Hot Topics in Kidney Health
Episode 19: Working with your clinician to make shared decisions for your care
Shared decision making can play a vital role in the treatment of kidney disease. When physicians involve patients in their care, they may be able to help slow progression and improve outcomes. In this episode, we discussed how patients and their physicians can achieve this and hear stories from patients who have been there.
Episode 18: How kidney disease affects your mental health
People with chronic conditions like kidney disease face mental health struggles such as depression or anxiety. In many kidney patients those challenges often go overlooked or undertreated. In this episode, we sat down with a mentor and mentee from NKF Peers to discuss their experiences and the importance of talking to someone who knows what you've been through.
Episode 17: Tips for finding a living donor
If you are in need of a kidney transplant, finding a living donor can sound scary and overwhelming. Where should you start and what’s the best way to share your story with the world? In this episode, you will hear from transplant recipients who once stood in your shoes.
Episode 16: Pig kidneys in humans? Xenotransplantation explained.
From the invention of the dialysis machine to the first successful kidney transplant, science has come a long way in extending life for kidney patients. Is transplantation between humans and animals the next step? In this episode, you will hear from a doctor behind the first successful transplant of a human receiving a pig kidney and where the science can take us from here.
Episode 15: Deciding to become a living donor
BONUS: New study looks at APOL1 gene: do you have it?
Some diseases run in the family, when more than one person has the same kind of illness passed down through genes. One of those genes, called APOL1, has variations that are linked to an increased risk for kidney disease, especially in under-resourced communities of color. In today's bonus episode, we discuss how a clinical research study is looking to understand the effect of APOL1 on kidney transplant outcomes from living and deceased donors, and why it's important for you to be part of this research study.
Episode 14: Pregnancy and kidney disease
Pregnancy can be an exciting time for most people, but what does it look like if you are a kidney patient? What does pregnancy look like if they have kidney disease, are on dialysis, or have received a transplant? In this episode, we’ll hear useful facts and tips from transplant nephrologist Dr. Mariana Markell, as well as personal stories from Cari Maxwell and Katie Reed, two mothers living with kidney disease.
Episode 13: What are SGLT2 Inhibitors and are they the right drug for you?
You might have heard about drugs called SGLT2 inhibitors used in treatment of kidney disease, but, just like many other kidney patients, you might not know if they’re right for you. On this episode, we explain how different SGLT2 inhibitors are from other kidney disease medications, discuss side effects, cost, and the ongoing research around this category of drugs.
Episode 12: How much sodium is safe for kidney patients?
Most patients on dialysis need to limit the amount of sodium in their diets. But how much sodium is safe and what are some ways to add flavor to your diet? On today‘s episode, our experts cover examples of high sodium foods, recommendations for low sodium substitutes, and how much sodium people with kidney disease should have as a part of a healthy diet.
Episode 11: What do changes to eGFR calculation mean for patients?
BONUS: Coping with pediatric kidney disease
This bonus episode features a conversation from The Journey Continues, a podcast by the National Kidney Foundation of Illinois. Host and kidney transplant recipient Monica Fox spoke about pediatric kidney disease with Katie Adduci, a nurse and living kidney donor to her son Max, as well as Nicole duMont, a licensed social worker who has worked with children in all stages of kidney disease and transplantation.
Episode 10: Tips for overcoming financial hardship for kidney patients
Many kidney disease patients often face financial hardships, such as having to leave a job or struggling to pay for medications. We sat down with physician and a postdoctoral research fellow Dr. Issac Acquah to talk about his recent research into the financial impact on people with chronic kidney disease.
Episode 9: How to become an advocate for kidney health
Over the past year, NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. In this episode, we discussed some recent wins and our upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient, and Armand Halter, an NKF patient advocate who helped lead NKF’s efforts to pass the Connecticut version of the Living Donor Protection Act.
BONUS: Systemic Lupus and Lupus Nephritis
This bonus episode features a conversation about lupus nephritis between rheumatologist Dr. Irene Blanco and Shanika Chuying, a person living with the disease. Dr. Blanco and Shanika will discuss the facts about diagnosis and treatment of the disease as well as clear up some common misconceptions.
A major worry for many people right now is the Delta variant, a highly contagious strain of COVID-19 which is making headlines across the United States. The FDA has just authorized a third dose of the COVID-19 vaccine so that immune compromised patients can better protecting themselves from the virus. What does this mean for CKD, dialysis, and transplant patients? We spoke with Dr. Joseph Vassalotti, NKF Chief Medical Officer, in a recent Facebook Live to share the facts about the Delta variant, COVID-19 booster shots, and other concerns facing kidney patients.
Episode 6: Creating an inclusive and affirming environment for LGBTQ+ kidney patients
Episode 5: What the new CDC masking guidance means for kidney patients
Episode 4: Coping with depression & anxiety during a global pandemic
Episode 3: New way to get involved in research for kidney patients
Episode 2: Is mobile health the way of the future?
Episode 1: The latest in COVID-19 vaccines for kidney patients