients in kidney disease research.

Click here to read the Press Release

Chairs: Teri Browne, PhD, MSW, NSW-C & Derek Forfang

Patient Panelists:
Valerie Bailey
Kevin Fowler
Katina Lang-Lindsey, PhD, LMSW
Bobbi Wager
Caroline Wilkie

Research Panelists:

Michael Germain, MD
Jamie Green, MD
Rachel Patzer, PhD, MPH
Wendy St. Peter, PharmD
Mark Unruh, MD

Agenda

Time Activity
7:30am - 8:00am Registration & Breakfast
8:00am - 8:45am Introducation to Kidney Disease PCOR
8:45am - 9:15am The Patient & Caregiver PCOR Experience Panel
9:15am - 9:45am Patient-Centered Outcomes Reseachers Panel
9:45am - 10:00am Questions
10:00am - 10:15am Break
10:15am - 12:15pm Breakout Session: Kidney Disease PCOR Priorities Identification & Discussion of Ideas/Solutions to Address Barriers to Patient/Caregiver Engagement in Research
12:15pm - 1:00pm Lunch
1:00pm - 2:00pm Group Panel Discussion - Identifying the Highest Priority PCOR Issues and Ideas/Solutions to Address Barriers to Patient/Caregiver Engagement in Research
2:00pm Adjournment

Registration Information

Deadline: April 21, 2017

Registration is complimentary, and includes breakfast and lunch. Registration is limited, so register early!

Patients and Caregivers - Click Here to Register

Researchers - REGISTRATION IS CLOSED 

Accommodations

Rooms are available at the Walt Disney World Swan and Dolphin at a discounted group rate of $255 per night (plus tax), based on availability. Click here to make a reservation.

A room block has been reserved at the Courtyard Marriott Orlando at a discounted group rate of $100 per night (plus tax). Complimentary shuttle service will be provided to/from the Dolphin Convention Center. Click here to make a reservation.

The Stakeholders’ Conference is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award. For more information visit www.pcori.org

Questions? Contact Us