THE BIG ASK: THE BIG GIVE
Innovative Strategies to Help Patients Find a Living Donor
Information for U.S. Transplant Centers
Kidney patients are waiting for a chance at a better life. In response, the National Kidney Foundation (NKF) has developed THE BIG ASK: THE BIG GIVE to provide a comprehensive set of programs designed to increase living donation and transplantation.
NKF partners with transplant centers throughout the U.S. to bring these resources to your kidney patients and families. If you are interested in working with NKF, please complete the Interest Form.
THE BIG ASK: THE BIG GIVE includes a number of programs and resources to support kidney patients, families and potential kidney donors, including:
- In-Person Trainings to teach patients/families how to share their story and find a donor
- A national, multimedia Awareness Campaign
- Resources, videos and tools at kidney.org/livingdonation
- NKF Cares Help Line for help from trained professionals in English and Spanish
- NKF Peers to connect patients, living donors, and potential donors with each other by phone
- Printed Materials
- Online Communities for support and answers to questions
- Public Policy and Legislative Efforts to remove barriers to donation
This initiative educates and raises awareness about living kidney donation and transplantation among kidney patients, their families, and friends.
ABOUT THE IN-PERSON TRAINING
As part of this initiative, NKF has developed an innovative, 4 hour in-person training that's designed to help kidney patients find a living donor.Created for kidney patients on the waitlist, family members, friends, and potential living donors, the training is held in partnership with transplant hospitals around the country. All training materials are co-branded with logos from both NKF and the partnering transplant center, and are customizable based on the transplant center's needs and preferences.
This training provides education about living donation and transplant and teaches 7 Key Strategies for finding a living donor. These strategies are taught in a highly interactive and engaging format at your transplant center, utilizing your clinical staff as speakers during the program as much as possible, with training from NKF in advance:
- Bust myths - An understanding of common misconceptions about living donation in order to dispel myths.
- Know the facts - Knowledge about donation and transplant, so they can educate others.
- Create their story - A written story about the patient that will inspire others to consider donation.
- Spread the word - Multiple strategies for sharing the patient's story through social media, their place of worship, emails and letters, community groups, and other channels. Participants also practice talking to others about the need.
- Build a network of advocates - Ideas for how to engage others in their "Circles of Influence" to help spread the word. Participants will develop a personalized list of individuals and groups that can help them find a donor, such as community groups, or places of worship that they belong to.
- Learn from others - Ideas from living donors and recipients who share their experiences during the program.
- Create an action plan - A customized plan of specific actions they'll take after the training.
IT DOESN'T END THERE
After the in-person training, participants receive ongoing follow up support from the NKF to help them find a donor.
- NKF Cares Help Line—Trained professionals answer questions and provide confidential, one-on-one support to patients, families, and potential donors, including information by mail. Hours: Monday–Friday, 9:00am–5:00pm EST (English/Spanish). 844.2BIGASK (844.224.4275); firstname.lastname@example.org.
- NKF Navigator—A Licensed Social Worker provides individualized, follow up assistance after the training to ensure that each patient and family member can better apply the resources within their own networks, while also helping to alleviate any barriers.
- NKF Peers—NKF's peer mentoring program matches kidney patients and potential donors with people who have already been through the experience. This toll-free, confidential phone network lets people speak with a person who knows their concerns because they've "been there."
- Printed Materials—Promotional materials, along with booklets about living donation and transplantation, are available for distribution in nephrology offices, dialysis units, transplant centers, and at NKF events and educational programs.
- Online Communities—NKF's online communities provide vital help, support and information to kidney patients seeking a transplant and people considering kidney donation.
FOR MORE INFORMATION ABOUT BRINGING THE BIG ASK: THE BIG GIVE TO YOUR TRANSPLANT CENTER, please complete this Interest Form