KidneySummit16

Kidney Patient Summit 2016

Social Media Guide

Using social media to extend your advocacy outreach

Most lawmakers today know that using social media (Facebook, Twitter, Instagram) can be a quick and easy way to engage constituents.  Here are some tips on how you can use social media to spread awareness and engage your lawmakers on the issues that are important to you. 

#KidneySummit16 - For all posts on social media during the Kidney Patient Summit, please use the hashtag #KidneySummit16 so we are able to track responses and outreach to government officials.

Our Asks:

  1. Improve Chronic Kidney Disease (CKD) Care: Accurate and timely diagnosis of chronic kidney disease saves lives and reduces healthcare costs. Direct the Health and Human Services (HHS) Secretary to develop quality metrics and reimbursements that will encourage health care professionals to detect kidney disease in at-risk individuals and improve CKD care. Learn more about NKF’s CKD improvement proposal at https://nkfadvocacy.wordpress.com/.
  2. Living Donor Protection Act: Prohibit discrimination in the availability, coverage limit, or price of life, disability of long-term care insurance for living donors and add living donation to the Family and Medical Leave Act (FMLA). 
  3. Appropriations: Increase Fiscal Year 2017 funding for the Center for Disease Control’s (CDC) Chronic Kidney Disease Program, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the Health Resources and Services Administration’s (HRSA) Division of Transplantation.

Using Twitter

Sample Tweets Before the Summit:

Looking forward to joining 100 kidney patient advocates for #KidneySummit16 and meeting @[REP/SEN] to talk about #kidneydisease

#kidneydisease is a #NationalPriority. I'm on my way to DC to tell @[REP/SEN] about better care for patients. #KidneySummit16 http://bit.ly/24JKf1B

Sample Tweets During the Summit:

I’m in D.C. to meet with @[REP/SEN] to advocate for [YOUR CAUSE] #KidneySummit16

Looking forward to meeting @[REP/SEN] for #KidneySummit16 http://bit.ly/24JKf1B

We were taking over Capitol Hill at the 2016 Kidney Patient Summit! #KidneySummit16

I’m joining 100 kidney advocates this week for the @NKF Kidney Patient Summit! #KidneySummit16

I’m ready to meet with @[REP/SEN] to discuss kidney disease research priorities @nkf #KidneySummit16

Thank you @[REP/SEN] for agreeing to follow-up on [ISSUE] @nkf #KidneySummit16

Using Facebook

Sample Facebook Posts Before the Summit:

Looking forward to joining 100 kidney patient advocates for #KidneySummit16 and meeting @[REP/SEN] to talk about #kidneydisease http://bit.ly/24JKf1B

#kidneydisease is a #NationalPriority. I'm on my way to DC to tell @[REP/SEN] about better care for patients. #KidneySummit16 http://bit.ly/24JKf1B

Sample Facebook Posts During the Summit:

I’m in Washington, D.C. this week to push @[REP/SEN] on kidney disease funding initiatives. If you don’t know why this is so important to me, [INSERT PERSONAL STORY]. You can help by becoming an advocate for kidney disease here: kidney.org/takeaction. #KidneySummit16

This is what dedication looks like! I’m in Washington D.C. with over 100 kidney advocates to challenge Congress to tackle kidney disease! Read why this is so important here. nkfadvocacy.wordpress.com  #KidneySummit16. [INCLUDE GROUP PHOTO OF ALL ADVOCATES]

March is National Kidney Month and I am honored to help raise awareness about kidney disease at the Annual Kidney Patient Summit in Washington, DC. #KidneySummit16

I’m ready to meet with @[REP/SEN] to discuss kidney disease research priorities during the #KidneySummit16 [INCLUDE PHOTO]

Thank you @[REP/SEN] for agreeing to pursue [YOUR ISSUE] during our meeting at the @nationalkidneyfoundation #KidneySummit16

Photos and Videos

If you have a smartphone or digital camera, we encourage you to take photos or videos when participating in advocacy events.

  • Ask your lawmaker for permission to take and share photos or video of your meeting. 
  • Assign someone to snap action photos during your meeting.
  • Ask your lawmaker to pose for a photo after the meeting. 
  • Take a photo in front of the Capitol.
  • Take a photo with a group of advocates.
  • Take a photo outside the door of your Member’s office next to their name plate and state flag.
  • Write a short advocacy message on a piece of paper and take a photo while holding the paper.
  • Try to record videos in quiet, well-lit areas and be aware of your surroundings.
  • Keep your message short and simple. 
  • Here are some sample questions you can answer in your video:

Why did you decide to become an advocate?

What brings you to Capitol Hill today?

What do you want lawmakers to know about kidney care?

Describe your visit with your lawmaker. 

  • Be sure to use full sentences (“Today I am at the Capitol to raise awareness about kidney disease and the importance of early detection.”)
  • Try to encourage your lawmaker’s participation in the video.  This will increase the chances that his/her office will share the video with constituents.  If your lawmaker cannot be part of the video, be sure to include their name (s) in your video message.

Here are some free apps for taking and sharing photos online that you can download from the App Store on your smartphone:

  • Instagram – Take photos, videos, add filters, share with your social networks. 

Find and follow NationalKidneyFoundationalportsyndromefndnnephcurePKDFoundation on Instagram! You can also tag organizations in pictures and video you add to your own account so that they will be able to see and share them. Use some of the sample posts we’ve already suggested above!

  • PicStitch (Apple) (Android)– “Stitch” multiple photos together, share with your social networks