Massachusetts Ending Disparities in CKD Leadership Summit

About the Initiative

As part of a national NKF Collective Impact strategy, Massachusetts stakeholders are implementing a roadmap to drive a cultural shift in primary care- toward increasing early diagnosis and appropriate management of CKD, particularly in communities disproportionately burdened by CKD.

Collective Impact Process

Using a multi-phase stakeholder engagement process, NKF will create the conditions for Collective Impact - influential champions, adequate financial resources, and a sense of urgency for change1- to drive change in Massachusetts.

Learning and Action Workgroups

Through a series of facilitated discussions, health care and public health leaders will identify barriers and solutions to improve CKD awareness, detection, and management in Minnesota as well as tools and strategies that can be implemented within stakeholders’ own institutions. Learning and Action Workgroups will support increased awareness and action amongst the participants. 4 workgroups will convene covering the following topics:

Clinical Considerations for CKD in Primary Care

Goal: To discuss strategies and approaches that can be employed to improve CKD recognition and care in primary care settings

Background: A large, national study illustrated that less than 12% of people with CKD were diagnosed in primary care. This included as many as 40% of people whose kidneys required specialty care.  With the advent of new therapies demonstrated to slow or stop the progression of CKD, there is a very real opportunity to improve quality of care for people with CKD across the entire spectrum of disease.


Engaging Community and Community-Based Solutions

Goal: To develop strategies to advance CKD awareness through community engagement and to ensure that health care providers are aware of the community resources available to prevent and delay CKD progression

Background: In the US today, only 10% of people with laboratory evidence of CKD know that they have kidney disease. Improved patient awareness, engagement, and self-management are vital to successfully slowing CKD progression.  As diabetes and hypertension play significant roles in the development of CKD, working with community organizations that support people with chronic disease can be an important step toward raising public awareness of CKD among those at risk for CKD.

May 9, 23, 30 from 10:30-11:30am ET


Policy, Payment, and Quality Measurement

Goal: To develop a strategy to streamline CKD testing in primary care from a policy and payment perspective

Background: In July 2020, the NCQA released the Kidney Health Evaluation for Adults with Diabetes HEDIS measure (KED). This measure assesses the percentage of people with diabetes that receive both tests for CKD during the course of a year. When tested against over 70 claims datasets, this measure was achieved in only 35% of cases.  This measure began collecting data for public reporting in late 2023. In addition, effective in 2023, CMS made the KED measure a Medicare Merit-based Incentive Payment System (MIPS) measure, and NCQA launched an updated Diabetes Recognition Program to include the measure. For 2024, Medicare Advantage and Part D plans will report against the Kidney Health Evaluation Measure for the STAR ratings system.

May 17 from 11-12pm ET

Please email for invite

Wellness and Prevention (CKD Population Health)

Goal: To develop a strategy to incorporate CKD testing and diagnosis into wellness and prevention practices within the employer/commercial health plans, and the broader community.

Background: To date, almost 90% of people living with CKD remain undiagnosed in the population and the majority will not receive guideline recommended annual testing. This breakout session will discuss the strategies that can be developed and employed to ensure that CKD testing and diagnosis are included as part of the wellness and prevention services, including corporate programs, diabetes prevention activities, etc., that are available in the state.

May 8, 15, 22, 29 from 10-11am ET



NKF and Massachusetts stakeholders will present the roadmap at the final summit on June 18th from 12-2pm ET. The roadmap is a collection of recommendations for change made by healthcare, public health leaders, quality improvement, and patients from across Massachusetts.

Leadership Summit

Join us to hear how we can leverage the collective impact model to make these roadmap recommendations a reality. Register here

Learn More and Join the Collective Impact Effort

Mallory Caron, Senior Manager of Population Health Partnerships,


  1. Hanley Brown, F. Kania, J. and Kramer, M. Channeling Change: Making Collective Impact Work. Stanford Social Innovation Review. 2012.  
  2. Szczech, Lynda A., et al. “Primary Care Detection of Chronic Kidney Disease in Adults with Type-2 Diabetes: The ADD-CKD Study (Awareness, Detection and Drug Therapy in Type 2 Diabetes and Chronic Kidney Disease).” Public Library of Science, 26 Nov. 2014.
  3. “Chronic Kidney Disease (CKD) Surveillance System: Awareness.” Centers for Disease Control and Prevention
  4. Brock, Matt. “Kidney Health: A New HEDIS Measure.” NCQA Blog, 16 Jul. 2020.
  5. “Chronic Kidney Disease in the United States, 2021.” Centers for Disease Control and Prevention, 4 Mar. 2021.