NKF Patient Network
Be a Part of Kidney Research
Thank you for your interest in the NKF Patient Network. At this time, the NKF Patient Network is closed to new and existing participants as it transitions to a new platform.
For registered NKF Patient Network participants: If you would like to enroll on the new platform, please let the NKF team know by clicking here. We will contact you once the move is complete to let you know how to register.
Alport syndrome patients already enrolled in the Network will remain on the current platform and can continue their participation in the newly retitled ASF Alport Patient Registry. That registry is also available to newly enrolling Alport syndrome patients. Contact info@alportsyndrome.org for further details.
For new, non-Alport syndrome kidney patients interested in participating in the NKF Patient Network click here to be notified once the move is complete and registration reopens.
If you have questions or inquiries, please contact the NKF Patient Network team at: nkfpatientnetwork@kidney.org and a representative will get back to you promptly. You can also call our helpline NKF Cares at 1.855.NKF.CARES (1.855.653.2273)
For any additional kidney resources and education, please visit us at kidney.org.
What People are Saying
NKF Patient Advocate
Curtis Warfield
This Network will provide a lot of education that we need as patients as we advance through the difference stages of kidney disease, through dialysis, transplant, and even post-transplant.
This Network will provide a lot of education that we need as patients as we advance through the difference stages of kidney disease, through dialysis, transplant, and even post-transplant.
NKF Patient Advocate
Mary Baliker
The Patient Network is a great resource for patients at all stages of chronic kidney disease. It's exciting to have the kidney community come together, both patients and healthcare professionals. As a patient I look forward to seeing how the network will help improve healthcare for kidney patients.
NKF Chief Scientific Officer
Kerry Willis, PhD
I could not be more pleased that data from patients at all stages of kidney disease will inspire and inform research to improve what is known about kidney disease and how it affects people’s health and their lives.
Nephrologist, Geisinger
Alexander Chang, MD, MS
The effort of the NKF establishing this Patient Network is huge. The opportunity to connect patients to get patient-reported data and offer the opportunities to participate in clinical trials is a step in the right direction.
Sponsors
Foundational support for the NKF Patient Network was provided through a collaboration with Bayer AG. AstraZeneca and Novartis are platinum sponsors. Boehringer Ingelheim is gold sponsor.
