www.kidney.org

Coping with a Child Who Has Kidney Disease

 

Children with Chronic Kidney Disease (CKD) have a lifetime of challenges ahead of them. Dealing with Kidney disease takes time and energy and effort on the part of the parent. Your vehicle donation helps in many ways. Let’s take a look at the toll on the child.

Attending School

Making sure a child can attend as much school as possible is essential. School administrators and teachers should be very aware of the child’s situation. Children may need to miss school once a week for dialysis. This can cause a hard place in the learning of the child. Parents should do their best to schedule appointment outside of school but that is not always possible. Making the teacher aware of the situation and having homework sent home can help tremendously too. Tutoring may be necessary and special accommodations too. Parents can ask the school about getting an IEP for a child who is suffering from CKD.

Low Self-Esteem

Having CKD can make a child feel depressed and powerless. One way to help with this is to give the child as much control and responsibility over their own care as possible. This will help them feel involved. Children can learn about their medications, know about their dialysis and participate in heir treatment decisions as much as possible. One aspect of CKD is that the child may suffer from urinary incontinence. This can be embarrassing and frustrating but there are treatment options and great products that can help with this side effect.

Sports and Physical Activities

In general exercise is good for children with CKD. A doctor should be consulted but participating in physical activity will help the child with depression and will encourage them that they can do hard things. Being a part of your peers and the activities they are involved in is essential to children that can physically handle being active.

Following Treatment Regimens

This is crucial when a child has CKD. Consistency in treatment will help the child feel better and by having them participate in their own care they will take some responsibility. Help educate the child as to their condition and the importance of the treatment. Together, make decisions on how medication will be remembered and taken on time. Encouragement goes a long way with a child and children are capable of a lot more than adults tend to give them credit for.

Diet

Kids are often times picky eaters so managing the diet of a child can really be hard. It is well worth teaching a child with CKD to eat a renal failure based diet and make it fun for them, well...as fun as you can. Give the child something to look forward to, if they are having a hard time dealing with the proper diet. Rewards like charts and simple dollar store toys might be all it takes. Be persistent and vigilant because diet is a huge part of long term care for a child with CKD.

Be patient with children who have CKD. This disease is difficult for full grown adults to cope with. Be loving and kind and see ways that you can jump in a cheer them up. Self Esteem and depression run high when kids have to suffer from CKD. A little love goes a long way.