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Fabry disease is a rare disorder that happens when the body lacks an important enzyme called alpha-galactosidase A (alpha GAL). This enzyme breaks down certain fats so they can be removed from cells and passed out of the body or be recycled for other functions. When alpha GAL is missing or present in low amounts, fat builds up in cells of the blood vessels and tissues of the kidneys, heart, skin and brain. Over time,...

It’s important to stay up-to-date with your vaccinations, especially if you have kidney disease, kidney failure, or a transplant.  There are several vaccines that you need.  One important vaccine that you may not know about is the vaccine for pneumococcal disease.   

Pneumococcal disease is an infection caused by...

High blood pressure is common in children with chronic kidney disease (CKD). Because of their young age when they develop CKD and high blood pressure, there is a high risk that these children may eventually have heart problems and a worsening of CKD. It is very important for children with CKD to be checked for high blood pressure. Early detection and treatment of high blood pressure helps to reduce the chance of these complications. This fact...

• High levels of potassium in the blood (called hyperkalemia) is unpredictable and can be life-threatening. It can cause serious heart problems and sudden death.1-3 There are often no warning signs, meaning a person can have high potassium without knowing it.4
• If symptoms do occur, they are often nonspecific such as heart palpitations, nausea, weakness, or paresthesia.5 Paresthesia is...

If your child has been diagnosed with chronic kidney disease, you are no doubt feeling distressed and bewildered. These feelings are normal. And once you realize that your child's illness is a reality the family must accept, you can develop some practical ways to cope with the day-to-day aspects of it. Here are some things others have found helpful.

1. Learn as much about your child's...