NKF Serving the Carolinas - North Carolina
NC Caregiver and Pediatric Patient Survey: Recruiting Now!
- Are you a caregiver/parent of a child (ages 12-18) who is on dialysis (home or in-center), undergone a transplant, have urologic issues or lupus nephritis? We would like to have a zoom or phone interview with you and your child (20 minutes with adolescent patient and 30 minutes with caregiver).
- Are you a caregiver/parent of a child (ages 11 and under) who is on dialysis, undergone a transplant, have urologic issues or lupus nephritis? We would like to have a zoom or phone interview with only you (30-45 minutes).
- Are you a provider who takes care of pediatric kidney disease patients? If so, can you recommend anyone for this survey?
The survey will cover the caregiver and patient’s experience, stories, challenges, and provide feedback on potential programs for children with kidney disease. All provided personal and health data will remain confidential. The goal of the survey is to generate an overview report on crucial issues and desired programs for a North Carolina pediatric kidney disease initiative to be designed this year.
For your time and insight, the NKF-NC will offer a gift card to complete the phone or zoom interview (one card per family) and we are actively recruiting until June 30, 2022. Interested? Please contact Ashby Andrews at email@example.com or at 704.519.0020 for initial screening & scheduling.
We have limited spots and reserve the right to decline once we have scheduled the total number of interviews.
Patient Empowerment Workshops
An annual collaborative education event that provides the opportunity for local patients affected by kidney disease and their caretakers to celebrate and learn. A volunteer committee of patients and health professionals will organize exhibitors and engage speakers to deliver presentations geared towards stage 4 and stage 5 dialysis patients. In addition, patients are honored as 'everyday heroes' in their fight against kidney disease.
Upcoming Patient Empowerment Workshop announcements coming soon!
Kidney Disease Support – Charlotte
On the second Tuesday of each month, the Charlotte Kidney Disease Support Group meets at Carolinas Medical Center. 1000 Blythe Blvd., Third Floor, Dining Room 2 (across from the cafeteria).
Enjoy a complimentary, renal-friendly dinner and great conversation. You can download the full 2020 meeting schedule with speakers and topics in English or in Spanish. This program is sponsored by Atrium Health and Fresenius Kidney Care.